Jan 04, 2010 - 10:48 am
I am a 14 year survivor of fibrolamellar hepatocellular carcinoma. Originally diagnosed in 1995 at the age of 23 in Boston, MA with an 8 lb tumor I have been blessed with 14 years of non-reoccurance. I am wondering if there are any other FHCC survivors out there from anywhere and/or from or treated in the Boston area? I also am interested in finding out what is new in the area of the fibrolamellar variant if anyone has any research to share.
As always, I'm grateful to the American Cancer Society for their programs (such as this discussion board), the surgeon who so humbly saved my life had been funded in part by the ACS and I'm always grateful to their amazing community and programs.