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lung cancer 4 stage met.to the brain

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

My husband just called and told me that the doctor told him the xrays of his lungs are clear.
I think I am dreaming!!!
Seven months ego, my husband was told:" you have lung cancer 4 stage metas. to your brains" I just new he was dying,after six quemos and a gama knife surgery and taking tarceva.
I hope you understand me,(I do not speak o write English very well)
Now my husband is well!!!! thank you God

MommasGirl527
Posts: 8
Joined: Dec 2009

Rosi,

That is excellent news!! My mother was just diagnosed with the same thing and has just finished her first round of radiation. She will begin Chemo in a couple of weeks, then surgery for the lung and brain tumors.

It does my heart good to see such great survival stories.

All the best to you and your husband!!

cobra1122's picture
cobra1122
Posts: 245
Joined: Jul 2009

Rosi, you wrote perfectlly well, I understand that your Husband was grace with Gods gift and healing hand. This truly is a gfit for the Holiday and one you both I am sure are greatly thankful for. Never give up hope, this disease has its ups and downs, but never give up hope and faith, they are the comfort and they help us get through the times we don't think we will.

God Bless You both and Our Prayers continue for you both,
Dan (cobra1122) and Margi Harmon

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

The doctors told him that he was responding very well to the chemo and tarceva, but I think this is a miracle, just trust in God and He will do the rest.'
I think cancer is the devil you have to fight with God.

laconetta
Posts: 4
Joined: Oct 2009

So Happy to hear that, Rosi. It makes me hopeful that some day SOON we will get the same news for my boyfriend. Merry Christmas!

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Hello: my husband just had a pet scan and the dr. told him:"YOU ARE IN REMISION" thank you for your prayers, I hope I can snap out of this depression!It was very hard on me.

CCAOG
Posts: 31
Joined: Dec 2009

Rosi, Great to hear that big REMISSION there. Give your man a big hug. Treat him like he just came home from a war. Get the most out of every day. Love life, its a beautiful thing. Thank God for he does do miracles.

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

The nerosurgeon just told my husband that the MRI shows several small dots in the brain.
It was to good to be thrue!
I am so sad! they talking about doing whole brain surgery, I hate cancer!!

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

After geting de good news about the remission, i had so much hope! now that the doctor told as that my husband has 8 small tumors all over his head. I search in the internet and found that WHR really does not work and the side effects are bad because they kill good cells.
Can somebody told me if they had whole brain radiaccion? help I am so scare!

Laura88
Posts: 47
Joined: Oct 2009

Hi -- I finished a three week run of WBR today. I fortunately had no side effects with the exception of fatigue, although to be fair I am working full time. I go for treatment and then come to work so by the time I get home I am pretty much done. I sit in a chair and watch TV and go to bed at 9:30, but I, too, read very scary things about the radiation so I am thrilled this is all I have.

I too was told I was in remission and two weeks later found bone mets in my pelvis and three small mets on my brain. I was sent reeling for sure, so I know how you feel for sure. It took me a while to regroup, but we need to stay strong and move forward, you know? Again, I have been fine through radiation and I'm having my pelvis radiated, also. My doctors have said WBR is very effective -- I will have scans in a few weeks -- I'll certainly let you know. Best wishes to you and your husband. It's a long, lonely road. Please do find me if there's any way I can help and encourage you. Laura

SueC21's picture
SueC21
Posts: 11
Joined: Jan 2010

Hello,

I am new to this site, but have been reading everyones posts and it has helped me get through this new phase of my life. In anycase my husband was dx in Dec 09 with Stage IV Lung Cancer with mets to the brain, eye and liver.

He did 10 rounds of WBR and on Wed 1/27 he had an MRI done and it shows all of the 7 spots on his brain have shrunk. He did very well thru the radiation with the only side effect being fatigue. He was fortunate enough that he was not working at the time. But overall did very well and we have seen results. Back in 2 mos for another MRI.

My advise would be if your husband is healthy enough go for it. I hope this helps. This has been a difficult journey for us too. I look to God to help us get through this.

