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Update on reoccurrence of UPSC

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

I haven't posted in a long time, but wanted to let everyone know that for now I am NED. I hesitate to get to excited as it seems my Dr. thinks it will show itself again. Just as a reminder of my story I had it first in 2006 and it returned in early 09 in my lungs. I got the same round of Taxol/carbolatium that I got in 06 and it cleared my lungs of cancer but in late October 09 they discovered brain lesions, so I had whole brain radiation. I have had and MRI and CT scan and everything is okay for now.

I am drinking green tea and using tumeric although I just read from Claudia's post it needs to be heated. I hate the taste of it. I do mix it with black pepper and olive oil and usually put it with some salad. I started out every day but now I notice that I am not liking so much so I skip. Not good I guess. I met a lady at the infusion center that was getting mistletoe shots, she gives them to herself, but a doctor prescribes them. Does anyone know about this?

Good luck to everyone in fighting this horrible disease.

Frances

Northwoodsgirl
Posts: 201
Joined: Oct 2009

Frances, You inspire me! You have been through so much physically and emotionally. I was declared NED just 2 weeks ago after completing chemo on Dec. 30th. I think most of us cancer survivors live with the awareness that cancer can and sadly often does come back again. I admire your courage and fortitude in pushing through it all.

I have a one year old neice who is fighting medullablastoma (brain cancer) at St. Jude's Research Hospital. She has had two brain surgeries, is undergoing chemo and will have brain radiation----she is a trooper also.

Tumeric? I will need to google it as I don't know anything about it or mistletoe shots. If I find something I will post it. Thank you for sharing your good news about NED.
You are in my prayers.
Lori

Ro10's picture
Ro10
Posts: 1473
Joined: Jan 2009

Having NED is wonderful. You have been through so much. I hope you get a rest from treatments for a very long time. Continue the fight. In peace and caring.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Fran, how wonderful it was to see a post from you and such a good report! You have certainly had some huge bumps in the road, but so great to hear you are NED!!! May you remain that way forever!!!

Big hugs to you!!!

Karen

shortmarge
Posts: 296
Joined: Nov 2008

It's sooooo good to hear from you and that you are NED! As Karen said, "May you remain that way forever"!

MIND, BODY AND SOUL!

Hugs, Marge

deanna14
Posts: 734
Joined: Oct 2008

So happy to hear of your latest scan results! I too find you to be a great inspiration, you are so strong! Don't listen to those silly doctors, there is only one Physician who really knows!! You are a fighter!!
May I ask how they originally found the brain mets? I have a friend who is currently undergoing radiation for a brain tumor. I don't think his was whole brain radiation, but I'm not sure.
I pray that you will continue to remain NED!

Dance on...

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

I had several brain lesions so necessary to the WBRT. I wish your friend the best in his treatment. You are right there is only one Great Physician and I petition him daily for good results. Whatever the answer is will be the right one.

Take care

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

Hi! Fran, I am so glad you are NED! Hoping it continues!!! Norma

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

Fran you are such an inspiration. When is the grandbaby due?
Love and hugs,
Diane

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