Nov 25, 2009 - 4:42 am
I was curious if there was anyone out there diagnosed with a Neuroendocrine Carcinoma of the Common Bile Duct. I was diagnosed last year and underwent a Whipple procedure. I've looked all sorts of places and so far I haven't been able to find anyone else that has had this. One thing I heard from every doctor I encountered was that this diagnosis was very rare. It almost made me uneasy to think that none of my doctors have ever dealt with this before and everyone was pretty much taking it one step at a time and not really giving me any answers. I was told that with this type of cancer chemo or radiation isn't effective, so I have only had surgery. I know it sounds ridiculous but because I have not gone through chemo I feel like I almost can't complain because I have not suffered near as much as other cancer patients. I would also like to hear other people's first hand experience after having a Whipple procedure. I have had a lot of complications and two days from now will be exactly one year after my surgery and I am still having some issues.