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cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

ok 5 weeks after my last chemo, I seen new hair growth, where? not my eyebrows, not my eye lashes, not my hair or even legs, I got my MUSTACHE back!!! bold black hairs coming back on my upper lip!
ok why why :0
hoping that my eyebrows and eyelashes come back and of course the head!
still waiting to get an ultrasound , the docs at U of M found a cyst that may be the cause of the pain I am having in my abdomen . so hurry up and wait again , at least someone is hearing me and believing me that I have pain.
cathy

Gunhild's picture
Gunhild
Posts: 37
Joined: Jul 2009

I don't know why those unwanted facial hairs come back first. It is most annoying. I'm still trying to grow hair on my head and have already got the dreaded facial hair. Doesn't seem fair, does it?

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Not really a funny subject, my I remember my HORROR at looking in the mirror (while on vacation no less) and seeing what looked like a werewolf in the mirror!!! A quick visit to Sally Supply was in order. I actually preferred bald to that look.

threegirlsandme
Posts: 11
Joined: Dec 2009

about 4 weeks after last chemo (August 27th)I had new facial hair growth much like that of newborn babys face (almost downy like), then sprouts of eyelashes at 6 weeks followed by eyebrows. I now have a very think (groucho mark like) set of brows and yes a dark mustach! I have talked myself into a brow and stash wax 2 times, but chickened out at the salon, I was impressed at how easily I was able to convince myself that all the new facial hair was a nice change and was actually attractive on me.
My hair on my head began to sprout at 6 or 8 weeks and now is 1/2 inch long, very thick and dark with lots of "graylights". I wore the free wig from ACS, just ordered a new one (dark blonde and trendy cut) I LOVE it and I look 10 years younger, wish I had done this sooner. Brow wax def this weekend to go with my new hair style!!!
During the chemo, my skin looked glorious, the loss of hair agreed with it, now I have little dots everywhere (except face), slightly irritated looking. I dont mind the wig and def did not miss shaving for all those months. Looking at the silver lining, I guess.
I had minor pain during chemo, felt it was more from the daily nuprogen injections follwing each round of chemo, same with nausea, very mild. Some numbness in feet and hands
I still experience foot pain, mostly in the bones of my heels and balls of feet.
I have mild ringing in my ears frequently and numbness in inner thighs(probably from lymph node removal???) I have noticed a change in my vision, I wear glasses and think I need a new script,was told to wait 3 months after chemo/radaition to let changes settle, has anyone expeienced one or more of these symptoms?
Sheila

deanna14
Posts: 738
Joined: Oct 2008

I had the downy fuzz on my face too, that is gone now (finished chemo the first week of June). And changes in vision... minor except that now I have to use reading glasses. The eye doctor said this could be unrelated to the chemo and just the natural aging of the eyes. I turned 40 this year, but I had Lasik about 10 years ago, so I think maybe we are still learning about the longterm effects of Lasik.
I had basically the same side effects from the chemo that you had and often believed that it was more related to the neupogen as the pain did not come until after I received it.
I am not happy that you have foot pain, but glad that you shared it. I too having been having discomfort in my feet. I have mild numbness in the bottoms of my feet (feels like the floor is buzzing) when I am on them alot, but after sitting for just a short amount of time, my feet ache. I feel like an old woman when I get up to walk as it takes several steps to "walk it off."
I sometimes have this feeling in my left ear, as if someone is tickling it with a feather. Just when I think it will make me crazy, it goes away?!
Any way, just sharing a few strange things I have noticed since chemo...

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

My neuropathy is not quite as bad 10 months post chemo. My vision changed too - got better! Maybe not related but seemed odd to me. And the werewolf hairdo!

deanna14
Posts: 738
Joined: Oct 2008

Don't get me wrong, I am not going to complain about having hair on my head, but it is starting to look like a bushy afro! lol I want to grow it out about shoulder length or a little above. It just keeps getting fluffier and curlier! haha

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

ok not complaining , much more could be happening , but the 5 eye lash hairs on one eye and the 3 on the other , fell out, I have slight new hairs coming in, the eyebrow hairs that were there through heavy face washing and showers , disapeared during my shower tonight, no eyebrows at all now, the faint hair that I have had through scrubbing my head and making sure all hair that was going to fall out did, tonight I had a large amount of hair in the drain! and have very very little hair now,
what is going on? it stuck through thick and thin for 3 months, not a hair fell out (after the initial exodus of my hair) now all my clothes have hair all over them, looks like the days I started loosing my hair,
any one else have this happen? who did not shave their head ? is all my hair going to fall out before the new ones come in?
more important things happening in my abdomen , they cant figure what is hurting , dont think the cyst is the problem but are thinking of doing a biopsy of it , will know more on monday, so this is keeping me laughing and crying , I wanted to not shave my head , thinking that if I can see hair on my head I will not feel sick, and it has worked, now my near white hair on my head, I think I can actually count the hairs on my head,!
sooooooo any one else got this happening,
gonna take one more plc of myself before it comes back in : )
now to take pain pills and go to bed,
cathy

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

forgot to say my last chemo was 6 weeks ago

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Since you are going to your doc this week, please carefully take notes of the pain. I am always concerned that taking pain meds MASKS the pain - and, hence, the info that a doc may need to make an accurate diagnosis and treatment. While, I'm not saying DON'T take the pain meds, I guess I am saying take with caution so you don't miss something important that your very good doc needs to know on TUESDAY!!

