Nov 22, 2009 - 12:43 pm
Can somebody please help me. I have Hodgkin Lymphoma nodular sclerosing. I've had it for 2 years now and 4 different types of chemo treatments. ABVD, ICE, GVD and now mini BEAM. they are still trying to get rid of it enough to get a stem cell trans. My terrible insurance company Health Assurance (I feel bad for anybody who has this) has made me switch oncologists. Now, so much time has gone by, this cancer will not go away. My new oncologist wants to give me and Allogenic SCT (my other onc always talked about the AUTO). So now I need an ALLO which has so much more of a risk. I'm sitting here at West Penn Hospital in Pittsburgh getting MINI-BEAM. The nurses here are very incompetant. I'm very scared for my life to get a SCT here!!!!!! Has anyone been to Cleveland Clinic for a SCT and if so, how did it go? The nurses, your treatment, the rooms? Are there nurses walking around coughing and sneezing?