vent
Comments
-
Shortscake I am sorry you
Shortscake I am sorry you are having such a tough time with your energy level. I am very aware of what you are expressing. To be honest with you most likely you will become more tired with each additional chemo session. I had 18 chemo infusions in the span of a little over a year and by the end of it I was exhausted. The good news is that once treatment is over you will notice your energy level begin to rise slowly but surely. Please don't be so hard on yourself, you are getting chemo and it makes you tired. It is important to get a lot of rest while in treatment because your white cell count is usually down and you are open to infections. Don't feel guilty if you need to nap or sleep in longer, this is not forever only for now.
Now let me say that you are more than welcomed to come here and vent anytime you feel the need. We are here for you!
♥ RE ♥0 -
shortscake,tired is part of the treatment
We have been there, I fall asleep at the oddest times and am wide awake at 3 am, playing on the pc. I too was very active and independent
Try other fluids too, not just water, gator aid was recommended, and I was told only 2 bottled waters, tap water is ok. Of course our tap water is lousy but chemo is worse!
Remember it will be done at some point, and your energy will return.
Get your rest.
Peace0 -
shortscake...
Hello...very sorry for your dx.
I agree with what has been said here. All very normal. Chemo saps your energy, destroying some good cells along with the bad.
Listen to your body right now. Rest when you need to, even if your mind isn't tired. You are receiving very strong drugs at present and your body is going through a lot.
But as was stated, it will end at some point. Think of it as just a temporary thing and it may help you to get through it easier.
My best to you...
CR0 -
Time to restCR1954 said:shortscake...
Hello...very sorry for your dx.
I agree with what has been said here. All very normal. Chemo saps your energy, destroying some good cells along with the bad.
Listen to your body right now. Rest when you need to, even if your mind isn't tired. You are receiving very strong drugs at present and your body is going through a lot.
But as was stated, it will end at some point. Think of it as just a temporary thing and it may help you to get through it easier.
My best to you...
CR
As others have said ... listen to your body. When it says "rest" ... rest. Since my diagnosis I have totally retrained myself to think of myself. Sounds silly ... but I've had to teach myself to put ME first. I had to learn to be selfish ... and that was hard. I had to learn to say "no" when people would ask me to do something I really didn't feel like doing. I had to let people know I was tired and needed to rest. I had to tell myself that I was NOT superwoman ... and I had to listen to what my body. So ... don't feel guilty about feeling as though all you want to do is rest. It's perfectly normal considering what your body is going through. So ... don't fight it ... and you will eventually find your energy level returning.
hugs.
teena0 -
I was amazed when you weretgf said:Time to rest
As others have said ... listen to your body. When it says "rest" ... rest. Since my diagnosis I have totally retrained myself to think of myself. Sounds silly ... but I've had to teach myself to put ME first. I had to learn to be selfish ... and that was hard. I had to learn to say "no" when people would ask me to do something I really didn't feel like doing. I had to let people know I was tired and needed to rest. I had to tell myself that I was NOT superwoman ... and I had to listen to what my body. So ... don't feel guilty about feeling as though all you want to do is rest. It's perfectly normal considering what your body is going through. So ... don't fight it ... and you will eventually find your energy level returning.
hugs.
teena
I was amazed when you were talking about the shopping you were doing. Chemo is tough and you have to pace yourself. I have had many a teary day frustrated and angry because most times I do nothing, but clean a little or some laundry. thats it. I always worked , like to go out. I got debilitated from GI issues so I think I may be more extreme as it kind of keeps me home. someone said to me that i just may have to accept it is this way for the chemo a bitter pill to swallow. I enjoy my good days and go with the bad ones, I am concentrating on keeping myself well, concentrating on rest , nutrition, hydration. etc... so try to keep yourself wellas you can can be during chemo, to recover quickly after. And keep your fighting nature it will get you through. I have a feeling you will do well.0 -
So sorry Shortscake. I
So sorry Shortscake. I believe you read my post to the newbies. We say "I am fine" even though we feel like we are being ripped to bits, the way you feel is normal. If you don't feel like resting, take a 30 min walk, or go to the library. I enjoyed going to the mall and walking around, especially at Christmas. Remember, you will get better. You will be stronger than you ever were. I wish you luck with rest of your treatments.0 -
and remember 2 down thatsmeena1 said:So sorry Shortscake. I
So sorry Shortscake. I believe you read my post to the newbies. We say "I am fine" even though we feel like we are being ripped to bits, the way you feel is normal. If you don't feel like resting, take a 30 min walk, or go to the library. I enjoyed going to the mall and walking around, especially at Christmas. Remember, you will get better. You will be stronger than you ever were. I wish you luck with rest of your treatments.
and remember 2 down thats important!!!!0 -
Yes I know what you mean. I
Yes I know what you mean. I felt like all I did was rest, too. Shopping was a huge effort and emotions can take over when you feel overwhelmed. It seems like everything you do is exhausting. It is hard to just lay around when you are used to being busy but your body just won't allow you to do the things you want to do! Just remember it will pass! Maybe you can catch up on some movies, books or a craft you enjoy. Like the others have said, remember to keep yourself hydrated! It is so important. I'm hoping the time goes by quickly for you!0 -
sorry
thanks everyone for your in put, resting, sleeping all day makes me stay up most of the night and boy is there is some crazy shows on at night...lol..thanks i know this to shell pass.0 -
Hi Shortscake --shortscake said:sorry
thanks everyone for your in put, resting, sleeping all day makes me stay up most of the night and boy is there is some crazy shows on at night...lol..thanks i know this to shell pass.
