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Atypical Carcinoid Tumor



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JR101
Posts: 2
Joined: Jan 2010
January 23, 2010 - 8:37pm

My husband had a large Tumor removed from his right lung. The doctor removed the center lobe and part of the lower lobe. After all testing was complete they determined it had not spread to lymph nodes. It was an atypical carcinoid tumor and he was told chemo was advised but there was no data to support the chemo would have any impact on this type of cancer. He was feeling better after the surgery but developed a hiatal hernia and now has problems eating without feeling pain in the center of his chest above the stomach.

Has anyone had any experience with kind of tumor?

beachinmom's picture
beachinmom
Posts: 77
Joined: May 2008
January 26, 2010 - 1:41pm

I researced this place when i thought i had a neuroendocrine tumor---they are very specialized and handle carcinoid and neuroendocrine tumors.

http://www.ochsner.org/programs/neuroendocrine_tumor_program/

I was just passing thru this board looking for info for a friend. I am normally on the colon cancer board...good luck to you.

unwindn2@aol.com
Posts: 2
Joined: Feb 2010
February 7, 2010 - 7:16pm

I have a large carcinoid (atypical) in the hilar or upper left lobe of my left lung. I have opinions from UT Cancer Specialist and Huntsman Cancer Institute and both said carcinoid cancer isn't treatable with chemo. I am scheduled for surgery 2/26. The surgeon is hopping to take just the lobe but isn't to optimistic. Any information you have re:recovery I would apprciate. The drs did say I may need radiation later as it is in the mediastinum. I would get other opinions before I submitted to chemo.