Dec 11, 2009 - 10:16 pm
Sheer frustration!!!!! My father was diagnosed with Squamous Cell Carcinoma of the esophagus over 2 months ago. And we have still gotten nowhere. The following events have taken 2 and a half months.
After they confirmed the cancer in the esophagus, they set a date for a pet scan. The oncologist said this was needed to stage the cancer. The initial pet scan lit up in the lung. The oncologist then informed us that they have to figure out which was the primary source so the oncologist set an appointment with a pulmonologist. The pulmonologist then set an appointment for a bronchoscope biopsy. The results from the mass in the lung was NOT cancer. The pulmonologist had it double checked. After these results, we went back to the oncologist, again does not know what to do. Because they do not know what is wrong with the lung, he cannot do radiation or chemotherapy. They are worried that it could be an infection and it could kill him if he had a compromised immune system from chemotherapy/radiation. We are now over 2 weeks from the results bronchoscope biopsy and still have not staged the cancer or have any plan on treatment. They are discussing surgery but we cannot meet with the thoracic surgeon until the end of next week.
I feel like we are back where we began. I am just so frustrated and know I am just venting. But I kind of feel like we are getting jerked around. I always thought time is not your friend when it comes to cancer. Any thoughts/suggestions would be IMMENSLY appreciated.