CSN Login
Members Online: 4

Choroidal Melanoma Survivors

aharlyridr
Posts: 6
Joined: Jan 2010

I was diagnosed with a large choroidal melanoma on January 23, 2009. It was discovered during an eye exam. I had visual disturbance which prompted my dr visit. It felt like something was in my line of vision but no matter how many times I wiped my eye or blinked it never moved or disappeared.

I had 3 different eye drs look in my eye until they sent me to a retinal specialist and he told me the he suspected that I had a large choroidal melanoma. He referred me to Mayo where the dianosis was confirmed.

I am 37 years old and have a devoted mother who comes with me to every check up. I have a husband who has been to my first visit and isnt very receptive to conversations about my cancer. I had plaque therapy and was told that if my tumor was another mm bigger they would of had to remove my eye. Luckily today I still have my eye and there is minimal vision but not useful vision. I too have had to adapt to no depth perception, learn how to drive, etc....

I am looking for a support group, someone or more that one person to talk with, cry with, laugh with, whatever my emotion might be and in turn will do the same. Thanks for reading a small exerpt of my journey with cancer.

mr steve
Posts: 286
Joined: Sep 2009

You can always find people here that will chat, laugh, and cry with. I am a caregiver to my wife who has NETs. Some times its hard for us men to talk about this cancer stuff cause it scares the crap out of us. Good luck on your journey to a cure.

aharlyridr
Posts: 6
Joined: Jan 2010

Thank you for the reply. Although my life is pretty normal it still feels so not normal.

Italialu
Posts: 1
Joined: Jan 2010

Hi,
I am a 44 year old mom of two children in the NY area. I was diagnosed in July and treated with radioactive plaque therapy. I also had a PET/CT and they found hodgkins lymphoma so I finished my treatment for that yesterday. I had two months of intensive weekly and sometimes twice a week chemotherapy and yesterday was my last radiation treatment.

It's been a rough five months but luckily, I see well now with my treated eye and no more double vision issues.

It is nice to meet others who have that the same issue.

Luciana

aharlyridr
Posts: 6
Joined: Jan 2010

Yes it is nice to be able to meet with others who know what its like to go through all of this. My husband is not supportive in the ways I need him to be and so this has been a journey Ive basically done alone. I have a 18 year old son. He is great too but not supportive in the way I need. No one really undetstands unless theyve been there.

springm
Posts: 6
Joined: Jan 2010

Hi

I am new to this and just read your post and I have myself in the last year went through something VERY similar. March 2009 I went under brachytherapy for rather LARGE tumor in my right eye. I go back to the Mayo every 6 months for re checks on my eye, chest x rays and ultrasounds so if the cancer spreads they can keep ontop of it. I am only 28 and am dealing with all this crap. My liver teast are high and this last visit my liver tests showed fatty diffuse infiltration...so i have to to my regular doctor to see what is goin on there.

i have little vision in my right eye, so now I am going through avastin injections to treat macular degeneration. Since the redation did it's job, but it also killed some of the good blood vessels, caused cotton walls, and cysts in there as well. But I have been looking for wupport groups and just someone to talk to who has been going through the same thing as me and it it hard.

And like you said at theast we still have our eye. Thank you for listening! I weill do the same anytime if need be.

Giuoco06
Posts: 6
Joined: Jun 2012

My husband is going in the diagnose and finding (treatment) phase (we are both 24), but he got sick (I thought it was food poisoning) and we went to the ER (where they said his liver was not doing so good)the doctors just suggested it might have been because he was dehydrated from the possible food poisoning, but is that something that might be related? (This was after our specialists said it was Iris melanoma)

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

Please let me know how you are doing

incogjsm
Posts: 6
Joined: Jun 2009

In addition to this discussion board, there's one that's dedicated to different kinds of eye cancer. It's http://www.eyecancer.com/

I was diagnosed a year ago October. I have been very lucky. All my tests have been good and while my vision is affected, I still have it...much to my doctor's surprise.

But it's still scary. I am lucky enough to have a Gilda's Club in town where I attend a support group, as does my husband. That has really helped. And part of what we've talked about lately is about how a whole new part of recovery starts once treatment has ended. And how hard it can be because sometimes families think it's all ok then...life can go back to normal...and it can't....or at least not to the old normal. And that it takes time to be able to move toward that new normal.

