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Stage 4 liver cancer

annaroo33
Posts: 2
Joined: Dec 2009

My mom, is 76 years old, had cirhossis of the liver since 2006, never drank alcohol exessively, ever. But she must have inherited the disease. She was just told a week ago she has stage 4 primary liver cancer and that it is in her bloodstream. She is on Nexavar, just started, but is she eligible for radiation?

Allans-Son
Posts: 2
Joined: Dec 2009

I don't know about her eligibility, My Dad's doctors noticed stage 4 liver cancer during a gallbladder operation. they gave him 3-9 months without treatment. He declined treatment and hung on for over 2 years most of which he had a good quality of life. I am so sorry to hear about your mom. I will pray for you both.

Jeremy

annaroo33
Posts: 2
Joined: Dec 2009

Jeremy
Thank you for your response, and your prayers. Her name is Sylvia. It's in her bloodstream which I am thinking is very serious. I hope she hangs on like your dad did.

Thanks again,
Nancy

SueRelays
Posts: 489
Joined: Dec 2009

WOW...I was just diagnosed with stageIV cancer. Anal that was treated and supposedly cured two years ago now pops up in liver. I am 51 years old. I'm so amazed that without treatment he was able to live so long. Makes me think twice!!!
If anyone knows ANYONE that has had anal cancer that has spread to their liver, please let me know. Apparently I am in a 5% group with very little data.....

gilou2976's picture
gilou2976
Posts: 6
Joined: Jan 2006

Hi
I had anal cancer and spread in liver.Had surgery in 2006 in april for colon ans anal,and july 2006 for liver.
Ihave a permanent colonescopy bag.Iam still getting chemo and I am doing fine,The side effect of chemo dont bother me .
I hope you are doing as good as I am
You take care.
Gilou

deyci
Posts: 1
Joined: Nov 2011

Hi suerelays i have recently found out that my mother has anal cancer in stage iv shes 47 i just wanted to no how you dealed with it and what you use to protect yourself

rowena32
Posts: 18
Joined: Dec 2009

Allans-Son
That was good that your Dad lived over 2 years when the doctor gave him 3 to 9 months.
What did he do in order to prove the doctor wrong? Did he use a special diet or supplements?
I have cancer in the bile ducts and the other side is covered with a tumor, so I am trying to find any alteratives that I can. I have had chemo and radiation and the CTscan did not change. Any suggestions that you can give me would be appreciated as one doctor in July gave me 6 months. I am praying to God that the doctor is wrong.

bigz123
Posts: 6
Joined: Jan 2010

hi rowena,
The docs think i may have liver mets, can you tell may any of your numbers from your liver function panel if they were off? i would just like to compare to mine. thanks so much,and god bless

rowena32
Posts: 18
Joined: Dec 2009

I don't know if the liver function panel is the same as the cancer blood test or not. Each blood test I have a CA-19 and it started in July at 1900 when I was first diagnosed. During treatments, it got as high as 5800 and then came down to 4000 at the end of my treatments. A month later, it was 1700 but I am wondering if that is a mistake. Of course, that is still very high as normal is 0-35. I will be having another blood test next week, and I am hoping it is even lower. They also do a CEA test and I think this is for the pancreas which for now the cancer is not there and my CEA test is normal. If this is not what you are talking about, explain what the liver function panel consist of and I might be able to give you more information.

johnnyl
Posts: 2
Joined: Jan 2010

may I ask what doctors you have seen?Or where

rowena32
Posts: 18
Joined: Dec 2009

The gastroentrologist in Monterey, CA put the stent in one of the bile ducts to open it up. I have been going to a medical oncologist for the chemo and a radilogist for the radiation treatments.
Tomorrow I am going to UCSan Francisco to see another oncologist before I start more chemo treatments. I live in Monterey County but I had my treatments in San Luis Obispo County.
May I ask where do you live?

gilou2976's picture
gilou2976
Posts: 6
Joined: Jan 2006

had chemo from dec 2005 to my surgery of colon and rectal in aptil 2006.
had surgery of the liver july 2006.was a few year withoout chemo,restarted chemo march 2009.been feeling goog since the beginning.the last ct scan shows tumor on my liver a little bigger. Have started new treatment of chemo last month jan 2010.this new treatment is stronger,my face is a little mess yp.pimples,but I feel pretty good.
will find out if this new treatment is working on my next scanner.
Hope all of you who have that cancer let me know how you are doing.

