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The problem patient again - more port issues



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Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1123
Joined: Sep 2009
November 21, 2009 - 2:19pm

Of course I had to be the difficult patient again. My port would not work for blood draws, and they didn't think it was even going to do very well for infusions. After trying to flush it several times she had me put my feet up, no go. Then she tipped me back with my head low, no go. Then lay on right side - nothing. Then lay on left side - bingo - we got some blood coming out. But not much. Another flush and nothing. Another flush and just a little blood. So I had to have a chemical injected to clean things out. They felt something was on the other side blocking everything. I had my labs drawn from my arm again.

I must have had a chemo crystal or blood clot or something blocking my port. Now it might be coincidence, or it might be connected, but after they did this my pain in my right collarbone and right shoulder that I have had ever since this port went in cleared up.

Anyone else have anything similar to this happen? I had one other day they couldn't draw labs from my port. I've only had it for a month. This was only my third chemo cycle. I did have a small blood clot in my arm last week. I'm wondering if I had another one by my port?

geotina's picture
geotina
Posts: 1736
Joined: Oct 2009
November 21, 2009 - 6:16pm

George had trouble getting blood draws through his port so they took it from his arm. He had no problem with the chemo going in so rather than go through all the hassle every time trying to get blood from the port, he just has his blood draws from he arm. You are not the only one with port prolems.

PamPam2's picture
PamPam2
Posts: 385
Joined: Jan 2009
November 21, 2009 - 6:27pm

Mine was the same, could never get blood out, but did work to put the chemo in, that's the most important thing.
Pam

coloCan
Posts: 1401
Joined: Oct 2009
November 21, 2009 - 6:37pm

Mine only worked 60 % of the time because the line had moved up against blood vessel wall. Then no one told me it needed to be flushed every few weeks so when needed for postop chemo, it wouldn't work at all so now I have a PICC line sticking out of me (with old port still in chest-told surgeon leave it if it won't hurt nothing for time being) PICC has its own problems-need to be flushed every few days with bandaging needing replacement weekly.....Steve

Shayenne's picture
Shayenne
Posts: 2385
Joined: Jan 2009
November 21, 2009 - 7:18pm

Port is the same, doesn't stay opened. My Onc said sometimes a sheath forms around it, which makes it hard to draw blood, but the chemo nurses always try to get both working each time (I have a power port, double barrell) and they flush both each time. If they can't get it working with the Heparin, they try something I believe called Apolex or something, which is stronger then Heparin, they leave it in anywhere from 5-20 minutes, and then BOOM! the blood is coming!

But they never will do chemo unless both are drawing blood, they like to make sure they are both properly flushed and drawing blood, which I like at least, that they work hard to get them to work, and cleaned out with the flushing.

Hugsss!
~Donna

Wenchie
Posts: 76
Joined: Apr 2009
November 25, 2009 - 10:22pm

Kathryn I had port problems too and after my third port, I went to a picc line in my arm. With the third port, they could not get blood return and kept poking around until they finally did. I ended up with a blood clot in my arm too but that was only the beginning. Port was accessed on Tuesday and by Thursday night I could not even turn over in bed due to chest pain. Come to find out, I had a very large pulmonary embolism and sepsis. 7 days in intensive care and the removal of that damn port and I'm happy with the picc line. Be very careful with even the small blood clots in the arms. Cancer patients have a tendency to get blood clots and the pulmonary ones can be deadly.

mcsauder's picture
mcsauder
Posts: 69
Joined: Nov 2009
November 25, 2009 - 11:13pm

Hi everyone
I have had a double port for 4 years and yes I went throw the same thing
the 2nd year I had it some type of blood clot happened they got something from the Pharmacy and then sat for one hour then everything started to work
I was in the hospital three mouths ago and they could not get it to work so they had to put a IV in my arm I now have a apartment at the end of December in infusion room to get working one more time
So no your not the only one and I'm like Donna I like to see the blood return
Mike

Julie 44
Posts: 480
Joined: Oct 2008
November 26, 2009 - 7:09am

From day one they couldn't draw blood from my port..They could flush it fine and infuse the chemo just fine....My shoulder also aches after wards...So everytime they get blood from my arm....So you are not the only one......JULIE

AnneCan
Posts: 3717
Joined: Oct 2009
November 26, 2009 - 9:39am

I guess I have been lucky; my power port has caused me no problems whatsoever & I am hardly aware it is there. It is flushed with saline.

Buzzard's picture
Buzzard
Posts: 3087
Joined: Aug 2008
November 26, 2009 - 10:39am

Seems as if the maker of this device sells it as a two way street. Its not working that way. Mine has never given any blood, just taken in chemo, flushed or not. seems to be a design flaw or just something added to spark a little more interest in the cancer field so that they become a hotter item. Mine is a single...

claud1951's picture
claud1951
Posts: 192
Joined: Jun 2007
November 26, 2009 - 11:24am

Yes, I had trouble as well. The chemo drugs went in fine but they could not get blood from the port. I did have a .....can't remember what it was, but they infused liquid and looked to see if it was working properly...Yes..going in was fine and I just kept it that way.

Didn't want to remove port and add another one. They put chemo in but took blood from arm.

Sending good thoughts
Claudia