Dec 31, 2009 - 3:55 pm
Hi all, would like to know if there is anyone out there who has had any experience with Collecting duct carcinoma a rare kidney cancer. My younger sister Ngaio Rose Marie was diagnosed with it in Nov 2009 and by all reports the outlook is not good. She may be stage 3 or 4 am not sure, she has been in hospital for over a month and has just started chemo. The doctors decided against removing the kidney as they would not be able to remove all the cancer as it has spread. Any light you can shed on this disease would be greatly appreciated. My sister is 25 yrs old turning 26 19th Jan 2010. I know we may be clutching at straws but we love our sister dearly and as a family have aggreed to not give up hope and will be fighting to what ever end is dealt to us. This is my way of contributing to my sisters plight. Any help or information given again is greatly appreciated.