Listen to these ladies, they sure know what they are talking about. Let your body do the talking to you and listen to it. You can only do what you can and enjoy those crazy shows! Thank goodness for cable, I got to hating those infomercials!
Bless you!
Pat0 -
Heypadee6339 said:Hi Shortscake --
Listen to these ladies, they sure know what they are talking about. Let your body do the talking to you and listen to it. You can only do what you can and enjoy those crazy shows! Thank goodness for cable, I got to hating those infomercials!
Bless you!
Pat
You vent whenever you want on here. That is why we are here, to always be open. You just take good care of yourself! That is an order from TinkerLex!
Lex♥0 -
Chemo zaps our energy. I was
Chemo zaps our energy. I was working full time till I started chemo, now I have to plan one thing a day and thats it. That one thing can be doing a load of laundry and then resting. I hope you are not feeling guilty about not doing much. We for the most part are all doers and not be-ers. It's tuff to just sit and do nothing, but if your body says stop and rest, its highly advisable that you listen to your body and not your mind. If there is any guilt please get rid of it today. Your body has been traumatized and it needs to rest. Yes you have cancer and its ok to tell people if you are so inclined. Be easy on yourself. Hugs0 -
I remember exactly what younatly15 said:Chemo zaps our energy. I was
Chemo zaps our energy. I was working full time till I started chemo, now I have to plan one thing a day and thats it. That one thing can be doing a load of laundry and then resting. I hope you are not feeling guilty about not doing much. We for the most part are all doers and not be-ers. It's tuff to just sit and do nothing, but if your body says stop and rest, its highly advisable that you listen to your body and not your mind. If there is any guilt please get rid of it today. Your body has been traumatized and it needs to rest. Yes you have cancer and its ok to tell people if you are so inclined. Be easy on yourself. Hugs
I remember exactly what you are talking about. I finally had to limit myself to shopping at smaller stores like CVS or Walgreens and stay away from the super stores like Walmart and Target. And it was kinda fun to go in the small stores and look at the makeup or whatever... Maybe you could try puzzles or some type of craft. I remember I spent a lot of time doing pretty much nothing. It will get better!!
Beth0 -
You are still working!
Maybe it will help you feel less guilty if you remind yourself that you are still working--very hard! Your body is working very hard to deal with the chemo and the cancer dying. So you can tell yourself you are NOT lying around doing nothing--you are working hard at killing the cancer and healing! That takes a whale of a lot of energy! You deserve to rest more with all that hard work you're doing.
No, everything is not OK, but you are working hard to make it OK, or at least to make it a lot better. Give yourself permission to be tired and to rest while you're doing all this hard work. And of course your days & nights get all mixed up with all of this work, because the type of work your body is doing doesn't stop at night to let you rest and doesn't stop during the day to let you do other work--it just keeps going and going, like the Energizer bunny, 100% focused on ONE type of work.
Maybe you can tell us all the best late-night shows to watch--we need some good laughs, you know!
Hang in there! We're all rooting for you!
Sandy0 -
I also find one day isLadyParvati said:You are still working!
Maybe it will help you feel less guilty if you remind yourself that you are still working--very hard! Your body is working very hard to deal with the chemo and the cancer dying. So you can tell yourself you are NOT lying around doing nothing--you are working hard at killing the cancer and healing! That takes a whale of a lot of energy! You deserve to rest more with all that hard work you're doing.
No, everything is not OK, but you are working hard to make it OK, or at least to make it a lot better. Give yourself permission to be tired and to rest while you're doing all this hard work. And of course your days & nights get all mixed up with all of this work, because the type of work your body is doing doesn't stop at night to let you rest and doesn't stop during the day to let you do other work--it just keeps going and going, like the Energizer bunny, 100% focused on ONE type of work.
Maybe you can tell us all the best late-night shows to watch--we need some good laughs, you know!
Hang in there! We're all rooting for you!
Sandy
I also find one day is better than another, today I am in a fog. no energy, dont feel like eating, yesterday I felt better ??? take it as it comes. these are the days I get down, I find on taxol I have better days, AC was hard. You can always vent here everybody gets it! i did not to long ago and the responses just buoyed me up. such caring people.0 -
battle of the mindcarkris said:I also find one day is
I also find one day is better than another, today I am in a fog. no energy, dont feel like eating, yesterday I felt better ??? take it as it comes. these are the days I get down, I find on taxol I have better days, AC was hard. You can always vent here everybody gets it! i did not to long ago and the responses just buoyed me up. such caring people.
