Feb 15, 2010 - 12:24 pm
Wondering how much information you all get from your doctors regarding your scans and what type of post scanning is used? I have gone for two CT scans now and find them to be very exact in their findings and more thorough than a PET or MRI. Perhaps too thorough! My initial test was an MRi which found an enlarged lymph node. My next test was a PET which in addition to that found a 9MM calcified lung nodule with no uptake. My first test post treatment was a CT with contrast which found no cancer but the 9mm nodule as well as another micronodule. The limit of PET is around 9mm but CT can really get to the small stuff around 4mm. My latest six month CT found four nodules total which has me totally freaked out. It does read "scattered micro nodules, unchanged since last CT, most likely benign, no definite evidence of metastic disease"
My doctor says he isn't worried about it since they are stable. I asked why they weren't reported on the first scan? He brought both pictures up side by side and pointed out the nodules on both scans. He said they were so small the first radiologist didn't feel they were worth mentioning. He said I simply got a more meticulous radiologist this time around who included them in his report. He went on to say that because I had cancer it dosen't mean they weren't there previously for some other unrelated reason. He then said that if he pulled people off the street randomly many would show nodules on a CT. He said he is 99% sure it isn't anything and not to worry about it. He said this is as good as it gets with post scans and that he has seen much worse. All it would take is for some food to be aspirated into the lungs to cause this and he said I wouln't even know it. He considers this a clean scan.
As you can see he went out of his way to reassure me yet I can't seem to stop worrying about this. It quite frankly terrifies me! Furthermore a PET or MRI would not even be picking this stuff up. My problem is I ask for written reports of the test and compare them. Perhaps I'm better not knowing and is this simply too much information since I'm losing sleep over constant anxiety regarding this.
What are your doctors using for post scans and do you read the reports?