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A Good Day Vals update

Val12's picture
Val12
Posts: 27
Joined: Oct 2009

So I had my appointment today at the Cross Cancer Institute, and it went fine. They gave me alot to think about, lots of info, and facts. The nice thing was the oncoligist agreed with Dr. Seikaly in that my cancer is CURABLE! From what I have read oncoligists do not like to use that word… but he did. He also said that the size of my tumor is only a stage 2, but with the lymph node involvment it puts it up to a stage 4. Anyhow I was happy with what they all said, and am confident in my decisions that I have made. :-)

Hubby and I talked about it and I have decided to have the surgery first and then the treatment. I just want to get as much of the cancer out of me as possible as quick as possible. I feel as if I have been invaded and/or raped by this awful disease.

I am also signing up for a clinical study as part of my surgery where he will actually do a submandibular salivary gland transfer to protect the saliva glands from radiation.He is the doctor who pioneered this techique, (so like I said before I do think I have a great doctor). With this kind of cancer and the normal surgery and treatment there are so many quality of life issues such as: saliva and dry mouth, swallowing, and tastebud issues, and it usually takes a long time to get theses things back under controlas many of you know. With this clinical trial it makes healing, eating . drinking, swallowing etc. that much easier and you heal quicker.

Anyway I will be seeing him on Monday with my decision, and he will tell me more about the sugery, he told me that it would be within 3 weeks from then.

If any of you are interested in reading my Doctors proceedures, just type in “Submanibular Salivary Gland Transfer/ Dr. H. Seikaly” or another interesting on of his is " Beavertail Surgery" these are being done as a clinical studies all over N. America now. If anyone has had either of these done please let me know, what you thought The Clinical Research nurse is going to put me in touch with people who have had this proceedure done.

Anyway I am so happy this appointment was not a doom and gloom one, and finally the ball is in my court so I am going to run all the way to Cancer Free and good health with it!

Sunshine and Smiles Val

cwcad's picture
cwcad
Posts: 117
Joined: Nov 2009

Right on!! Now fight on!!!! Keep us posted. IT would apapear that you are taking back some control. Good LUCK!!!!

fishingirl's picture
fishingirl
Posts: 188
Joined: Nov 2009

I'm wishing you all the luck in the world!!! Keep positive.
Cindy

pk's picture
pk
Posts: 192
Joined: Aug 2009

A good day for us too. My husband had his first PET scan 3 months post radiation and chemo. His body, at this time, is totally cancer free. Couldn't have better results. Go for it, fight, get thru the treatment. Obviously it's worth it!!!!

PK

Hondo's picture
Hondo
Posts: 5604
Joined: Apr 2009

I am glad to hear you are doing well and you have made your choice, you will continue to be in my prayers all the way through and for some time after.

God bless

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Sounds great, Val. No question about the impact on our saliva, and the typical dry mouth and impacts from it- including our digestion quality, and natural mouth and teeth cleansing. Hope all goes well- very well.

Believe.

kcass

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Thanks for your post and your resolve. You and I are in the same boat. have you posted your story here somewhere? Please point me to it. I will ask my Dr about "Submanibular Salivary Gland Transfer" and the "Beavertail Surgery" as he seems interested in different surgical modalities.

Please keep us posted.

Warmly,

Mick

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