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treatment for stage 4 lung cancer

annemarie77
Posts: 17
Joined: Feb 2010

I was diagnosed with stage 4 lung cancer about 1&1/2 months ago, spread to spine (not the bones), liver and lymph nodes. I was told surgery and radiation are not an option. The only thing they can do is chemo and it won't cure it perhaps shrink the tumors. Has anyone else had anything else besides chemo? I'm not ready to give up and I really want to stick around for as long as possible. I am very scared.

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

There are a number of reasons why your doctors would preclude surgery and/or radiation, but I suspect the main one in your case is the spread of the disease. When my docs were once convinced (in error) that mine was not in one lung but both they told me that I would be gone soon, perhaps within 10 months. When I asked about surgery, the answer was No: the cancer had spread.

But all is not lost, annemarie. While one would certainly prefer to hear that one is in remission or cured, I hear more and more from folks who indicate their cancer is being 'managed', that they are taking 'maintenance' chemotherapy. Some of them have apparently been at it for some time.

It is not an absolute, either, that chemotherapy will be horrific: the medical folks are coming up with new ways to administer 'old' chemotherapies that make them easier to tolerate, and they are certainly coming up with new kinds of chemo that do what the 'old' ones did but without so much of the intolerable side effect.

With the latter in mind, you might also consider pursuing trials that are going on. check out ACS' affiliated magazine CURE, for one, to find out about pertinent trials (I think you can access it online at www.curetoday.com).

That said, you have every reason to be scared, annemarie. You have every reason to believe that you are going to have a rough row to hoe.

Welcome to CSN, in any event. It is a crummy club, due to the 'membership requirements', as you have discovered, but you are sure to find the people very supportive. It is not just a good place to seek information but a great place to vent knowing that there will be receptive people on the other end.

I wish you the best, annemarie.

Take care,

Joe

mama1958
Posts: 5
Joined: Feb 2010

I was diagnosed 3 weeks ago with this and was told it was in my lymph nodes. The Oncologists gave me 6 months with chemo and 8 with out. I am in a whirl wind and in shock. My Dad died 5 years ago of this exact thing. I am only 51 and I am terrified.

annemarie77
Posts: 17
Joined: Feb 2010

I wish I could give you good news, but I am a new diagnosis also, although I do know how you feel, sometimes I am afraid and depressed, and other times I feel like I'm going to kick the big c's as*, I cry a lot when I am alone, I have good supportive people around me but they do not want to hear about the possibility of my dying, they seem to avoid that subject. You have more strength than I have, I have not even been able to ask the dr. his opinion of how much time I have left yet, I am afraid of the answer. Have had one chemo treatment so far and came through it extremely well, am going for another one tomorrow. Keep your hopes up, say you are going to fight this, if you believe in prayer, then pray, it really does seem to help. Keep searching this site, there are many kind people who have been through what you are going to go through and apparrently come out on the other side of it, they offer hope and support, along with info on many things. I wish you well and will also say a prayer for you while I am saying one for myself. We seem to be pretty much in the same boat right now. Keep fighting, the dr.s have been proven to be wrong many times.

mama1958
Posts: 5
Joined: Feb 2010

I did not ask him about the time - he just spit it out. My heart felt like some one ripped it out. I work in the health care field and happen to work with my Oncologists wife. I am going in on Thursday to see if I can take the new pill that is out for lung ca. Only certain stains from the biopsy I had could be a match. What chemo have you had and did it make you sick? I will pray for you and me. I have a good support system too, but sometimes I think they think it is a dream like I do. It is nice to talk to some one going thru the same. What state are you in? Julie

ygfilart's picture
ygfilart
Posts: 11
Joined: Feb 2010

Cryotherapy in China has become very popular in my country. I went there Jan 26 this year for treatment of my tongue cancer because my docs said there is no other option but to cut off my tongue. When i heard about this hospital, i immediately flew there. The treatments done to me were painless except for the 3-day chemo i underwent. For now, my tongue is safe and i am recovering. I can eat and talk better. Plus, i don't have to suffer the consequence of chemo and radiation. I will return to china after three weeks for local chemo. No harm for you to do some research.