Will keep all of you in my prayers. God Bless.
Sue

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Thank you Laura and Sue for you encouraging letters, Tomorrow he will start 2 weeks of WHBR and after reading your letters I can see a little light at the end of the tunnel thanks and God bless you. A coworker told me:" don`t try to beat cancer just be one step ahead"

Laura88
Posts: 47
Joined: Oct 2009

And -- one day at a time. Let us know how it's going. Laura

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

My husband is finished with the WHR, but I can see his health is getting so bad, he is 63 years old and he looks like 90 year old men, he is so week and he tell me that he does not have any goods days anymore. I work full time and i hate to see him going all day by himself.
I am very depresed, sometimes I call God and do not get any respond.
Please pray for me. I need help...

tessyc's picture
tessyc
Posts: 9
Joined: Mar 2010

My mom had WBR and it took it's toll in the beginning, exhausted, tired and very depressed when her hair fell out. You see it was her crowning glory. After awhile she did bounce back although not 100 percent. And her poker straight hair came back curly. But her brain has been clear for two years. Don't give up hope we are all here fighting with you.

cobra1122's picture
cobra1122
Posts: 245
Joined: Jul 2009

We are so sorry to hear your husbands current situation, but please keep hope in your heart. My wife and I are faced with a very similar situation, the only peace we can find is our faith and hope. We pray for today, that we can just find ourselves cherishing the day together. I am as I posted before only 49yrs old. (50 on 5/2 this year) and am on Hospice, my wife as you works and like you she hates to leave me to go to work. But because of Hospice she finds some small amount of peace that I am not all alone. We take every moment we have and life it to the fullest. We can't waste time on what Ida or why's, no one has a forsure in life , cancer or not.
I only hope that your husband can find peace , as I have and with the help of my Docs I can function somewhat pain free. His journey now I realize is a very hard and stressful one, but as hard as it may seem you both need to keep a positive out look. No one can say they know what your going through because we all deal differently with this type of ordeal. My wife and I face the almost same future as you, we can only say our prayers are with you both. As I posted before I have been battling lung cancer for 2+yes and have other serious health problems, but we keep hope and faith in our hearts and laughter in our voice. Humor has helped us deal with somethings that otherwise would have driven us crazy.
Is there anything else the Docs can try, if your husband is willing? Do you feel they have done a thorough treatment program? I only ask because as with me everything was done to the best possible treatment program. My wife and I had to come to terms with the fact the battle now was with in and my only treatment now is to live life to the fullest and cherish every moment we have together, create memories for everyone, and find peace in where my future is ( in my faith). It is hard, but never give up, look into clinical trials, any other possible things that might be of help. Investigate each before trying, some unfortunately , as we foundout the hard way, are smoke and mirrors, no help excepted to separate us from our money( which is tight).

Our Prayers and Best Wishes to Your Husband, You, and Your Family,
Dan ( cobra1122) and Margi Harmon

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Thank you my dear friends ( in cancer world) what a nasty way to say, but I think I am feeling sorry for myself, because I feel that my world would end when my husband is gone. I donot know how to live with out him...Sometimes I feel that we are in God hans and everything will be ok. and sometimes when I see my dear husband with this cancer fatigue I just want to cry and cry WHY!!!!WHY!!!!him and not me?
I pray all the time and ask God to take cancer from the world and them I think about the wonderful things tecnology is doing for cancer;that is God answer to me....lets keep going and trusting in Jesus, WITH HIM ALL THINGS ARE POSSIBLE!
I love my friends and thank you!
Rosi

markgrosse
Posts: 1
Joined: Mar 2010

rossi.. i truly know how you feel..I just lost the love of my life febuary 20 not even a month yet ...and i can understand what your going through..the sitting up hoping and praying..my wife problems started one day she came home ..complaining of bad head aches off and on for a week until we took her in to the hosptial and they ran test..came back tumor in the brain..three days later the doctors operated got it out they say..we were so happy til they said they needed to do a biopsy..two more weeks of waiting .and when it came back..we asked and the doctor said it was lung tissue ..lung cancer when he said that .all we could do was just lock eyes..it was like our 12 years started to flash before our eyes..two weeks later they referred her to hospice ..well to shorten this ..she passed away three months and 20 after being told..so sweety hope you dont mind me saying that ..enjoy every day you have ..every hour..every smile and record every word .your love says in your mind..and never stop praying ..because for some they are answered..god be with you and your love..http://www.gonetoosoon.org/garden/markgrosse/..please feel free to to come to my site i opened for my wife

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

After a PET-scan and an MRI the doctor told us no sign of CANCER the 8 small tumors he had in his brain are gone, from the neck down nothing nothing.
My dear friends lets keep praying and lets be strong. We will win. CANCER IS EVIL!!! and I pray every day for the cure.....Love you Rosi

crick
Posts: 8
Joined: Jan 2010

Rosi - we have a similar experience. My wife had a PET/Scan and her doctor called this past Monday that there was no sign of cancer. Today we received a call from the Radiation Doctor and his Nurse told us that the MRI of the brain showed something very small not to worrying that the radiation can take care of it (easy for them to say). We have an appointment to see him on Tuesday to start the planning for her brain radiation treatments. The brain radiation does not surprise, since we have have been advised from the start that due to her type of lung cancer, radiation to the brain is part of the treatment. We did not expect for them to find anything. But with cancer we need to expect the unexpected and most importantly keep our hope and faith.

