Jan 02, 2010 - 8:28 pm
Hi all---my EC CSN friends that are so intimately affected by EC.
I don't want to repeat my (and my dad's) whole story bc it is so similar to all of yours and we are all in this together.---but if you want more info---just ask- :)
I have been very involved in my dad's journey with EC and know it is far from over. I have been trying to think of something to do for my dad bc I was never quite able to do a "real" Christmas present for mom & dad" bc of all that was going on... Also, any of the usual presents seemed very meaningless when one is fighting for their life!!! Anyway, I am thinking of the new year and all the usual "resolutions" that I have.
I am researching about opportunities to actually make a difference about EC---not just fund a foundation some where that we (all) have no control or confidence in....
I truly believe that bc Ec is not very common and often is diagnosed at later stages--(less time for fund raising)====THAT WE AS A COMMUNITY WILL HAVE TO WORK EXTRA HARD TO MAKE A DIFFERENCE!!!!!!!
So---I will be looking into making a difference in this area---I will keep you informed and will not ask for direct donations--I just want to make a difference on my dad's behalf!
We are the ones that have to make a difference in 2010 for ESOPHAGEAL CANCER>>>>!!
My dad was teary eyed just thinking about a clinical trial---knowing "if he didn't make it" --- "at least someone would learn something useful". I know we all wan things to be better for other that have to deal with this disease.