I live in new Hampshire,being treatted at Darthmouth medical center
In 2007 the doctor gave me 6 months to live.its been 2 years

Gilou

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hi Gilou,
Thanks for your encouraging post. My dad has beat esophageal cancer, and now has mets to his liver. He is taking oral chemo xeloda, and is having alot of side effects. He is almost to the point of giving up. He is on morphine for pain management. He stopped taking his chemo last night. I am a bundle of emotions as his caregiver. Dr said to leave him alone for a few days, hopefully he will reconsider. Once his pain is better, I am hoping this will be true. I can not force him to continue his treatment, and I do have to respect his wishes. I was happy to read that they gave you 6 mos and you have lived 2 yrs. Good for you! Cute picture too. Best of luck to you.
Tina

gilou2976's picture
gilou2976
Posts: 6
Joined: Jan 2006

sorry it took so long to answer.I don't come on very often.
I started a new chemo treatment,Iwill have my 3rd one monday.I feel great,the only side effect I have is in my face and mouth,like rashes.It burns a little in my mouth when I eat hot stuff.My last blood test,according from my doctor.was good it shows that the new treatment is working. I don,t know the name of the treatment I am getting,the doctor told me,but because of my schooling all done in french,because I originally from french Canada
Quebec.Thats why sometimes my writing is not that good.
I hope your father gets better,tell him to not get discarage,keep fighting.Don't know how old is your dad,I am 80 years old,and I hope to stay around a few years or more longer.
I also have other problems.like block arteries,had stent put in twice,but I feel good.no pain,so I don't worry about tomorrow,what counts is now
I know the work.it is for you to tkae care of your dad.I am taking care of my wife.she is 82.she was in hospital for a year, she is still using a walker,and a lot of work.
I think fate and prayers help a lot,it does for me.
You take care.
Gilou

Tina Blondek's picture
Tina Blondek
Posts: 1560
Joined: Nov 2009

Hi Gilou,
I am sorry for not responding to you sooner too. Unfortunately, my dad did lose his battle with cancer on 3/9/10. After he found out in December that he had mets to his liver, he went down hill. The xeloda chemo treatment was very hard on him. It made him worse. He had every side effect. He did celebrate one more birthday, 2/26, making him 71. He was ready, he prayed to go in his sleep. He was beyond tired. Thank you for your story, and for your encouraging words. I will be thinking of you.
Tina

gilou2976's picture
gilou2976
Posts: 6
Joined: Jan 2006

Hi Tina.sorry about your dad.I knowhe will help you go through this ordeal,and he will give you the strengh to keep going.
yOU take care my friend.
I had a ct scan, wednesday apr 7th.will get results next monday.It has been 4 years that I had my first surgery apr 17/2006.

Gilou

larry_d
Posts: 1
Joined: Mar 2010

I too have been diagnosed with stage 4 of the Pancreais and Liver, My doctor gave me 6-9 months to live with treatment and a year without, is this a serious option? I read about your Dad and considering the same route no treatment. Just a question in the later stages was qualitiy of life an issue? Larry

toffeeclub
Posts: 3
Joined: Mar 2010

Hi hi
yr dad is amazing . May I ask if he had a special diet since he declined teatment?
My dad has stomach n liver n bilirubin level was 200 now 70 after xeloda
he is lucky not to hv side effects
but doc only gave him 9-12mths.
Has anyone tried juicing therapies? Beetroot? Silymarine?

Will pray for everyone here that the right treatment will come your way.
God bless
do share yr details so we can support each other

slg
Posts: 200
Joined: Jan 2010

Hi Annaroo,
How long has your mom been on the Nexavar? Has she shown any signs of side effects?
slg

leanjohn
Posts: 18
Joined: Dec 2009

My Dad has been on Nexavar since December 2009, and was told radiation and chemo will not work for him. He has cirrohsis and primary liver cancer as well. It is such a roller coaster ride! He had an MRI and the tumors have not grown but didn't shrink either. His "cancer number" has not changed though. My prayers are with you and your family. Please keep me posted.

leanjohn
Posts: 18
Joined: Dec 2009

My Dad has been on Nexavar since December 2009, and was told radiation and chemo will not work for him. He has cirrohsis and primary liver cancer as well. It is such a roller coaster ride! He had an MRI and the tumors have not grown but didn't shrink either. His "cancer number" has not changed though. My prayers are with you and your family. Please keep me posted.

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