And I'm still scared. Before every test and ecery doctor's appointment. And sometimes just in general. This is a life changing experience.

springm
Posts: 6
Joined: Jan 2010

It is life changing and it is hard to deal with some days and I was just talking with my fiance about this just yesterday, and even though he has been there every step of the way. For some reason he doesn't seem to think I should be having these scared feeling and what not and having as many bad days as I have been having since I found out a a year ago.

We had to postpone our wedding, and now who knows wehn we will be getting married now that I have to go every 6 months for check ups. And my eye sight is very poor and I am getting injections every 6 weeks to try and save my vision. So I think that is what I am having the most trouble with is going to the doctor so much. Plus my liver is stressed at the moment and that makes me nervous. They are going to do more test tomorrow to try and find out why that is. So he thinks I am stressing for no reason and crying for no reason. But I think I have every rightto get upset when my worl changed a year ago. And it gets frustrating to talk to him anout what I am feeling. I know he cares but he just does not act as if he does.

aharlyridr
Posts: 6
Joined: Jan 2010

Hi springm, I just celebrated my one year diagnosis date and as of my last check up I am doing just fine. But there isnt a day that goes by that fear doesnt creep into my daily activities. My tumor is 5.2mm (I think) and no sign of spread and my liver tests have been "normal" with a slightly elevated bilirubin. I was married 3 months before my diagnosis and lets just say we are on the verge of divorce. I have not been able to grieve over my loss of vision becuz he complains Im to crabby and must need my depression/anxiety meds increased...which I might add I did to just prove him wrong. My husband is very insensitive and unsupportive. When I was at my last check up he texted me good luck....no phone call!!! But also in his defense, men deal with this serious stuff way differently than we do especially the ones diagnosed. Cancer is a very scary word and also very scary to live with. There will be days where I will cry wondering what the hell I did to deserve this...but whatever the emotion I might have I have to do it alone. Which is so heartbreaking.....I am a member of a team on the Relay for Life. It is put on by the American Cancer Society and I attended my first event last year and the support that is given to the survivors is amazing. I am getting more involved in fundraising and trying to focus on the good in my life and if my marriage fails....it wasnt meant to be. The most important person in this fight is "me" "you" those living with cancer. If you need me or would like to talk more directly to me I can give you my email. Good Luck and Take Care....Always aharlyridr

springm
Posts: 6
Joined: Jan 2010

It is so nice to hear from someone who is going through something so similar! It would be nice to get your e-mail! And I willgive you mine. I hear you on the anti depressant meds...I actually am having to go off mine now due to my liver tests being so high. I am kinda scared about that, but at the same time I need to keep mu liver as healthy as I can to keep my melanoma from spreading. This is day 2 of weening me off of them so let's hope chris and I don't start to go backwards again in our relationship...since we just got back on the right path again after a really rough patch.

I am sorry to hear about you and your husband...I know you said it was not meant to be but still to add that on top of the cancer is just not whst you need. And it has been just about one year for me as well since my diagnosis. Wow...what a rough year huh? Like you said we have to try and focus on the good in our life...which can be hard to do...who do you have as a support system? Mom dad? Any brothers or sisters? I am here for you if you need me. Yo take care and hope to hear from you soon! Springm

aharlyridr
Posts: 6
Joined: Jan 2010

I am so sorry for the long delay in replying. Lets just say I have had a very hard week emotionally.

My email is aharlyridr@yahoo.com....if you have yahoo msgr my screen name is aharlyridr....

You asked about my support system...well it is very weak but I am working on strengthening it. I am seeing a counselor now to help me sort out everything and to try and make some sense out of it all. I will respond more later but wanted to get back to you with my email.

Thank you

springm
Posts: 6
Joined: Jan 2010

that is understandable...and i forgot to give you mine in the lst message...it is dm_fan2@hotmail.com so feel free to write me whenever you need someone to talk to!

sorry so short today been a busy day shope to hear from you soon.

springm

newtop
Posts: 3
Joined: Apr 2012

I underwent plaque radiation treatment for a 12mm x6mm tumor in my right eye 6 months ago. Although the tumor is shrinking and all tests show negative for cancer elsewhere in my body there's not a day that I don't think about it. I am thankful for my treatment but everyone thinks I am ok. I am not ok. I pretend things are good (and they are compared to others). I just wish I could be positive ALL the time about this.

