Osteosarcoma Chemo and Limb Sparing Questions

tenpin
tenpin Member Posts: 1
edited March 2014 in Bone Cancers #1
Last week, someone very close to me was diagnosed with osteosarcoma in her left knee. I've done quite a bit of research on treatment and surgeries available, but everything I've read as only led to me having more questions.

All that I know for sure about her treatment, is that she's in for at least six months of chemotheraphy, which will all take place over four day hospital stays every three weeks, and that she's going to be getting surgery sometime during the six months. I've read a lot about limb sparing surgery, but I don't know exactly how it works.

If she gets this limb sparing surgery, will she still have full use of her knee afterwards? And also, how do most people respond to the theraphy itself? I've been quite nervous, and I just need to hear from people who have actually experienced this themselves. Any response is greatly appreciated!

Comments

  • susie921
    susie921 Member Posts: 2
    osteosarcoma limb salvage
    there is so much that goes into this, please feel free to email me directly,
    [email protected]

    Mom of Kelly diagnosed at age14 with proximal tibia tumor, skip lesion found. She had chemo before surgery, limb salvage surgery 6/2007, more chemo, thorocotomy to remove lung mets.
    1 year after chemo ended a relapse of 1 tumor and another thorcotomy. Refused further chemo.
    She is now 17.
    Kelly has good motion with her leg but that was because she developed infection and need to have debriedment. The doc took the time to break the scar tissue.

    I would be happy to be of more help. But there is just so much and I don't go to this site often/ So please fee free to email me.

    Sue
  • SectorLife
    SectorLife Member Posts: 1
    Limb Salvage
    Hello,

    My name is Daniel. I was diagnosed with osteosarcoma in July of 2007. I had 10 months of chemothearpy and 2 limb salvage sugeries. I have full motion of my knee and I have a very little limp. The only draw back is I can't run, but I don't mind. There is a broad range of ways people react to chemothearpy, and everyone reacts different. In my case I didnt get sick as much as I thought I was going to. But when I did get sick the doctors were right there with medication. If you have anything else you want to know I would love to help.

    Sincerely,

    Daniel Gross