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Surgery tomorrow!

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Met with the tumor board today and everybody was very excited about my chances. The Drs were all saying if the tumors are encapsulated and if there is a clear margin, I may not need rads/chemo - that's how confident they are, and these guys do not sugar anything.

My wife and my brother went with me and that was great because I tend to get a bit forgetful with the overwhelm of info.

I'll be back online by Sunday I think and will let you know. The final pathology will be Wednesday next week and that will determine the path of treatment.

Thanks for all the info and support here. I am part of a new family now, a family of survivors and all of you are in my family. Thank you, thank you.

Best,

Mick

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mick,

Good to hear everyone's positive. All the best for tomorrow. Looking forward to hearing about your smooth recovery from surgery and good results.

- Pam

cwcad's picture
cwcad
Posts: 117
Joined: Nov 2009

Your in good hands. Best of luck and God Bless!!

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Great news my friend, Got you in my prayer.

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

All the best for the excision Mick. I hope they get the little mother out clean and tidy.

Looking FWD to hearing back soon with some good news.

Regds
Scambuster

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

Hi, Mick. This is my first time being here. I want to wish you the very best tomorrow and let you know I'll pray for you.
I am recovering from throat cancer. No picnic. I got on here for information. It is so sad how many people are suffering with cancer. These post borads seems to help.
Good luck tomorrow.
Sincerely,
Debbie

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Welcome to CSN, you are correct this is a great place to be to get help and support; I do hope you plan to stay. Sometimes just talking to someone else who had been there can help in our healing.

Take Care

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

Hondo, thank you for your reply and God Bless.
Debbie

carolinagirl67's picture
carolinagirl67
Posts: 153
Joined: Jul 2009

I know the surgery will go fine and I know God has a plan for you that will include speedy recovery. Peace be with you my friend. Donna

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Just to let you know you both are always in my prayers

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Hope and pray all went well with the Op., Mick. Let us know ASAP.

kcass

Chefdaddy
Posts: 169
Joined: Dec 2009

Mick,

Your are in mine and my kids prayers.

May God bless you Mick

Mike

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Best of luck, Mick. Prayers headed your way.

--Jim in Delaware

MarineE5
Posts: 762
Joined: Dec 2005

Mick,

Just tapping on the door to let you know we're thinking about you. Give us a nod when you are up to it.

My Best to You and Everyone Here

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

I welcome you here but I know you have been here for a few years now, what type of cancer did you have and how are you doing with it now. It seams like a lot of members leave after a year or two, there knowledge and experience is so badly needed for others who are just starting the journey.

Take care my friend

MarineE5
Posts: 762
Joined: Dec 2005

Hondo,

I had Base of Tongue Cancer in 2004. Operated on in Oct, 04. Had 1/3 of my tongue removed. Radical Neck Disection, Tracheodomy, and Peg Tube. Received 30 IMRT treatments.
One year later, got Melenoma on my left cheek. Had a Sentnial node ( sp ) removed along with the Melenoma on my cheek with a large margin area. Now have scars on both sides. My Battle scars with this beast.

My side effects are like many here, no saliva, eating issues with some of the foods we all try to eat in order to stay healthy. But like many here, we learn to adapt and overcome. I no longer need the Peg Tube, my speech is pretty good. The main thing is, I am greatful for each and every day.

To be honest with you Hondo, it wasn't until recently when I was searching something about Agent Orange that I came across an old post of mine here that I made in 2005. My older computer had crashed shortly after that post and it was awhile before I got another one set up. I forgot that I was ever here, Duh. Instead of not coming back now, I thought I would view some of the posts and chime in if and when I might be of some help to someone.

Thank you for the welcome.

My Best to You and Everyone Here

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

It sounds like you have been through a lot, like you said we wear our battle scars with pride. I am very glad you have found your way back; there are many who are just starting on the trail with tongue cancer treatment and have a lot of un-answered questions. JRANESH her husband had lost all of his tongue and is looking for help, I hope and pray that you will stay and give support.

Thanks my friend and may God keep you in his care.

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Hi everyone. First thanks so much for all your thoughts and prayers.