Blessings, Mary Ann

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

well it is still up in the air as to if I am going to Dr Liu, it is up to the gov health care,
I am not taking meds for pain, as it doesnt work so would rather not take them then try to stop the pain and not have anything happen..
the pain comes and goes as I move through the day. my gen doc said oh it is slight pain so no worries, oh yea if you are not the one with the "slight pain" that turned into more pain, and then a kick in the pants pain, when I move certain ways , Dr Liu has been keeping with this, when every one else has passed it off as oh that is not that bad dont worry about it,
now "not worrying about it" it has got worse.
if I have to go back to my gen doc they will not know what to look for . they are not cancer specialists , and all they are looking at is the cyst, which Dr Liu says should not be the problem and yes there must be something else there causing the problem.
sooooooooooooooooooooo on goes the medicade rules .

about the hair woke up this morning after shower, pillow covered with hair, down to very few on my head, and still falling out, now I look bad. :(

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I'm curious to see how long my hair will hang on this time, with the weaker dose of weekly taxol. I get my 2nd infusion Monday. My hair is all hanging on but it has lost most of its shine. I cancelled the hair appointment I'd made to have it shaped up and colored again, figuring 'what's the use?' and now it is especially unruly, curling up over my ears and sticking up in wierd places. And the gray roots will be showing soon. But I still am not in a hurry to return to my futile attempts to be 'bald-and-beautiful.' I am washing my hair soooo gently now and patting it into place instead of giving it a good brushing. I remember that this strategy only works for so long, but I'll stick with it until my head starts burning & itching and then I'll yank it all out. I'll keep you all posted and plan to resurrect my baldy photo to use here again. I am thinking of geetting a pale blue page-boy wig this time around!

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

I've been dying to know. Is that a tiger in the picture? I am sitting here with my 19 1/2 year old cat. I guess if it is not a tiger than we can safely assume my vision was changed from chemo and I better get new glasses.

Diane

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

that is a male lion cub at the endangered animal sanctuary in Toronto, I volunteered there for a few years, that was taken when I was around 20 , he was bought from a breeder , then when they realised he was not "just like a dog" tried to sell him at a flea market, a lady rescued him , she had a kennel , she then contacted Bill at the sanctuary and we got him, I was training him not to bite my knee caps and back of head, (his favorite game not ours!) that was a childrens bowling pin in his mouth. he went through a dozen a week !
he was around 4 months old there !

well about my hair, it is now almost gone, shocking, I did have enough scant hair to cover the head lightly, now only a few remain on the top of my head! very white head! gonna cut the rest of them today :(
cathy

kansasgal's picture
kansasgal
Posts: 117
Joined: Aug 2009

Hi, Cathy!

My 6th (and last) chemo (carbo/taxol) was in early October.
First my mustache and chin hair started to grow.
Next were my eyebrows.
Then the hair started to grow on my head.
Finally the eyelashes have started to grow.
I'm still waiting for the pubic hair . . .

As you can see in my updated photo, Maggie's hair and eyelashes are longer than mine, but I'm the winner in eyebrows.

Our entire family is a winner with our granddaughter Maggie in our midst!

Sally

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

How exciting....I didn't know your Grand daughter had arrived...What a wonderful gift!! Bet you are loving every minute of it! Enjoy her....What a great Holiday Season this will be for you!!

A Fellow Kansan.... Karen

deanna14
Posts: 738
Joined: Oct 2008

Cathy,
I finished chemo 6 months ago and have had new eye lashes for a while. Last weekend, my eyes were itching, so I rubbed them. I looked at my hands and there were many eye lashes on my hands. These were the long normal length ones that have been back for months. There are shorter thicker eyelashes in their place. Almost like I am molting! lol
I hope that your hair grows back soon and fast!

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

When I had breast cancer the first four inches of my hair was that curly fuzz. It went away after that hair was cut off. So don't think you will have chemo curls or fuzz forever!

Diane

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

My gyn Onc told me the foot pain (neuropathy) is worse at four months post chemo, and the worst time is four to six months post chemo. This is a delayed reaction from carboplatinum. I had chemo before and it is cumulative in causing neuropathy so I have more than most of you gals. I take medication. I am on lyrica and a couple other meds; I noticed when I took the lyrica the ringing in my ears stopped. My Gyn Onc treats the pain until you are post the six months and then re-evaluates the pain. For some it becomes chronic especially if you had chemo before. Mine is well controlled and I can do most things but not body step. My vision got a little worse after chemo.

Enjoy your new wig. It sounds cute and I am amazed at all the cute ones that are out there now. Give your body time to heal. You are on the way!

