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tracking after medical treatment over

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

dear upsc sisters,

to those of you who have finished chemo/radiation, could you let us know what you and your doctors are using to track what's going on for you, and how frequently? ca125? cts-scans? or something else altogether?

thanx for the info. i hope ypu'll all be having happy holidays.

warmly,
maggie

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thanx for your reply. happy holidays to you as well.
maggie

livenow09's picture
livenow09
Posts: 63
Joined: Apr 2009

ALOHA JILL

SAME HERE, UPSC STAGE 1A; 8 CYCLES OF CHEMO (CARBO/TAXOL), BUT NO RADIATION; TWO EXTRA CHEMO CYCLES AS CA 125 KEPT GOING STRAIGHT DOWN AND DIDN'T LEVEL OFF; DR FELT "IN HIS GUT" THERE WERE A FEW MORE CELLS LURKING AND WANTED TO GET 'THEM' ALL; SEE THE GYNO/ONC EVERY THREE MONTH FOR PAP, BLOOD WORK (CMP, CBC W DIFF AND CA 125, ALSO A GOOD MARKER FOR ME); DR WILL DO SCANS IF CA 125 GOES UP MORE THAN 5 POINTS IN THREE MONTHS OR I REPORT SYMPTOMS, ABDOMINAL BLOATING, PAIN; GOING FOR MY FOURTH 3 MONTH CHECK UP ON 12/9; SO FAR SO GOOD; DR IS SOOO POSITIVE IT'S NOT COMING BACK (I JOKE SAYING "OF COURSE THE UPSC'S NOT COMING BACK; YOU TOOK ALL THE WORKING PARTS OUT");CELEBRATED ONE YEAR POST CHEMO ON THANKSGIVING DAY 11/26; KEEP DANCING

MARIE

hotfoot7
Posts: 5
Joined: Dec 2009

Hi Jill

new to this but your post is the first I've seen to mention confined to a polyp w3hich is what my variation of this cancer was so it jumped out at me!
I had total hysterectomy end of sept this year and have been told no radio,chemo or even followups are required which obviously I am real happy about,but slightly nervous!
I think that initial diagnosis of cancer has made me very jumpy and I am finding it hard to believe I have got off this lightly(although the hysterectomy was fairly major!)

cheers
Sue

hotfoot7
Posts: 5
Joined: Dec 2009

thank you Jill

your quick response to my query is MUCH appreciated and has made me feel a lot less anxious about it all.
I did ask my doctor about the non surveillance bit on my discharge notes and she just said 'well there it is in black and white written by the hospital consultant' but like I said I still had a niggling doubt and a couple of friends also found it strange.
I also feel a bit guilty now reading about what you girls are going through(tears well up now and again) and I can only wish you all the best of b****y luck and hope you all come through this horrible thing.

with lots of love and god wishes from across the pond

Sue x

hotfoot7
Posts: 5
Joined: Dec 2009

Hi Jill

me again!
I have just got my discharge letter out again and what it actually says is:uterine serous carcinoma FIGO stage 1a pT1a and on the biopsy report it stated confirmed clear cell endrometrial adenocarcinoma
so I guess that means I didn't have 'regular' endometrial cells did I?
I have to see my GP on Monday to get permission to back to work and I am going to ask her if I can have some sort of followup observation in light of what I have seen on this website.
Anyway will keep you posted.

Sue

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Maggie....you might want to check the thread called: Remission scanning- How Often...it was posted 8/30/09 and is about on page 4 of the threads for Uterine Cancer. Several ladies have indicated what their follow-up consists of and you might find it helpful.

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

thanx alot for your response. i will check out your suggestion.
happy holidays,
maggie

california_artist's picture
california_artist
Posts: 860
Joined: Jan 2009

http://www.nccn.org/professionals/physician_gls/f_guidelines.asp

That will get you to a site where there guidelines spelled out.
Hope it give you the answers you are looking for.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

It sounds like you have stage 1a uterine papillary serous carcinoma (UPSC) like many of us do. You have the "best stage" is there is such a thing. UPSC is rare and aggressive. Many of us have this - I'm stage 3a. You can check treatment protocols at nccn.com.

Blessings and light, Mary Ann

hotfoot7
Posts: 5
Joined: Dec 2009

thank you for your message,it's made me feel not so alone in this(I'm quite an anxious sort of person I think) and it doesn't take much for my morbid imagination to go haywire LOL
I will check out those treatment options.

Cheers

Sue

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