I am home after a selective neck dissection to remove all the nodes on the right and a random biopsy of base of tongue, nasopharynx, ad other spots to try and locate the primary. The surgery lasted 5 hours. 24 hours after I woke up I am home. The marvels of modern medicine. I have very little pain and am taking Tylenol to manage it.

The good news is that the tumors were not adhered to any structures so very few nerves were cut. Also the surgeon said the nods looked encapsulaed which would be excellent news (no extra capsular spread). They thought if there was no distal spread and clear margins in the histopathology that my treatment might end at surgery. Final pathology is due A week from Wednesday. I'm pretty tired so I'm going offline for a while, but I will be back with updates ad to offer support.

All the very best,

Mick

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

That is great news my friend, we will all be waiting to hear when you get the full report, get some rest your body needs it. I will keep praying for you my friend

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Trust that everything will be all right, Mick. Know that you got this thing taken care of. You are taking care of it all as you have chosen- Believe you will win this battle, my friend, and you will.

Believe.

kcass

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Hi Mick, glad the operation went well. I found that pinning that drain bottle to a shirt with a front pocket which I used to hold the bottle worked well for me. That tube goes into your neck about a foot, so don't be afraid of tearing it out. Above all keep doing the exercises that were prescribed. You want that arm over your head every day. Then walk the fingers along a wall. Then the neck exercises. This is where you either lose or keep the ability to raise that arm, exercise, exercise, exercise!!!!!!!!!!!!

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Thanks for that ratface. Because the tumors were not adhered to any structures but were well contained within the lymph gland my Dr did not need to cut any major nerve or muscle or vein. I am very fortunate. My wife led me through the exercises last night and I seem to have full range of motion in my right arm.

A note about my Dr. We met with him the day prior to surgery and one of teh questions he asked me is what music I liked. He wanted to see if I wanted my music played in the OR. I was a bit thrown by this and mentioned a few names and then forgot about it. Then, the next morning, just as I was going under, he asked if I had a request. I was a bit nervous and groggy and don't remember what I said, but what I do remember is hearing Statesboro Blues by the Allman Brothers band blasting in that sterile, bright room. His humanity in that moment said a lot about him and I am so grateful to be in his care.

I am a musician and in a rock band and i cannot tell you what it means to me to be able to continue to play. I would give it all up if that's what it took to beat this thing. But fir now at least I have my health and my ability intact. YEAH!

Best,

Mick

ratface's picture
ratface
Posts: 1254
Joined: Aug 2009

Mick

What a great doctor, but I already told you that from previous posts. I did not have any major nerves cut either but that nerve was moved over to the side during the procedure and it dosen't respond well to being moved. You will have decreased strenght in that arm and it will hurt when you lay on that side. When you awake in the morning that arm will be stiff on occasion. Make sure not to assume that no nerves were cut and things will be OK. You need to take the exercises seriously and not let up on them. Yes I have full range of motion but thats because I did the exercises. My right arm I would guess has about 25% of the strenght it used to have. I am hopeful that this will return incremently down the road. Don't pick up any Amps for a few months!

denistd's picture
denistd
Posts: 516
Joined: Apr 2009

I too am a musician (bass player) retired now, and a cancer survivor. I had radiation and chemo for larynx cancer, all check ups so far have proved negative. I am a brit that is now living in Pa. I was also a singer and when I lost my voice to the cancer I thought that was it for the pipes, but after everything was done it came back, no falsetto but still a good timbre. Theres a whole bunch of musicians that have survived this head and neck stuff, Rod Stewart, Charlie Watts and many many more, so even if you do have radiation and chemo it still is very survivable. Denis

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

HI Mick and fellow Muso's,

I am wondering how many of us here are muso's / singers. I hope there is no link but I have noticed many posters are pictured with their guitars. We might start a POST to see how many of us are singers and muso's and if that has been a contributing factor.

I have been playing and singing, occasionally in a band, for nearly 28 years. I can still sing but the dry mouth factor is currently too bad for me to get more than one croaky song out. I suppose I could rig up a water bottle + straw and gaff tape it to the microphone to 'sip n sing'.

Might have to learn some Tom Waites songs.

Scambuster

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