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

How are you doing now?

Scheduler
Posts: 4
Joined: Dec 2012

I am also now at 6 months post-op.  My tumor was in my right eye and considered small.  It has now shrunk about 20% and they are happy about that.   I got new glasses in Feb and was told that  my vision hadn't changed from the radiation.  Lately I'm noticing that everything is blurry and I have to blink several times and squint my eyes to be able to see.  Even then, my vision is not clear.  My eye aches almost constantly and I use OTC drops all day long.  I can feel my eyelid scraping over the scar that was left from the plaque.  They told me that was common.  I am also noticing more and more the small "floater" I have had for years.  Does anyone else have these problems?

I also have a cystic mass on my right adrenal gland that the oncologist believes to be benign.  He will watch it along with my liver every 6 months for the next 5 years.

I agree with you, newtop.....everyone thinks this is over and everything is good.  It's not.  I have no fear of dying but I am afraid of future treatments I may need.

Giuoco06
Posts: 6
Joined: Jun 2012

My husband is the one that was diagnosed with Iris melanoma (possibly in the ciliary area) and I have a hard time dealing with it. at first, I have to admit, I was in denial (even once we started to go to the specialists) I just wanted it to be made up, (we both did) but when I finally came to terms with it, my husband acted like it did not exist.

I get upset when we have to go to specialist and have to decide in procedures and treatments (and he does not take it seriously). It upsets me because it's almost like he does not care about it (and I have mixed issues with that). Some people , have told me that it's best for him to be carefree for now, and not have to worry about it, but I'm the one that has to schedule the procedures and have to keep up with his schedules. (I almost feel like a mom in a way) because of this I have had breakdowns (kept them to myself) and I've lost like 30lbs from the stress alone.

I guess I'm asking for suggestions, as a person that has to deal with it, what would you suggest the caretakers to do/say? I'm giving everything I got, and then some (but as a full time worker/full time student) I feel like I cannot keep up :(

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

Howhow are you doing now?

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

How are you doing now?

jeanjewing
Posts: 4
Joined: Apr 2010

Hi, I also was diagnosed with Choroidal Melanoma in my right eye. My Specialist, Dr. Wilson is 5 hours away at UT Hamilton Eye Clinic in Memphis, TN. I had the plaque radiation,in January 2010, had to stay in Memphis for 7 days. I went back for my 8 week check up, and 3 days earlier, lost my vision. I am trying so hard to learn to pour coffee, not miss my cup, etc. It is a whole new world out there, one that I get depressed about. I try to stay positive with scripture and positive feedback. I can relate with you and would like for you to please be my friend. I live in Montevallo, AL
I am so sorry we had to be in this small rare division of cancer. (6 IN ONE MILLION) I have been in shock for 3 months, as there is NO cancer in my whole family. Why couldn't we have won the lottery instead?
Take care, please contact me, as I need to know I am not alone..God Bless..Jean

dottie27
Posts: 4
Joined: Apr 2012

My grandmother, also named Dorothy (I have made this account for her), is 84 yrs old and just diagnosed with Choroidal melanoma of the right eye. She is overall very healthy. You wouldn't think she was over 65! She does have macular degeneration in the left eye as well thus leaving her with poor vision bilaterally. We are still in the testing phase to ensure it hasn't spread to other areas. Her first appt at MD Anderson was this past Wednesday. She was given the options of removal of the eye or radiation with the plaque. She believes radiation is the answer; however, she is very concerned about the discomfort she will encounter during the procedure. Being in healthcare myself, I do believe we can control the pain with medications but she is unsure if she will be able to handle it. My research revealed that while uncomfortable and there will be some pain, many do well with just ibuprofen on schedule during the time the plaque is in place. Can you give some additional information regarding your experience that we can share with her? She knows that leaving it will cause more issues but is very anxious about treatment.

Thank you for your time and consideration! God Bless!