annemarie77
Posts: 17
Joined: Feb 2010

I know it takes awhile for reality to sink in, but even so, I still go through denial sometimes, it just doesn't seem real. I am taking avastin, taxol/carbo, I just had chemo done again today (2nd time), I feel fine after chemo, no side effects whatsoever (so far anyway) They also give me benadryl before starting chemo so I do sleep alot then, but I really need the sleep since I'm not generally sleeping well most nights, I have a good appetite and go into work the next day. What pill are you going to take? Is it a new one? Does working in the health care field help you understand anything better? My dr. would not even tell my husband how much time when he asked him, he said I had to be the one to ask, and as I said, I didn't have the nerve. I am in my 50's also, and there is still a lot of living left to do, so we will BOTH stick this out, and continue to hope and pray for a good outcome. I live in NJ. Good luck on Thursday!

mama1958
Posts: 5
Joined: Feb 2010

I am putting the time frame he said out of my mind. There is only 1 person that knows for sure. I have heard of alot of people living for years. That is going to be us!!!!! I am so glad you have had minimal side effects from chemo. I am taking megace for appetite because I had been losing weight. This stuff really works. I eat everything in site. Keep me posted, as I said it feels good to talk to someone that understands. Julie

annemarie77
Posts: 17
Joined: Feb 2010

Hello again, yes it is good to talk to someone who is going through the same thing, especially since we were diagnosed so close together. I guess it makes it easier to compare notes and all of the different emotions running through us. Has not really been a good day, first day I missed work because of it (back hurting) and I think that really depressed me. Have you been offered anyother treatment besides chemo? I am thinking of going for a 2nd opinion, I might want to try a clinical trial (if I can find one I can get into), the place where I go offers no clinical trials. It is just something I wish to look into. What state do you live in? Do you have any children? I have 3, one living at home, he's 21 and he has been absolutely great, they all know I have cancer but I haven't told them everything (how serious it is). Don't know how, when or if I should tell them everything. Yes, if you read this site there are alot of people who have lived for years after being told they only had a limited time, I hope and pray you and I are both two of those people. As I said, I will keep you in my prayers - Anne

mama1958
Posts: 5
Joined: Feb 2010

HI, Anne,

Went to the doc today and will start the same chemo you did next week. I am in a trial for a nausea med. Thats different. I am so glad you have had no side effects - hope the same for me. I am on Megace for my appetite and have gained 6 pounds this week. I am also on Percocet for my back and neck pain. I live in Minnesota and I have 3 adult children - I have twin daughters that are 25 and 1 son who is 23. I also have a grandson ( has captured all of my heart) who is 3. I am divorced, but have alot of friends and family to help. I have my 2nd opinion at the Mayo clinic here next week. Keep the faith - I also have breakdowns and depression from time to time - it's natural.

marijune
Posts: 45
Joined: Jan 2010

mama58, I am glad to hear you are going for a second opinion at mayo. You dont mention where or what kind of c you have, but I pray you will get a much better amswer from mayo.
Many people on board will be praying for you to get good news.
God Bless

annemarie77
Posts: 17
Joined: Feb 2010

I am also glad you are going for a 2nd opinion, hope it goes well. I also hope your chemo goes well too. Apparently it isn't as bad as it used to be, they seem able to control a lot of the side effects better now. I am now on Percocet for my back pain too, was really getting bad, could hardly walk sometimes, but new meds are working a lot better for the pain, was sent for another spinal x ray, was afraid they would find the tumors on spine had grown but turned out it is degenerative arthritis, never thought I would be glad to hear my arthritis is getting worse, but I sure was. Has not been a good week for my family, husband's heart dr said he should seriously consider having a defibulator implanted in his chest, and my daughter was in a car accident last night, spent hours at the emergency room, thank God she (or the person in the other car) were not seriously hurt, but her truck is totaled. spent last night taking care of her, talked her into spending the night with us. Which was actually comforting for me knowing she was here where I could see her and took my mind off myself. Continuing to pray for us both, we are all in his hands.

mama1958
Posts: 5
Joined: Feb 2010

For the last 4 days I have s.o.b from time to time. I have not started chemo yet and it is bothering me. My cancer has lymph node involment, does any one else have this symtom, if so what did you do??

dculver67's picture
dculver67
Posts: 1
Joined: Dec 2009

I was diagnosed with stage 4 just 2 days after thanksgiving,I have nsc in both my lungs,all my lymph nodes and I now have 7 lesions on my liver,I am 42,since being diagnosed I too am more short of breath,but the chemo I have been on that is also a side effect,I started out on Cisplatin and Alitma,done only 2 treatments and was sent for an emergency petscan becuase of severe headaches,only to find out that everything grew and ended up with 4 more lesions on my liver,The oncologist scraped that plan and I am now on Avastin,Taxol and Paraplatin,doing good I might add, I didn't have the nausea and also not as weak and tired as with the first round.I am still short of breath, but I learned NOT to push myself when doing things, I now take my time in everything I do and it helps,I am so bad with breathing I can't even wipe down my stove top! and to put on my socks is even hard,but I get through it-just learn to listen to your body as I have learned to do.

