Jan 09, 2010 - 5:57 pm
My husband was diagnosed with an anaplastic actrocytoma located in the thalamus a year ago. The tumor is inoperable due to the location. He is being treated at a highly repected teaching hospital and we obtained 2 other opinions before proceeding with treatment. His initial treatment was radiation therapy and and temodar and since completing radiation he has been taking temodar 5 days once a month. He recently developed loss of sensation on one side of his body and had a MRI done yesterday that shows that the tumor is likely larger. His oncologist is recommending another brain biopsy to confirm that there hasn't been a change in type of tumor. My husband is reluctant to agree to the biopsy. He may be eligible for clinical trials if the tumor type has changed. I would be interested in learning if anyone else has been in a similar situation where temodar didn't seem to give the results expected. Did anyone in this situtation agree to the brain biopsy? What treatment options did you proceed with?