Feb 14, 2010 - 3:04 pm
My husband is 45 years old and on September 18 was diagnosed with glioblastoma grade IV brain cancer. He has 2 tumors that are both inoperable, confirmed by several doctors. He has had the standard treatment of 7 weeks chemo plus temodar and is now on his 3 round of maintenance temodar (300 mg 5 days on 23 off). He is also taking the steroid decadraun once a day (4mg) and has many side effects. His back and knees hurt him very much. However, because of the steroids he has gain almost 40 pounds. His first scan showed some shrinkage and the second one showed no growth but no shrinkage either. He is very weak some days and other days he seems stronger. I don't know that he will ever be the same. Can anyone tell me if they are or have experience what we are going through and what to expect from here on? It is very hard not knowing. We have 4 children (all teenagers) and I honestly don't know what to tell them. They only see that their dad is not the same person and don't know what to do.