The dr said he is trying to keep me comfortable for another 6 mos to yr,some days I feel like giving up especially when the tumors are so swollen I can'e even sit or lie down or they cause me to become so light headed I almost pass out due to them pressing on the artery in my neck, but I don't plan on going anyplace that soon!

I am fighting every morning I open my eyes. The family made plans for June to go to Smoky Mountians for a week and I also plan on doing the bike riding and trails,it's going to take more than this disease to keep me down,and I will have to pace myself to be able to do it-but I WILL !

medi_2's picture
medi_2
Posts: 507
Joined: Aug 2009

You go Girl! (giving you a thumbs-up ;))
Medi

abfaul6
Posts: 9
Joined: Mar 2010

mama58 -
My husband was told in July 08 that he had 4 mos to a year. It is now soon to be two years. He had the chemo regimen that seems to be followed by many. He also did well with hardly any nausea, he took megace and is on anti depressant. We will have our 54th wedding anniversary in April and he plans to be there.
Try not to transfer what happened to your dad to yourself. My husband's brother died within 4 months of diagnosis of his cancer, and his first response was that he was going to follow the same path. The doctor explained that everyone is different. You will cut your own path. I have a friend who also has NSC and she is about 6 mos. ahead of my husband and following the macrobiotic diet which is helping control things for her. It is not an easy diet but it seems to work for her.
Regarding your shortness of breath, get your 02 sats checked by someone who has a meter thingy.
I wish you all the best.
Ann

joie715
Posts: 1
Joined: Dec 2009

Hi all - my husband was diagnosed just before Christmas with stage IV NSCLC. When the diagnosis was confirmed, we immediately made plans for a 2nd opinion in Seattle at the Seattle Cancer Care Alliance. We are so grateful we did. Although there is no cure for him at this point (non-smoker, soon to be 50, and it's throughout his body), because of a certain mutation, he qualified for a "new" treatment called Tarceva instead of traditional chemo. It's a pill taken daily (or however your body allows) and it is proven to extend the life of the patient...best part is, it has less radical side effects than chemo! I would highly recommend you ask your oncologist about it. If he/she doesn't recommend it or what to test you for the mutation, find someone else.

In addition, there are survivors of people at this stage, so please do not give up hope.

All my best,

Dara

tropicgirl2780's picture
tropicgirl2780
Posts: 9
Joined: Dec 2009

I was diagnosed with Stage IIIB which they later upgraded to stage 4 on Nov. 5th of 2009. I had noticed the lymph node involvment in my neck back in April of '09. I started chemo with carboplatin, avastin and pemetrexed on Dec. 22. After 2 treatments the tumor in my lung was gone and lymph nodes shrank 80%. Now after completing 12 weeks of that regimen there is no detectable trace of a tumor anywhere, not even a mark and all my lymph nodes measure 9mm or less - down from almost 4 cm a piece. They said today that according to the scans the cancer is not showing up at this time and I am to continue with a maintenance dose every 21 days of the avastin. My dr's are in shock and have no idea how or why I am doing so well. I can honestly say it's been great friends, my children, and my attitude regarding the cancer. I have abso9lutely refused to allow it to run my life. I run my life and I viewed it as a mere road bump inthe way of me doing what I want to be doing. SO yes i went to treatment but I didn't dwell on it every day and i decided that crying is the way wrong way to go because you miss out on so much when you are sad and in bed. You are alive at this very moment and no matter what the hell the dr says you can have an influence on your prognosis. If you choose to believe everything that will become reality. I challenge everyone to create their own reality and live each day full and with hope. It is hard sometimes I know because it is such a scary cancer and so aggressive BUT you are stronger and youhave to wage a war inside yourself to prove a point. Good luck to everyone in their battles and just have faith you can be happy and healthy!

donsherr629
Posts: 1
Joined: Mar 2010

I am new here, but reading some posts am encouraged for my husband who has sclc with liver mets and lymph node involvement. His doc has given him a year to 18 months. He's on carboplatin and etoposide, has had one round so far with little change. He coughs a lot and is tired all the time. I pray he gets better and that we have more time together. He's very positive, and that's good. I hope to get some encouragement here!