I faced the battle of cancer but other battle I faced was me, the battle of my mind. I was so tired from chemo, I would wake up in the morning and had to lay right back down. The guilt started to take a hold of me because I felt it was wrong to have to lay down so much. It took my sister staring me in the eye to say stop it, you do what your body tells you. It took me a while to let myself feel that way. There are so many thoughts that run through a person's mind. The cancer treatments, the doctors, the fears, the reports all that stuff came on me so fast that most of the time i felt like my head was spinning. It didnt' take me to long to allow myself to rest, not just my body but my mind. A peaceful heart works wonders. You have to stop, drop and roll. I to would walk into the grocery store and just start crying, i hated that, I didn't want sympathy, I didn't want people asking me whats wrong. My doctor put me on elixifor, I am not spelling that right, she said i needed it to help balance my mood swings. Physicaly your body is going through some tramatic changes and your life has changed. None of us asked for this to happen we didnt' beleive for it but we got it. Your heart and feelings run like the waves of the ocean, we get tossed to and fro. Do what you need to do to make sure you are comfortable. Cozy blanket, soft pillow, good books, movies, crossword, snacks, music, silence, and most of all, the right to rest any time of day, you sleep all day and are awake at night, so be it. No guilt for doing nothing. Your body is working over time just dont' allow your mind to. I really thank God for these discussion boards, wish I had known about them ealier but what ever I am grateful for them now. I am still facing challenges but I am not alone. God bless you, stay peaceful and stay in touch with these fabulous people on here. Your in our prayers and hearts0 -
How are you doing now?marywest said:battle of the mind
I faced the battle of cancer but other battle I faced was me, the battle of my mind. I was so tired from chemo, I would wake up in the morning and had to lay right back down. The guilt started to take a hold of me because I felt it was wrong to have to lay down so much. It took my sister staring me in the eye to say stop it, you do what your body tells you. It took me a while to let myself feel that way. There are so many thoughts that run through a person's mind. The cancer treatments, the doctors, the fears, the reports all that stuff came on me so fast that most of the time i felt like my head was spinning. It didnt' take me to long to allow myself to rest, not just my body but my mind. A peaceful heart works wonders. You have to stop, drop and roll. I to would walk into the grocery store and just start crying, i hated that, I didn't want sympathy, I didn't want people asking me whats wrong. My doctor put me on elixifor, I am not spelling that right, she said i needed it to help balance my mood swings. Physicaly your body is going through some tramatic changes and your life has changed. None of us asked for this to happen we didnt' beleive for it but we got it. Your heart and feelings run like the waves of the ocean, we get tossed to and fro. Do what you need to do to make sure you are comfortable. Cozy blanket, soft pillow, good books, movies, crossword, snacks, music, silence, and most of all, the right to rest any time of day, you sleep all day and are awake at night, so be it. No guilt for doing nothing. Your body is working over time just dont' allow your mind to. I really thank God for these discussion boards, wish I had known about them ealier but what ever I am grateful for them now. I am still facing challenges but I am not alone. God bless you, stay peaceful and stay in touch with these fabulous people on here. Your in our prayers and hearts
How are you doing now Shortscake?0 -
bettercarkris said:How are you doing now?
How are you doing now Shortscake?
I am doing better still feel bad about not doing anything but resting most of the time all i do is sleep all day. I try to do a little cleaning have to rest and take a short nap.0 -
i fell your pain
Shortscake....
I had 4 chemo tx's, ending Sept 21st, 30 rads and just started Monday on Tamoxifen.
While on chemo tx i was to sick to work and do anything. I was so sick....so days walking to the bathroom was to much so i laid down in the floor and cried. I got fatigue also. My better days went to buy some groceries to the store to come home out of breath. Some days i was even to sick to go to church....but it over....Thank God...some days still out of breath but not like while chemo. rads were much better and was able to go back to my f/t job. Tamoxifen is making me a little sick and migraine headaches but i hope is until i get use to.
keep on smiling...i did that to while i was very sick...
Go treat yourself for a pedicure, massage, something you like to make you
feel a little better....
you can vent anytime...thanks why we are here....
hugs your way.....and a big kiss to make you feel better...0 -
Hi shortscake
I agree with most of the posts telling you to rest when you can, but I also know the value of continuing to exercise. I was on adriamycin/cytoxan every other week for 8 weeks and I was short of breath climbing a flight of stairs or walking up a hill by my house.... and I have been a runner for 19 years. Chemo is tough and I do agree with resting, but continuing to do some form of exercise will really help the fatigue. Try walking with a neighbor or a family member...dont push it but do it every night. Do it all the way thru chemo and it truly will help you feel less tired.
Also remember...you are on chemotherapy and you will have a new normal for a while. It took me 6 weeks before I realized that I was on chemo I wasnt supposed to feel like I did a year ago.
By the way girl, you vent anytime you want to...we have all been there and done that. WE are all here for you.
Hugs
Linda T0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.6K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 308 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 671 Leukemia
- 791 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 234 Multiple Myeloma
- 7.1K Ovarian Cancer
- 56 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.4K Prostate Cancer
- 1.2K Rare and Other Cancers
- 534 Sarcoma
- 719 Skin Cancer
- 646 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards