My husband,(Pearlspapa)has had numerous issues from the radiation. We are currrently back in the hospital for the third time since we stopped the treatments.
We started Chemo/rad on November 3rd. Diagnosed on Sept. 21st after surgury to remove a lump on the left side of his neck Sept 18th. They removed his tonsils and did 5 biopsys, but did not find a primary. I still feel his throat had not healed sufficiently when we started the treatments....but what do I know?
We ended up in the hospital Dec. 21st, as he was horribly sick, weakened & dehydrated from throwing up. They sent us home Christmas Eve and held off his final three treatments to Dec 28-30th. He was feeling great Monday morning (12/28) We laid in bed and talked, giggled and snuggled. Life was almost normal. Monday evening he went downhill a bit. Tuesday; a bit more. Weds we walked around and said our good-byes, thank yous and most importantly; God Bless you's to so many kind souls who had helped us. We went home and things went downill from there.
By Thursday, Dec 31st ,we were headed back into the hospital. Mike was there for (12) days. They moved him from a 50 to a 75 Fentanyl patch (which I didn't know)to off-set Mucusistis (sp?), an IV with Saline/potassium and a continuous feed as he couldn't keep the bolus feeds down. Tuesday 1/12, a new Dr with very little background on him, decided he could be sick at home as well as here.
We went home @ 2pm. He slept the rest of day away. Early morning he started vomiting. We struggled thru the day, I tried giving him 2oz of formula with 2oz of water every hour. He
couldn't keep it down and would violently bring it up. I could not keep him hydrated.
By 7 PM Weds eve we were back in the ER. Today is Sat. They removed the patch on Thursday, depending on Ativan for pain and to settle his stomach. His throat pain is worse now, but that is better than the constant nausea. His throat could not start to heal with all the stomach acid and bile constantly forced thru it. They also gave him an enema (not much privacy with the big C), and with the patch gone and that, his stomach seems to be settling. We hope we have finally started down a true path to recovery.
I haven't found a lot of discussion on something like this. Any input?
We hope to go home tomorrow. I think my collie Tully and mutt Pearl will bite me if I smell like him, but don't bring him home soon : )
Thanks to all who have shared their stories. I read them to Mike so he doesn't feel so alone. God Speed in recovery to all.
A special prayer to the people of Haiti. What if we lived there?