TPring
Posts: 3
Joined: Feb 2011

Hello tropicgirl2780,
I pray and hope you are well, still happy and healthy. I wanted to know what your diet was like when you where going through chemo tx. I want to try to give the best fight along with my dad as I can. Any other advice would be appreciated.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Just a heads-up that this thread is a year old, and you would probably get better results by starting a new one :-)

rlotempio2
Posts: 6
Joined: Jun 2010

Hearing your story gave me hope that my grandmother will have a chance as well. She is stage IV and a bit spread to her liver. It was all overlooked by the doctors for months. They said she had a staff infection for months as she kept feeling worse and worse. Finally she was brought into Roswell Cancer Institute and they found cancer in the fourth stage to our shock. What is this macrobiotic diet that your husband is on? My grandma will be getting chemo for the first time on July 1st. I wish you and your husband the very best of luck

Rachael

lindaslittlesis
Posts: 1
Joined: Mar 2010

annemarie77, get the treatment whatever they offer. My sister has stage IV lung cancer as well and has no insurance. We have not been able to get any hospital to agree to treatments and she also is not ready to give up. Lost her job of 30 years in 2008 and has no income until June 2010 when she can get early SS. We have applied for help and was told 45-60 days. You know everyday she waits is one day too long. God bless you and Fight!

Blueeyes68
Posts: 2
Joined: Apr 2010

I am so sorry to hear about your sister. I have lung cancer also. I started my treatment at the University Of Cincinnati Hospital. If I were you I would try them. I know it may be a ways from your house but they migh be able to help you because they are a teaching hospital and they do alot of cancer research there. I hope you find your sister help soon.

Sydneynnm
Posts: 5
Joined: May 2010

Hi Annemarie77. Sorry to hear about your sister. In November 2009, I found out I had cancer of the brain, liver and left lower lung about the size of a small lime [Stage 4] It is sad that we live in a money hungry country. I, like your siser, do not have any health insurance. I was told by the original medical providers I qualified for Medicaid or Medigap. That was a BIG LIE. I have thousands of dollars in hospital expenses as well as radiation treatments on the brain. Since I do not have insurance, I can not get medical care either. Have you contacted the American Cancer Society 800 227 2345 and or Cancer Care 800 638 0742. I am in New Mexico and they have given me some information which I will followup on. You might also want to contact Patient Advocate 800 532 5274 who may be able to give you some information for assistance in your state. Their website is patientadvocate.org.

I refused to do only Western Medicine. DO NOT TRUST THEM!!!! I also go to a Doctor of Orient Medicine. Understand I AM NOT A DOCTOR; however, I did medical transcription for several years. I am familiar withmedical terms and pharmaceuticals. If the cancer has not gotten into her blood stream, chemo is not going to help her much. As I said, I also see a DOM. I mix a product called "Greens First", Ecological Formulas Tri-Salts and a liquid Aloe with water at least once a day and most days twice a day. The "Greens First" info is: www.DoctorsforNutrition.com in Boca Raton, FL; phone number 866 410 1818. The information for Ecological Fomulas Tri-Salts is Concord, CA 94518; 925 827 2407. Like most of America, most of us eat too many foods which contains high levels of acid which feeds cancer. By decreasing acid intake, it may slow the cancer. That is what the Tri-Salts is for. The third product I mix with the first two is a liquid Aloe with a bunch of other things like kelp, etc in it. I also take severeal homeopathics such as Coenzyme compositum, Cerebrum compositum, Traumeel, and Lymphomyosot from a company in Albuquerque NM; website is www.heelusa.com; toll free number 800 920 9203. These products have really helped me. Also, I am part Cherokee who believes strongly in my ancerstory heritage. If you have a health food store close,see if you can get a product call Ojibwa Tea. They also make an herbal extract and believe it of not is a product the American Cancer Society supports. It is made by NOW. They are located in Bloomingdale, IL; website: www.nowfoods.com. Ojibwa's are a distant relative of the Cherokee. They are in southern Canada and this formula has been around over 100 years.

