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Stopping herceptin early

blondie45
Posts: 10
Joined: Feb 2010

Has anyone else had to stop herceptin earlier than the 1 year that is recommended? If you had to stop did you have to stop for good or did you get more treatments later on?

tommaseena's picture
tommaseena
Posts: 1771
Joined: Feb 2009

Is there a reason why you would stop it early? Did your doctor recommend it?
I know when my ejection fraction of my heart went a little lower than the norm the cardiologist said if it goes a little below the norm then maybe a vacation/break from the Herceptin for a period of time or if it went real low then it would have to be stopped. My ejection fraction is better now then it was before chemo and Herceptin treatments.

My oncologist said that any amount of time being on Herceptin is better.

Hope this helps.
Margo

blondie45
Posts: 10
Joined: Feb 2010

tommaseena - sorry I should have explained. On my last echo my ejection fraction dropped to 25% to 30% and they were not sure on the echo if there was blockage. I had a heart scan and treadmill test. They still are not sure so I am having a heart cath on Monday. The cardio doc said if we can get fixed during the heart cath what is going on and get on meds to get my ejection fraction back to where it should be, I may be able to go back on herceptin. I do feel good that I got as many herceptin treatments as I did. I believe I actually got 17 and I think I have read that the standard in Canada is 16 and the standard in Europe is 18 so that made me feel better.

VickiSam's picture
VickiSam
Posts: 8271
Joined: Aug 2009

ECHO, due to a skip in my heart beat .. I am in the same boat .. Started Herceptin on 9/8/09 .. I've only had 10 herceptin treatments .. thusfar .. SCARY.

I hope we get additional information ... before I start freakin out.

VickiSam

blondie45
Posts: 10
Joined: Feb 2010

VickiSam - I hope that everything turns out on your new echo and that everything is fine. I have to go tomorrow morning for the heart cath to figure out what is going on, I am getting VERY nervous to say the least.

blondie45
Posts: 10
Joined: Feb 2010

VickiSam - Just wondering how it is going? Have they still stopped the herceptin? I think you wrote they did that about 2 weeks ago.

custom
Posts: 7
Joined: Mar 2010

I to am on Herceptin. I had 6 tx early in my tx with carboplatin and taxotere. This was stopped and adriamycin and cytoxan given. Then restarted on Herceptin with taxol for 10 tx. then mastectomy and 33 tx of radiation. Im back on Herceptin. Need a total of 52 tx. I am starting to feel my heart beating hard and fast at time, and skipping beats. Especially at night. I see my Dr. Thursday. Muga scan was good in November. My tumor was 5cm before treatment,and 3cm at surgery. Do they think irregular heart beat is from Herceptin?

blondie45
Posts: 10
Joined: Feb 2010

I am not sure about the herceptin causing the irregular heart beat. I did not notice this at all and my ejection fraction went down to 25% to 30% after being above 50%. I would definitely tell your doctor though.

3838
Posts: 1
Joined: Apr 2010

I'm starting to get nervous about my heart, too. I've finished about half of the year of herceptin treatments. My MUGA only went down from 63 to 59 at my last check, but I'm starting to get fatigued easily and out of breath with just slight exertion (such as walking the kids to school, doing 5-10 minutes of bending/reaching/moving for household chores) and I just noticed today that after doing a short run on the Wii Fit, my pulse was irregular and skipping some beats. I'm thin and pretty fit for my age (39) and never had these problems before. I'm wondering if it is the herceptin as well, even though my ejection fraction seems fine.

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Haven't seen you posting much VickSam. Praying that you are doing well.

Hugs, Megan

brenda247's picture
brenda247
Posts: 124
Joined: Apr 2009

I HAVE BEEN ON HERCEPTIN FOR 51 WEEKS GOT ONE TO GO WELL I HOPE THAT IS.. LOL.. I HAVE HAD NO PROBLEMS AND WAS NEVER TAKEN OFF.. ASK YOUR DOCTOR HE OR SHE COULD ANSWER THAT IM SURE..

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