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looking for non hodgkins relapse stories



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alclmom

				          
            Posts: 7

          
          
            Joined: Jan 2010

          
        					
				
		
									

        			    January 13, 2010 - 12:57pm			  			

			
			
i recently had a 100% clean 3month post chemo pet scan. I want to be excited but i am having a lot of survivorship issues.. please share your relapse stories with me. i feel like my doctors live in a fairly tale worlds sometimes and i would love to here realty! please share age, type and treatment options.....thanks so much


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WinneyPooh's picture
						
WinneyPooh

				      
	        Posts: 296

	      
	      
	        Joined: Jul 2009

	      
	    				
		
			
January 13, 2010 - 1:35pm

			
10 years no cancers
			
Hi, I am on another site but i was 10 years cancer free, i had non-hL, when i was 34 and it was stage IV i was basically dead when they found it only 10% of my left lung was usable and i maynot have made it through the night, but i went to the hospital because i stoped breathing and they found the cancer then and they cured me a year later.


Now for the unfortunate part,  I was DX with Colon Rectal Cancer in may of last year, Doc say it is unrelated but it is a new cancer and i hope to i will beat this one.  Good luck and live well, go vegan if you can stay active and keep your weight under control is my advice to you.  maybe if i had done the same i would not be here with a new cancer.


Live, Laugh, Love

Penny



			
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Joseph777

				      
	        Posts: 2

	      
	      
	        Joined: Jan 2010

	      
	    				
		
			
January 14, 2010 - 9:26pm

			
Relapse
			
I was diagnosed with myelofibrosis in the spring of 09. I have had non-hodgkins lymphoma twice. Once it was low grade and the remission lasted 9 years. I then was diagnosed with non-hodgkins, but it was both low and high grade at the same time. After many rounds of chemo, radiation, and a stem-cell transplant I was fine for about 8 years. That is when I was diagnosed with the myelofibrosis. They have tried just about everything with no success. Revlimid (sp?) was the last. It has gotten to the point where I have to go in approximately every 4-5 days to get two pints of blood and two pints of platelets and neupogen shots. However, now it has gotten to where I am experiencing symptoms within two days. Has anyone experienced this before? 



			
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DennisR

				      
	        Posts: 147

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
January 15, 2010 - 5:43pm

			
I had NHL in 2000, had
			
I had NHL in 2000, had surgery & RCHOP and was NED until May, 2008 when I was Dxd with a recurrance.  I had Chemo and a stem cell transplant in feb 2009.  I'm NED now again and doing well.



			
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Karen Sullens

				      
	        Posts: 3

	      
	      
	        Joined: Jan 2010

	      
	    				
		
			
January 16, 2010 - 6:12pm

			
Non Hodgkins morphed into Lympocytic Leukima
			
I find thay my cancer has been an ongoing subject.  First was Breast Cancer and then the next year they found Lymphoma in my uterus(unheard of by the way). And here I am now with Lymphocytic Leukima.


I have been on periodic treatments with Retuxin.  I have had it 4 times now and each time give me a year or two.  This time I am over a year and feel pretty good.  I know my condition is Chronic, which is on going, and that the deal.  Karen



			
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