Dorothy

newtop
Posts: 3
Joined: Apr 2012

I just joined this site and your grandmother has probably undergone treatment by now. My plaque radiation treatment for choroidal melanoma in my right eye was unpleasant but tolerable. My treatment was in Cincinnati, OH in September of this year. I suffer from chronic miagraine headaches and had one for the first 2 days of the radiation treatment. I think it was a godsend to take my mind away from the treatment. I did not take any pain medication during the treatment. However, I have a high tolerance for pain. I found the anticipation to be worse than the treatment. I hope your grandmother is doing well.

newtop
Posts: 3
Joined: Apr 2012

I,also, have Choroidal Melanoma in my right eye and had plaque radiation in September of this year. I go to University of Cincinnati, 3 hrs. away, for treatment. You are not alone, Jean. I work so hard to stay positive. It's hard. I hope you are doing better.

eyeshavit
Posts: 1
Joined: Jun 2012

Hi, not only is this Choroidal Melanoma scary, but finding someone with this in common with isn't easy. I'm recovering from my plaque removal a couple weeks ago very slowly. I don't know what to expect but it seems everyone has their own unique experience. I live alone and have pretty much no family, (one sister) I'm 50 going on 30, so I thought. So nedless to say I'm strugling with depression and fear. I have more questions every single day and getting answers is next to impossible. I traveled to Wills in Philly and I'm still not having any fun yet. Hopefully someone out there is willing to chat with me. I want to do everything in my power to be as healthy as possibe but at the same time would love to just drink myself to sleep. I want to do nothing but I at the same time feel like I need to live life because now it suddenly seems short. For real! So scared.

GreenArtist
Posts: 2
Joined: Nov 2012

Hi eyeshavit & everyone else. I also went to Wills in Philly and had my plaque removal on Monday, so a week ago tomorrow. I am wondering when the double vision will clear as that is making everything so hard. I usually keep a gauze bandage over my eye glass lens so my family does not have to look at my eye - it is so much worse looking than I ever expected. I find myself focusing on "how are we going to pay for all this" more than my actual health. I understand the feeling that you just want to curl into a ball and sleep until someone else figures out how all this is going to work out...probably why I am not even taking a nap...I just keep making excel files of bills and creating files with all our family finances in case my husband has to deal with this without me. I totally understand how you are feeling eyeshavit, I hope you pop back in here and post an update!

Scheduler
Posts: 4
Joined: Dec 2012

hi Green Artist,

I also went to Wills and i had my plaque removed on 12/3....around the same time as you. My vision has cleared but i'm  having much discomfort. I have an ache deep inside my eye almost constantly.My retina doc says my eye looks good and has suggested that i use OTC drops for dry eye. I have to use them almost constantly. Are you having this problem? I also begin the Avastin injections in April and am terrified! Have you had any injections yet?

 

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

I went to Will's as well. Had the laser and injection. I actually had to have my muscle cut. Even tho it was not a large tumor....although at this point any size is creepy

Scheduler
Posts: 4
Joined: Dec 2012

hi Green Artist,

I also went to Wills and i had my plaque removed on 12/3....around the same time as you. My vision has cleared but i'm  having much discomfort. I have an ache deep inside my eye almost constantly.My retina doc says my eye looks good and has suggested that i use OTC drops for dry eye. I have to use them almost constantly. Are you having this problem? I also begin the Avastin injections in April and am terrified! Have you had any injections yet?

 

kailuagurl
Posts: 1
Joined: Jan 2013

Aloha Jean,

I was diagnosed this past Oct 2012 , Quickly went to Wills Eeye Institute in Philly to get the plaque therepy done.  My cancer is in my left eye. size was 14mmx6.4mm. I just want to let you know that you will get used to using only one eye.  I have had severe kerataconis in this eye for many years before my cancer DX. with very limited sight, and I am still working and driving , it just takes a little time to get used to it , but you will get there. I go back for my 4 mo check in Feb. my current site inthat eye is 20/400 so cant get much worse for me sight wise, but my big fear is that it has already spread altho all my tests so far have been negative.  Anyway hang in There it will get better. Take Care and GOD BLESS Vicky

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

When you say 6.4mm do you mean the thickness?

