Jan 14, 2010 - 9:19 pm
I was diagnosed with myelofibrosis in the spring of 09. I have previously had non-hodgkins lymphoma twice. Once it was low grade and the remission lasted 9 years. I then was diagnosed with non-hodgkins, but it was both low and high grade at the same time. After many rounds of chemo, radiation, and a stem-cell transplant I was fine for about 8 years. That is when I was diagnosed with the myelofibrosis. They have tried just about everything with no success. Revlimid (sp?) was the last. It has gotten to the point where I have to go in approximately every 4-5 days to get two pints of blood and two pints of platelets and neupogen shots. However, now it has gotten to where I am experiencing symptoms within two days. Has anyone experienced this before?