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Ewings Sarcoma - in chemo - does someone understand??

redneckgrl609
Posts: 1
Joined: Nov 2009
Nov 27, 2009 - 3:54 pm

Well, I was diagnosed with Ewings Sarcoma in June 09. I'm in chemo now. I took to the first 6 rounds (orange stuff on a pump) really well with very little issues. Now I'm on a new kind & I hurt. I ache and I'm tired.
My husband and I have had problems long before I got sick. But me getting sick has amplified everything. I'm sick of hearing him say he knows how I feel. No he doesn't. I'm tried to explain that to him as nicely as I can, but have gotten very little change from him.

Really, I think I want a divorce. Cancer is hard enough. Sometimes he is great and makes me feel good. But most of the time he is a jerk. I'm the one making sure the kid's homework is done, that they do their chores, etc. I have ALWAYS worked (not prearranged that way) and he has not. When I got sick, I told him he needed to get a job, any job... He has never even looked.

I feel guilty that I'm not providing for my family like I used to. I feel lazy that I sit around all day doing NOTHING... It's driving me crazy!!!

Does anyone have any advice for me? Does anyone get where I'm coming from with issues with family members??

I have to start radiation now - after the doc said I wouldn't have to. And that scares the crap out of me! I am tired of things changing...

gbworld
Posts: 1
 Joined: Dec 2009
Dec 09, 2009 - 11:16 pm
I understand somewhat

My daughter Miranda was diagnosed with Ewings in 2007, so I somewhat understand what you are going through from watching her. I am not sure about your husband, but this disease is hard on the entire family, and this might be his way of coping. And cancer magnifies things. I am not sure I can condone his way of coping, but I would try therapy of some sort prior to taking a step that will magnify any financial problems the cancer might be causing.

Radiation is still very common for adults with Ewings. This is due to the fact that adults cannot handle the chemo kids go through for the disease. Radiation means they are not confident they got everything. I would talk to your doctor frankly about the radiation, however, and make an informed decision on whether or not it is necessary. Often times adult oncologists are not well versed in childhood cancer, so make sure it is not a knee jerk reaction. Talk to a pediatric oncologist for a second opinion if you don't like his answer.

My daughters site is www.caringbridge.org/visit/mirandabeamer. Leave a message if you want to connect.

Peace and Grace,
Greg
LindaDawn
Posts: 18