Giuoco06
Posts: 6
Joined: Jun 2012

My husband was refered to a retna specialist (from our regular optometrist when he found what looked like a cyst or tear in his Iris) from a regular check up. The retna specialist said it looked like Iris melanoma, but did not fit all of the symptoms. We were then refered to a specialist in Denver (we are originaly from Texas) and we've done so many different tests and cannot get a conclusion. Just a few weeks ago he had surgery to see what it is (since they saw it was a mass) and also to see if it was in the cilary body. We are both 24, and we have not been able to speak to anyone else that might have had anything similar (normally older or something esle). My whole story is here http://csn.cancer.org/node/242575, please keep in touch.

brutz
Posts: 7
Joined: Mar 2012

Looking for a pattern in fellow veterans. In the year 2010, over 2000 veterans were identified with CM. Statistically there should be about 115 identified. Any fellow veterans out there with CM? Please email
brutz@pasco.k12.fl.us

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

What ended up happening ?

brutz
Posts: 7
Joined: Mar 2012

We continue to collect the data. We continue to go through the FOIA data and seperate by age/ location/ et. But the data is so very huge.The high rate among veterans is alarming..perhaps the are veteran wives who have also been diagnosed. Something about the area where one has lived and or served that has coused this to be very high among veterans for a very rare cancer..

So anyone out there? We need the data. We need real people..not just numbers. We need the stories. We need to know to prevent. My husband is going to court for his case and request further research. Some of this may be military enviornmental issues.

There has to be a voice to alert folks as to some possible enviornmental conditions..living on base..in state out of country.. what in the world is going on?

Please email me at

brutz@pasco.k12.fl.us

aurawish
Posts: 1
Joined: Feb 2013

I'm new to site.  I've been looking for almost 4 years for information regarding symptoms etc that occur 3- 4 years after plaque treatment.  I really want to know if others are experiencing recurrent flasshes, yellow ribbons years after plaque therapy and what it all means?!  I ANYONE is having these things again and have some input, please let me know. I've been told I have developed cataracts which I was initially told would occur.  I have not had anything done yet about them.  There is a lot of info about things that one can expect right after treatment but I can't find anything3-4 years hence.  

 

thanks and positive thoughts your way!

aurawish

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

Have you seen a doc to make sure the flashes are not from recurrence ? God forbid.. Must we must be pro active

Scheduler
Posts: 4
Joined: Dec 2012

I had plaque radiation therapy in December 2012 for small melanom that was detected when I went for new glasses.  I'm lucky...my vision is fine at this point and I have no problems from the radiation.

I'm told that I have to have Avastin injections in my eye.  The first one was given during surgery to remove the plaque and I was asleep.  My first injection while awake will be in April.  The thought of having this injection in my eye is scarier than anything I can think of.  It's never out of my mind and I have become obssessed with reading websites on this topic.  Some people say it's very painful, some say it's not.  After my injection, I have an appt with a specialist about an adrenal mass that was found during testing before the eye surgery.  Will I be able to concentrate on my appt with the specialist after I have this injection?

Rosevine
Posts: 1
Joined: Feb 2013

Hi,

I live in Austrlia and was diagnosed with a choroidal melanoma in Jan 2011.  I was put in the hands of a wonderful specialist who was conducting a trial for these little buggars!

It was his aim to recruit 50 candidates between Australia and New Zealand within 10 years and at the time he was 8 years into the trial and I was candidate no. 24 only!  In order to qualify for this trial of PDT (Photodynamic therapy) the melanoma had to be free of any pigment as the light beam didn't penetrate pigment too well.  Luckily I qualified with all the necessary stipulations.  I had three treatments, three months apart with monthly check ups of B scans and Photos each time.  All was doing well and I would say I was in remission.  Then in August 2012, during one of my regular visits, the B scan showed regrowth!  Of  my entire journey with this cancer, I would say this was my lowest moment.  I had become a bit complacent and thought, this is a breeze, I can do this!  To complicate matters even more, the regrowth is full of pigment so the PDT is no longer the choice of treatment but is the best chance I have of keeping what sight I still have.  The plaque treatment would render me blind in that eye as my melanoma is very close to my macular. 

I have given the PDT one last shot, have had two treaments since August, had a check up on the 15th Feb '13 and will see him again on 15th March.  My plan B is the plaque treatment.  I agree with another blogger earlier on, no-one can really understand what a cancer diagnosis does to ones mind until you have to face it yourself.  I have a breast cancer survivor friend that is my rock, she is so positive and supportive, every one needs a Nancy!

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

How are you doing?

