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herceptin side-effects



Total items found: 18

gilli
Posts: 18
Joined: Jul 2009
November 22, 2009 - 8:38am

Is anybody else having side-effects from herceptin? Mine aren't too serious but am curious to connect with others who are also on the treatment because the oncology centre said most people don't have any side-effects and it makes me feel "spacey" a few hours after getting it and I also feel more tired from it.

Sher43009's picture
Sher43009
Posts: 601
Joined: Nov 2009
November 22, 2009 - 9:38am

I also get spacey and tired the day of infusion. Along with herceptin I'm getting benedryl to ward off an allergic reaction. That's what makes me spacey. I don't work that day or do much of anything but I'm fine the following day and able to work.

Sher

Katz77
Posts: 602
Joined: Sep 2009
November 22, 2009 - 10:34am

I have the same. I think it's the benadryl. They had me on 50mg and onc doc lowered it to 25mg. That seemed to help. Still will rest and take a little nap though. It helps ward of the " fuzzies". Hope this helps you.

lafera12
Posts: 63
Joined: May 2009
November 22, 2009 - 7:05pm

It is the benadryl that is making you fuzzy..
I was getting that along with other pre-drugs when I was getting Taxol/Herceptin.
Actually I ended sleeping through most of the treatment and would wake up in time
for the Herceptin (which was only 1/2 hour.
With Herceptin alone, I passed on the benadryl and I was fine, just had the other
pre-drugs.

Good luck

gilli
Posts: 18
Joined: Jul 2009
December 2, 2009 - 4:32pm

I do not know what benadryl is but I am not on it. I also get funny, short-term headaches from the herceptin. Really momentary ones. But mostly I am fine. Scheduled to have it again on Monday.

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susie09
Posts: 2547
Joined: Jul 2009
November 22, 2009 - 7:48pm

I have never had it gilli, but, I wanted to welcome you and to wish you good luck. Hope you feel better.

mlmjt1
Posts: 540
Joined: Jul 2009
November 22, 2009 - 10:45pm

Im on herceptin every 3 wks. I actually had an allergic reaction to the benadryl so I get pepcid instead along with tylenol as a premed and feel fine after the herceptin. Maybe your oncologist could give you something other than benadryl so you wont feel so spacey afterwards.

Hang in there
Linda T

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Angie2U
Posts: 2156
Joined: Sep 2009
November 23, 2009 - 12:20am

Hi Gilli! Be sure and talk to your oncologist about this. Hopefully he can give you something to make you feel better. Best of luck!

Angie

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VickiSam
Posts: 5561
Joined: Aug 2009
November 23, 2009 - 3:19pm

Herceptin for 12 weeks straight .. no breaks in action to speak of ... fatigued, bone aches and blurry vision are my side efforts .. I have also chosen to check out ...

chemocare.com and get additional information .. a website the majority of our oncologist and health care providers wish we breast cancer patients did not have access too.

Talk to onc .. and bring printed out info, as I have done ... you may get a dirty look from your doctor and staff, oh well!!!

HERCEPTIN .. has all the same side efforts of any other chemo drug, EXCEPTION: Hair loss.

VickiSam

gilli
Posts: 18
Joined: Jul 2009
December 6, 2009 - 2:54pm

I ma intrigued that you have had herceptin for 12 weeks straight rather than every three weeks. I am finding all these comments fascinating as I do not know anyone else who is on herceptin.

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jennN
Posts: 40
Joined: Oct 2009
November 23, 2009 - 3:46pm

I'm on Herceptin too. I'm not sure what's a side effect from the chemo vs. Herceptin because I get them all in the same day right now. I do have blurred vision...and my eyes pulse for weeks after treatment...very irritating.

Sher43009's picture
Sher43009
Posts: 601
Joined: Nov 2009
December 2, 2009 - 6:00pm

I had my 2nd of 17 herceptin treatments last week and started with the itchy skin. It's not as bad this week as last as long as I don't touch my neck. I was told to put aloe on it or soak in aveeno oatmeal bath. I also started rads last week so I wasn't sure which was the cause. Rad tech and nurse say it's the herceptin.

gilli
Posts: 18
Joined: Jul 2009
December 6, 2009 - 2:57pm

Fascinated to hear about the itchy skin. My neck has been itchy but I thought it was from the radiation, even though I finished that about four months ago.

jolenew's picture
jolenew
Posts: 39
Joined: Sep 2009
December 2, 2009 - 6:33pm

Hi gilli
I was on Herceptin for almost one year and the only real side effect I had was that it made me feel tired and run down. They stopped the Herceptin because it had caused my heart to enlarge, which is now almost back to normal.
Good luck to you

gilli
Posts: 18
Joined: Jul 2009
December 6, 2009 - 2:55pm

Glad things are looking up for you again.

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ladybug22
Posts: 602
Joined: Sep 2008
December 2, 2009 - 10:07pm

i had no side effects with hereptin i was on it for over a year

gilli
Posts: 18
Joined: Jul 2009
December 6, 2009 - 2:56pm

You are very lucky! Although mostly I am ok.

gilli
Posts: 18
Joined: Jul 2009
December 8, 2009 - 11:46am

How ironic. I posted this query re herceptin side-effects out of curiousity. Now, am feeling so yucky today following yesterday's treatment, my 7th, that I had to leave work early. Am fine, just headachy, if I don't move around.

gilli
Posts: 18
Joined: Jul 2009
December 8, 2009 - 11:47am

How ironic. I posted this query re herceptin side-effects out of curiousity. Now, am feeling so yucky today following yesterday's treatment, my 7th, that I had to leave work early. Am fine, just headachy, if I don't move around. But when I do, feel awful. Kinda dizzy.