I wish you and your husband the best.
crick

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Hi Crick,you are right CANCER can be mean and with hope and prayers we can win,and my plan is for my husband to gain some weight and get strong,b/c when the evil cancer returns we will be ready for the fight again.
God bless
Romé

MiddleDaughter
Posts: 1
Joined: May 2010

Thank you Rosi for sharing, with your ups and downs. My Mom was just diagnosed with stage 4 lung cancer. She had stage 1 2 1/2 years ago with a removel of her upper lobe. She didn't have chemo afterward, which I think was mistake. She had a PET scan for other reasons and they found the ugly cancer back in 4 spots, lung,spine,lymph in abdomine, and aderenal gland. There attempt at a biopsy failed and they are trying again next week for the aderenal gland biopsy just to confirm it is the same cancer back again. They are also doing an MRI for her head. We pray for mercy that it isn't in her brain. She is 75 and has had several surgeries for PAD. We feel lost at where to start. I am researching as much as I can to give her the best chance. Besides these 2 things she looks like she is about 59 or so..no kidding...she is very active. If anyone has any suggestions please send them to me..my Mom is my best friend.

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Hello friends, I am back after about 3 months free of cancer, my husband`s PET-SCAN and MRI of the head, shows the tumor is back and we are going to start ALIMTA next week. I can see he is not doing good, the tumor in his head is near to the cerebellun and the pressure is afecting his eyes and also his equilibrium. what makes me so mad and helpless is that he is smoking more that ever,and he keeps taking deteriorating...How long can I go? I live in Alabama and I can`t fine a caregivers support anywhere.... please pray for mi and thank so much....I am so sad!!!

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

please try this link

http://www.lungcancer.org/

For help, call 1-800-813-HOPE (4673) or email info@cancercare.org
Lung Cancer

Lungcancer.org is a program of CancerCare, a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs—including counseling, education, financial assistance and practical help—are provided by trained oncology social workers and are completely free of charge. Founded in 1944, CancerCare provided individual help to more than 100,000 people last year, in addition to the more than one million unique visitors to its websites.

Our staff helps you manage financial concerns and provides referrals. Limited aid is available to eligible families for cancer-related costs like transportation and child care.

I also would call Amer Cancer Society 800-227-2345 open 24/7

also see link for CSN Cervical cancer survivors and one member who had stage 4a (Beckyrcn)
http://csn.cancer.org/node/188836

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Well I am back to give you update on my husband... He is deteriorating de cancer is back in his lungs and the tumor in his brain, he will have a MRI next week and the doctors will tell me what is next...the tumor in his brain is in the cerebellum and is affecting his balance and coordination, he can`t walk, he stays in the chair looking at the TV but he can not even watch because because...he is just there..living or dying I do not know, God I am the only caregiver and I work full time and my heart is crying with pain. what to tell him? he is not the same man I used to know, he is changed...i miss him..and he does not even look at me..I am sorry, but i am so sad to see him suffering, he does not have a pain thanks to God.
Thank you guys
Rosi

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Can you call Hospice in your area, and see if they will help? Or maybe the hospital can arrange a visiting nurse? You surely deserve a break!
Wishing the best to you and your husband,
stayingcalm

3Mana
Posts: 829
Joined: Aug 2010

I'm so sorry for you. Sounds like you've had alot of ups & downs. I also went through this with my husband, but from the diagnosis till he died it was only 2 months. We were married 46 years and he was never sick, so it was very hard for me to see him go downhill. But be strong & keep telling your husband you love him & just be there for him. I to, didn't think I could go on, but it's 5 months now and I am getting better. I also was very depressed & all I wanted to do was sleep cause then I could forget. But I started seeing a counselor & also got some medication to help me cope.
So just hang in there Rosie! I'll say a prayrer for you. "Mana"

sleepless in jersey
Posts: 185
Joined: Feb 2011

Hi Laura~ My Mom is in her 5th tx of WBR rad. and is having some brain swelling/headaches. They have her on 2mg of decadron and will be starting chemo on Monday with radiation. Could you tell me did you have these headaches?
They also told her to start with the lotions on the forehead your going to experience the burns and to make sure you have your wigg.

sleepless in jersey
Posts: 185
Joined: Feb 2011

Hi Laura~ My Mom is in her 5th tx of WBR rad. and is having some brain swelling/headaches. They have her on 2mg of decadron and will be starting chemo on Monday with radiation. Could you tell me did you have these headaches?
They also told her to start with the lotions on the forehead your going to experience the burns and to make sure you have your wigg.

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