Cindylouwoo's picture
Cindylouwoo
Posts: 19
Joined: Mar 2013

How are you doing now?

bb53bc
Posts: 1
Joined: May 2013

I was diagnosed with choroidal melanoma in 2006 at the age of 53.  Had radiation plaque treatment with no problems.  After all this time my eyesight is now poor in the affected eye, so my doctor has been giving me Avastin injections every four to six weeks.  I see no improvement in my vision, but it's not getting worse.  He told me there is a slim chance of having a heart attack or stroke due to the injections.  It hasn't worried me until I lost two friends this week to heart attacks.  Has anyone elso out there had Avastin injections and, if so, how are you doing?

atlpcug
Posts: 1
Joined: Sep 2010

I have a small coroidal melanoma, a six in a million cancer, diagnosed 9 years ago.  There are only 10 or 12 ocular oncologists nationwide familiar with this cancer.  Outside of these super-specialists, in most cities, a patient will be assigned to a top retinal specialist.  An opthalmologist will ordinarily see one choroidal melanoma every 10 years of his practice

I went to a top Park Avenue specialist who decreed it was cancer and I scheduled plaque treatment.  The other alternatives he offered me were enucleation or watching, but I was assured it would grow and I'd have a better outcome treating it now.

I also sought a second opinion from a second Park Avenue specialist (NY has two who treat this), and he opined that it wouldn't grow.  The first oncologist objected to my seeing this other NY practitioner because they often disagreed.  He offered to introduce me to a colleague in Miami for a second opinion.  I've since been with the second NY specialist, visiting two or three times a year.  My doctor is satisfied that my tumor is dormant and needn't yet be treated, and if I'm lucky, may never be treated.

I live in Atlanta and was introduced to another Atlantan who had coroidal melanoma and went to Wells.   (I had inquired about obtaining a third opinion from Wells, and was told they require a six-hour physical exam as part of obtaining an opinion.  Forget it.)  At his initial meeting with the Wells ocular oncologist, a reknown specialist on choroidal melanoma, she told him, "We're not here to save your vision.  We're here to save your life."  She scared him and he immediately underwent plaque therapy with the resulting loss of vision in the treated eye.  His tumor was about the same size as mine!

Suffice to say that one can get good outcomes by treating conditions that don't require treatment.  I have letters from both doctors, one saying it's cancer and will grow, the other saying it's a suspicious nevus which may never grow.  The tumor had grown slightly a little over three years ago, but stopped.

A few comments regarding what people have written above.  Avastin, I'm told is of little use.  It's very expensive and if it has any effect, it only delays the onset of macular degeneration from plaque therapy for two or three months.  Fluorescein angiogram, used to prove a cancerous nevus, is a useless procedure for small choroidal melanoma, and is probably unnecessary for a large CM.  There's a new study which says that choroidal melanoma that has drusen will never metastasize, but there will probably be found an exception to this rule in the future.  My melanoma has drusen.

The COMS trial which proved that plaque therapy and enucleation had the same 5-year survival rate was flawed.  There was no control group.  It didn't study patients who underwent watching until tumor growth was documented.  Why do some patients succumb when treated with plaque or enucleation and others survive with no treatment?  There's a theory that the cancer escapes very early in the course of the disease, while in others with a less aggressive cancer, it does not.

Memorial Sloan-Kettering has for over a decade been working to develop a pill to treat choroidal melanoma, which is currently in a closed trial.  The results won't be known for another few years, and it may take longer before it's successful or approved.  If successful, it will spare vision, not merely the eyeball as with vision-destroying plaque.  Keep hoping because new treatments may be on the horizon.  I'm amazed at the improved methods of measuring and documenting my eyeball over the past 9 years.

If you elect to watch the tumor until growth is documented, be sure to always wear UV protection for your eyes and a brimmed hat.  Polycarbonate sunglasses.  Don't rely on UV coated prescription eyeglasses.  After the one time my melanoma grew, I had my six-month old eyeglasses tested, and they didn't have the UV coating that I had ordered.  The only other suspicious activity I did during that six months between visits was sat in a room with my claustrophobic wife as she underwent an MRI scan.  So, I won't do an MRI now, though I'm assured this probably had nothing to do with the growth.  And I wear polycarbonate glasses (clear or dark) over my UV-coated prescription glasses whenever I'm outdoors, even for a moment.

ssaylor
Posts: 2
Joined: Jan 2014

I also have been through this except the tumor I had was to big and they had to remove my eye. For a long time I was so self concious thinking everyone knew I have a prosethic eye. It is a hard thing to come to grips with and being a mom of 3 it scares me to no end thinking it will resurface some where else in my body but thank God I've been cancer free for almost 3 years.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network