Diane

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

Some women get pain all over the abdomen after chemo. My gyn Onc told me that it was from the cells sheeding inside (the healthy ones and cancerous ones). With each chemo about six days afterward I felt sore all over the abdomen. I cannot diagnose you but you need to watch it. I didn't take pain pills during the day but after the last few chemo's I'd get so sore that I would take pain pills at night so I could sleep. I think that is OK. Keep intouch with your Doctor about the pain. Try to describe it in as much detail as you can when you talk to him.

Regarding hair, I just shaved mine all off at one time and switched to the wig. This time I found a wig that is made for chemo patients and found it be very comfortable. Summer time is the hard time to wear it. Alot of gals love scarves or the bald look. When I had breast I had hotflashes so did the bare head at home. This time I liked my cute wigs and I think it gave my hubby a small sense of normalcy while he was caring for me since that taxol whips me. I looked at it as a challenge; trying to fix myself up in new ways. at home alone I loved just being bald.

Diane

princepack's picture
princepack
Posts: 18
Joined: Dec 2009

OK. I haven't even had my hysterectomy yet (more scared about that than the cancer itself). Open abdomen on Dec. 29 and the doctor told me not to jump to conclusions yet, he hopes there is just a polyp of the UPSC stuff and I'll be all better. My thought is that it is more than that and I'm going to have to have the chemo like "everyone" else. Anyway about the hair thing... I'm cutting it all off before I even have the surgery! I don't want to mess with it after the surgery and I've shaved my head before - 1st time was after my mother-in-law died from lung cancer and a bunch of us did it in rememberance of her (of course I was the only girl that did it), and the second time was when one of my friends had to have chemo and she was really upset about going bald. So, I told her, "When you go bald, I go bald." She came to work one day and took off her hat to show me her shiny head and I was shaved the next day right along with her. Hair is very overrated for me.

I am sorry that you all have to worry about your hair. I pray that you can be at peace with it.

It will be interresting to see if I truly lose it, how it does start growing back though.

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

finaly gave in and had my faint amount of hair , that was falling out , clipped off,
first shower got a lot of old dry skin up and off the scalp, now I have a few spots that are hard and dry
tried hand cream tried aveno dry skin cream, had a friend send me head lube :) funny, that is for guys who shave their head often :)
tried it any how, will see what happens tomorrow, any other ideas? hair is coming in slowly, have a very faint length of hair , but scalp very dry only in a few spots, helppppppp thanks
cathy

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Since this works for dry hands, it would probably work for scalp too. I think a light layer of petroleum jelly covered with a cap would moisturize the scalp.

Good luck.

cathyK's picture
cathyK
Posts: 88
Joined: Jul 2009

Ill try that thanks, and maybe bag balm or hoof maker, we used that a lot at the race track for horses and humans :)

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I made it through Christmas, with three 1/3-strength weekly taxol infusions in me so far, but today my shoulders are covered in fallen hair and if I even gently scratch the back of my head at least 10 hairs are clinging to my fingers. My scalp has that familiar itching/burning I rememebr from last time. I even slept with a sleeping-hat on last night because I didn't want to wake up with my face on a hairy pillow. My remission hair is about to be history and my bald look returning. The GOOD part of this is that my grey roots are starting to grow in, and I can't touch them up with color since I'm back in chemo, so the hair I am starting to lose is UGLY. That actually helps make it easier! How twisted in that? I wanted to try and look as normal and healthy as I could for my Christmas company, so I'm happy I was able to pull that off and reassure everyone who doesn't look too closely or too deep. After chemo tomorrow, and once I get my appointments for my daily Neupogen the rest of the week, I plan to make an appointment and get my loosey-goosey hair clipped close to the scalp so the rest of the fall-out won't be this messy. I'm hoping my lashes and brows hang in a little while longer. At least it's HAT season here!

I am feeling really good with my treatments. So far so good! It was wonderful to have my family in for the holidays and now I am busy washing sheets and towels as they are all headed home. I enjoyed my 3 days off of treatment, but am ready to get back into battle mode tomorrow! ((((Hugs)))))

Ro10's picture
Ro10
Posts: 1483
Joined: Jan 2009

So glad to hear you enjoyed your company for the holidays. Glad you are feeling well with your 1/3 strength weekly treatments. I am glad your hair made it through the holidays, too. I know it must be hard to lose it again. I am glad you are ready to continue the "battle mode". You are such a fighter, admired by many.

I go for my lab test tomorrow, and find out if I will need another CAT scan. I am hoping to hold off until March before I need to go on treatment again. That way I can go back on the Taxol/ Carbo. I know I tolerated those drugs okay.

Hope all continues to go well for you and your CA 125 continues to drop. As always you remain in my prayers, as do all our other sisters on this site. In peace and caring.

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Ro....I will be counting on your lab work tomorrow to be A-OK! Best of everything to you and huge hugs coming your way!

Karen

Ro10's picture
Ro10
Posts: 1483
Joined: Jan 2009

I read where baby oil helps the dry itchy scalp. I tried it and it did help me. I have such dry skin anyway that I liked the baby oil. In peace and caring.

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