Feb 17, 2010 - 9:16 pm
Wednesday, January 17, 2010 (just incase the date isn't with the post)
Our 31 year young daughter has just had a large tumor removed from her left front lobe. We're told it was about 20% of the size of her brain. The cells have still not been identified but they are called primitive. This cancer is rare in adults, and also in children, but found more in children than in adults. Today she began her radiology treatment. Friday will be her first chemo.
They plan to do both treatments concurrently. Children can handle it ok, but adults don't usually do as well. But it seems it is the protocol they want to follow. So she will have three types of chemicals, including CUNN (?) platinum, and a derivative of periwinkle. I don't have the proper names at my finger tips.
My question to others... what is the prognosis for this type of cancer? I didn't ask our Dr., as our daughter was right there and I didn't want to discuss this in front of her— if she didn't ask. We are very optimistic. She is the most positive person I know. She makes me feel small by comparison. By that I mean small in my spirit. She does not exhibit doubt nor negativity. I try not to show any either, but I feel her strength is very strong, while I tend to fixate on learning about things, which then makes me apprehensive. I can't really let go of the need to know, because what if there is some piece of knowledge out there that could make a big difference? I would not be able to live with myself if I didn't persevere and try to learn all I can.
We are blogging about our experience at blogspot.com, you can find our blog at http://lizsbrainwaves.blogspot.com. It shares how we found out it was a tumor and not a stress headache; to repairing a torn dura; to radiation and chemo with all the daily life stuff.
I would like to talk with anyone else with experience with this type of tumor in a "what-to-expect" or "how-your-experience-went" way. I want to keep the focus upbeat and proactive, but do understand not all news is positive. I say this by way of expressing that I am stressed enough with my own anxiety that I want to learn how to seek out info that could be useful to know.
I am right now frustrated by well meaning friends. Now there seems to be "high oxygen water" out there being marketed for cancer patients. It defies logic to me that water can have ANY more oxygen in it than the one molecule it has. After all H2O is just that. Isn't H2O2 "heavy water"? Isn't that unhealthy for people? If you infuse water with oxygen doesn't it just leak out?... bubble up to the surface? It has been my experience that oxygen in water produces bubbles that don't stay in the water, so, IMHO. I would say the companies selling this are charlatans that are making a buck on someone else's malaise.
I look forward to any discussion on this topic. Thank you.