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Grade 4 glioblastoma multiform

Posts: 9
Joined: Jan 2010

My husband was diagnosed with a grade 4 glioblastoma multiform on his brainstem. We were told that it is inoperable. We are on dexamethasone, one week into a 6 week radiation program, and taking temodar. I need some help. Is it inoperable? Does anyone know anywhere that operates on them. We have been told that there is a less than 4% survival 1 year after diagnosis. We want to fight this. Any suggestions.

NCAA XC's picture
Posts: 25
Joined: Nov 2009

Or any of the top 10 from the US News and World Report rankings..
At first in an emergency situation, I took my wife to our nearby hospital..they got 20 of the tumor out and said "hey any of the oncologist will do the same so....stick around"
We headed south..
They got it all out at MD Anderson and gave us hope if nothing else....
We called this lady while my wife lay in the hospital back home on a Tuesday..and she wanted us in the office at MD Anderson on that Friday!!!!
Our local doc did help with the referral, but you can refer yourself or call


I'll bet any of the top hospitals would do the same as well.

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