If you need to contact me, my email is walkswwolvesnnm@gmail.com

Syd

legendsdaughter
Posts: 30
Joined: Dec 2009

My dad was diagnosed in November w/stage IV nsclc, in both lungs, lymph nodes & 1 adrenal gland. He has had 3 chemo treatments & his marker went from 229 to 185, but unfortunately he had a PET scan on Monday & it showed that he now has a mass next to his spine & the adrenal mass got larger. His doctor quickly said the chemo is not working & he needs radiation. He had a ct scan of his spine & an emegency mri of his thoracic & lumbar spine. She fears that it might be in the spinal cord which would be a medical emergency.
He is in a lot of pain!! He takes oxycontin & oxycodone, but he needs to take sooo many for relief. For him surgery isn't an option either, due to the spread. He will probably have about 10 radiation treatmnets at 10 mins each. We're not sure yet when he will start up the chemo again.

tach1
Posts: 2
Joined: Apr 2010

my husband whos only 53 has almost same type CA.( oxycodone which is same as oxycotin and its for breakout pain,) radiation helped the pain last month, but he's still losing weight. It cut the pain in half.. Just starting on chemo, having trouble keeping the blood counts right. let me know what other treatments they do. My husbands back is fractured and broken from the CA too. I just want him pain free. I hope the chemo works. hope all gets better. no surgery here either. i havent heard @ markers I'll have to ask our oncologist. good luck.

mmt366
Posts: 33
Joined: Apr 2010

Hi Annemarie77, my wife was diagnosed Sept 09 w/ stage4 non small cell lung cancer, we soon learned it had spread to the brain and lymph nodes in chest. Chemo was put on hold while radiation to brain was done. happy to report the brain tumors have decreased and they have been applying chemo..alimpta and carbo platen since October 09. After 6 treatments her lung tumor and lymphnodes have shrunk but the primary is still considered too large to remove, in fact they do not feel that radiaition is a viable option either...too many severe side effects will affect quality of life. She has been tested and approved for a clinical trial at Boston Mass General Hospital, the treatment is ALK inhibitor. This will be a second line of treatment should the chemo stop helping. Initially we were told my wife had 10 months to a year, although she is tired, she works 4 hours per day and is still the life of the party. We have made reservations to stay a week in Aruba next month (may) and we live each and every day to the fullest. We feel this way because we lost our daughter to Multiple Myeloma in August 09, two weeks before my wife was diagnosed. Our daughter was diagnosed just 10 months earlier, sadly our beautiful daughter was too sick and in so much pain her last months, they were spent in hospitals and/or home in bed. Advice - Live your Life and fight like hell! - mmt366

mmt366
Posts: 33
Joined: Apr 2010

Hi Annemarie77, my wife was diagnosed Sept 09 w/ stage4 non small cell lung cancer, we soon learned it had spread to the brain and lymph nodes in chest. Chemo was put on hold while radiation to brain was done. happy to report the brain tumors have decreased and they have been applying chemo..alimpta and carbo platen since October 09. After 6 treatments her lung tumor and lymphnodes have shrunk but the primary is still considered too large to remove, in fact they do not feel that radiaition is a viable option either...too many severe side effects will affect quality of life. She has been tested and approved for a clinical trial at Boston Mass General Hospital, the treatment is ALK inhibitor. This will be a second line of treatment should the chemo stop helping. Initially we were told my wife had 10 months to a year, although she is tired, she works 4 hours per day and is still the life of the party. We have made reservations to stay a week in Aruba next month (may) and we live each and every day to the fullest. We feel this way because we lost our daughter to Multiple Myeloma in August 09, two weeks before my wife was diagnosed. Our daughter was diagnosed just 10 months earlier, sadly our beautiful daughter was too sick and in so much pain her last months, they were spent in hospitals and/or home in bed. Advice - Live your Life and fight like hell! - mmt366

