Nov 30, 2009 - 8:14 am
I plan to get my PEG removed next week and wanted to hear from those who have had theirs done re: what to expect in the pain side, recovery time, stitches etc.
I am in my 8th week out from completing treatment which was 7 weeks of RT (70 Hits) and Once a week Erbitux. Have had the tube in since week 3 of treatment so approx 12 weeks total. I have a little bit of pain around the insertion point probably from the PEG getting hit and pulled by clothing and picking up my kids. There is usually a small amount of muck around the entrance which I clean regularly when I redo the keyhole dressing.
I'm feeling OK and eating reasonably well - softer foods always with soup or water on hand as I have the dry mouth issue. I am still putting a feed of Vitashake with Vital Greens in the tube once a day but I can drink the shake now so am not concerned about maintaining and regaining the 20kgs I lost during the treatment and weeks after.
I intend on international travel about 8 days after the removal so recovery information is a priority.
Any information from those who have had the PEG out is warmly welcome.
Thanks in Advance.