Nov 28, 2009 - 5:05 pm
My husband finished his radiation treatment (33 treatments) and chemo (3 days a wk, 3 separate times) on 10/8/09. Four weeks into the radiation he began using the peg. He has about three or four ensure plus a day which in my opinion is not sufficient (lost 45 lbs.). He is just about eight weeks post treatment and can't eat solid food. Water is even painful. I have actually taken him to a speech pathologist for swallowing therapy. She gave him some exercises to work on. She said even if you can't get the food down, it is important to practice swallowing. He is in pain most of the time and the morphine causes constipation and can make you hallucinate. Spitting is ongoing and he is not able to lay down for more than 10-15 minutes because he chokes. Good news is the Ent says they see no cancer, just flesh on the tongue. The pet scan is in two weeks. I am just trying to gather info on when the pain may subside. I realize everyone is different but any info is helpful
I also want to say that any one married to a cancer patient needs to be strong. The patient is doing the best they can and sometimes that means getting depressed, angry and frustrated (alot). As a wife I tell you not to take it personal and take several trips outside the house. Make sure you take care of yourself because your the primary caregiver. Watching someone in pain for a prolonged period of time doesn't help you or the patient. Step away and get your own support.