annemarie77
Posts: 17
Joined: Feb 2010

I am back, I hope to stay for awhile too. I don't know what happened, I think it was connecting with someone on this site that was basically the same as me, age-wise, cancer wise, both feeling the same emotions and eveything else that goes along with the diagnosis of stage IV lung cancer, and then she just disappeared, I can only pray she is doing well, I feel like I lost a friend and went into an emotional turmoil, mostly of self-pity and severe depression. I felt all was hopeless (I'm sad to say I felt so depressed and hopeless that I even started smoking again, I didn't think it mattered at that point), I just felt doomed. Well, I am finally fighting and clawing my way back up out of the pits again, and everyone on this site has helped, even though I couldn't write on the site I never stopped reading the discussion boards. Have been through 10 rounds of chemo with two more to go and then another CT scan, am more afraid of the results of this than anything I've been through in a long time. I am sorry to ramble on, but I need to talk to someone, I do have people around me who love me, but they really can't talk about this with me, they are always trying to cheer me up when sometimes I just need to cry. (Of course, when I am around other people I always put a smile on my face, so they probably don't know what I need, I don't make it easy for anybody.) I do know that the most important thing I was missing at that point was hope, and I didn't have any left. Thanks for helping me get it back.

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Your emotional downturn is understandable for any number of reasons and your renewed focus on survival is a cause for happiness!

It is rather typical to put on our best faces for loved ones and, as you point out, this often leaves us with no one to talk to candidly and with raw emotion about our feelings and fears. This joint is good for correcting that, at least to some degree.

Hope and Humor!

Take care,

Joe

58carol
Posts: 17
Joined: Apr 2010

i am knew to this sight And I am glad that I did come across it. i am sclc and have an appointment tomarrow because of the new found cancer in my brain. As I scaned the sight I have run accross your replies. I just wanted to let you know just reading your post to others lifts my spirits. Just knowing that there are people out there who take the time to talk to others who are affraid and need someone. You and others are really great. Take care joy

cprete26
Posts: 2
Joined: May 2010

mmt336,
My dad was just diagnosed with what your wife was diagnosed with on April 7, 2010. He just finished radiation on his brain and we are waiting to meet with the the dr for the next step. I noticed that you mention Boston Mass General was where your wife is doing a clinical trial. We live in RI and have just started with an RI oncologist. We are planning to get a second opinion at Dana Farber, hopefully in the next couple of weeks. Do you have any suggestions about doctors in the Boston area or about any trials we should look into? Thanks for your help and I hope your wife is doing well.

augigi
Posts: 89
Joined: Dec 2009

mmt366add - I just wanted to say how sorry I am for the loss of your daughter, and now your wife's diagnosis. I can't even imagine how devastating that has been for you all. I hope you and your wife have the best outcome possible.

Rhonda13
Posts: 3
Joined: Apr 2010

Dear Anne Marie,
My husband was diagnosed with small cell lung cancer March 3, 2010. We are devastated. He has just finished his second course of chemo, and actually feels better since the initial diagnosis. His cancer has metasisized to the liver and lymph nodes. We are so devastated that we did not want to know how long he has. We are trying to enjoy everyday together. We have 2 children at home, ages 18 and 13. Trying to plan for 18 year olds graduation and trying to figure out how to enjoy it. Hang in there, and keep fighting. If anyone out there has small cell lung cancer and has POSITIVE responses I would love to hear them.

annemarie77
Posts: 17
Joined: Feb 2010

Rhonda13 - I have gone through 11 rounds of chemo, having my last one this Monday, I have not heard any results yet, am going for another pt scan the following week, and then back to Dr the week after for the results, am praying for some good news for a change. I also have liver and lymph node involvement, plus my spine. Hope he continues to do well with chemo, sorry to say it usually gets harder with each treatment. When I started I felt good enough to go out and dance after my treatment, felt wonderful, was warned that it wouldn't always be that way, I've finally had to cut my work down to three days a week, (of course I am on my feet constantly for eight hours a day on a hard floor and constantly moving, so I guess that doesn't help). Also have bone pain and muscle pain in my hips and legs, but the worse thing is the utter and debilitating tiredness that goes along with it, but, it is deffinitely all worth it if you get good news, and I will take any shot I can at becoming a "long term survivor", life is worth it. I think a positive outlook and most importantly never giving up hope, is one of the best medicines there is. Enjoy each day and your wonderful family, depression is also a part of this disease, the best medicine for that you will probably find on this site, many, many wonderful and caring people here who will try and help. I hope to give you positive and encouraging words soon. Congratulations on your sons graduation, my last child graduated 3 years ago and it truly is a moment to be proud of. Keep the faith and don't let the party wear you or your husband out, just enjoy the day!

