Jan 06, 2010 - 2:41 pm
Posting here for people who have gone thru this for hopefully some insight. Im in a hospital now that doesnt specialize in treating sarcoma but the only cancer center in the area. In the hospital mostly due to pain and size makings walking difficult. Surgeon, radiology, radiation oncology etc basically the whole "team" looking at my case have said probably sarcoma waiting on full biopsy to determine type. Surgeon has said it is connected to muscle tissue in my thigh with alot of blood vessels running thru it.
What concerns me is they are convinced it is sarcoma (the radiologist is the only one who will say liposarcoma the surgeon wont comment until biopsy report). I mean the fact he offered his view on it is strange enough to me but how can they be so convinced it is without the biopsy report? Ive even asked well what if you are wrong and its not its just benign answer I got was simple "its not going to be". Im comfortabble enough witht he doctors in terms of how they talk/feel to me but that doesnt necessarily make them good to handle this.
Is it that possible for everyone looking at your case to be convinced something is maligant without a biopsy? Can an MRI/ctscan, sonogram all that Ive recieved be that clear an indication? Ive had radiation oncology come in, doctors from the cancer center etc all come in an talk to me. Is this normal before they have decided what type/stage etc this is? Im pretty much flying blind here and been busy looking up whatever information I can on it but just unsure. The plus side to it Ive been told by the ocnologist is that the mass is relatively very soft which can be a good indication...nothing Ive read has indicated that.