Rhonda13
Posts: 3
Joined: Apr 2010

Anne Marie,
My husband was diagnosed with stage 4 lung cancer March 3, 2010. He is currently taking chemo treatments. He is doing well. Emotionally, not as well. This is so overwhelming for our family. We have two children at home, 18 (Graduating from high school this year), and a 13 year old. I am stressed out, pissed off at this cancer! I thank god every day my husband wakes up and starts another day. You hang in there, and we can talk to one another. I'm at work, I work night shift at a hospital. Take care, and I will pray for you too.

BryanC_
Posts: 9
Joined: Apr 2010

Rhonda13, I am glad your husbands treatments are going well. I was diagnosed with stage 4 in Nov of 2007 and have been through a lot of the treatments available. The cancer has been stable since Oct of 2009. I have two children 17 and 22. I lost my wife to cancer so my attitude is so positive I refuse to let this cancer win, I am going to fight with everything I have have for my children. So tell you husband to stay strong. I know we all have our down days but I believe the brain has so much to do with healing, more than we know. My daughter is going to Ohio State to work on her masters in health on that subject. She is so driven to fight this disease with the loss of her Mother. Both of you stay strong, it really helps!!

58carol
Posts: 17
Joined: Apr 2010

I am 51 and have 2 young children . they will be 8 in August. Also raising two grandchildren 6 and 9. I can't leave them or my husband. I two refuse to let this cancer win. SOOOO Ronda 13 and BryanC. Needless to say with my treatments and the children I do not have much time to log in, Please keep me posted as to how you are doing or let me know if i can help in some way. What kind of cancer do you have?

58carol
Posts: 17
Joined: Apr 2010

sorry double post

rlotempio2
Posts: 6
Joined: Jun 2010

Your story gave me hope for my grandmother (who is the one who actually raised me so she is truly my mother). She is 73 and just diagnosed with stage IV lung cancer that spread a bit to her liver but not to the brain. I thought Stage IV was a death sentence. I am more scared than she is. I told her she must fight this with everything shes got. Thank you for telling your story.

annemarie77
Posts: 17
Joined: Feb 2010

Rhonda13 - After 12 weekly rounds of chemo, I have finally been told some results, all tumors have shrunk minimally, especially on the liver. Was hoping for more shrinkage, but it certainly beats getting larger or even staying the same. Had to change chemo, am now doubling up on the carpoblatin, had to change my taxol to taxiteria,(getting numbness in fingers and toes) and had to stop the avastin (my blood pressure was getting extremely high) but the good news is I only have to get it every 3 weeks instead of weekly. (forgive the spelling of the drug names). Depression is another side effect of the cancer, I have had 5 months to deal with my diagnosis, and I still get very depressed, but I will keep on fighting for as long as I can. Emotions can change from hour to hour everyday, just enjoy life as much as possible and keep praying and depending on your family and friends. I never knew how many people cared about me until this started, now I enjoy each and everyone of them, (and my dog)!! Good luck and I will pray for your husband as I am praying for myself.

Sydneynnm
Posts: 5
Joined: May 2010

RHONDA 13:

Ask your oncologist to get you on Tarceva. It is very expensive; however, I was able to get it from the pharmaceutical company through the Patient Assist Foundation. Chemo is NOT going to help you that much and if you believe what the doctors are telling you, then you will not make it. I found out in November 2009 that I have Stage 4 Lung cancer, brain cancer and liver cancer. I began,successfully the Tarceva. I refused to let them do chemo on me. I did do radiation of the brain with 100% success rate. The Tarceva tablets that I take daily is 150 mg. I have chosen a combination of Western Medicine as well as alternative treatments. I can tell you that attitude plays a BIG part in your health.

bigsexie915
Posts: 1
Joined: Feb 2011

6 years ago I was diagnosed with Stage 3B Non Small Cell Lung Cancer. I put on an experimental Chemo called Herbatox.(not sure of the spelling). It was orignally used for people with rectal cancer. They discovered that for some reason when used along with radiation it worked for people who had lung cancer. The side effects were very bad pimpling(large white heads)of the skin, mostly the face. The worse the pimpling the better the drug worked. Well it worked for me. Ask your doctor about it.

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