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PLEASE READ. A message to Linda and Ro - and ALL OF US

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Like MANY others, I am saddened by your medical reports. I continue to pray for all afflicted with illness - and their families. That we all find peace and can enjoy life NOW. I continue to struggle to find the balance in life. It's hard!!!

STRESS CAN KILL US!!! It compromises our immune system and allows the terrorist diseases to do their damage. We need all the strength we can muster to battle our physical problems. It's hard to avoid stress and I'm working to handle my REACTION to it better.

You both are having VERY STRESSFUL times. Meditation and guided imagery can help us to relax. I urge you to integrate this into your lives. It's FREE and EASY - just takes some discipline to do it. It can strengthen your IMMUNE SYSTEM - and it's all about the immune system. I've also added OLIVE LEAF as a daily supplement - it boosts the immune system.

I'm kind of all over the place here, but you get the message.

Ro, enjoy your cruise. Linda, enjoy your weekend. Blessings to all, Mary Ann

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

I use prayer and walking the beach as stress relievers. I enjoy music and put my IPOD on to also relax. The beach is one of my favorite places to go, so I use it as my guided imagery when I am not walking on it. I love the feel of the sand between my toes, the wind in my face and the sound of the waves.

I cried for a day when I first got the news back in October that my CA 125 was above normal. Then I turned it over to God. Whatever his plan is for me, I pray for the strength and courage to handle it. So I really do not feel as stressed as you might think.

I think my tear ducts are connected to my kidneys, because I cried when the resident told me Thursday that the CAT scan was okay. After she left the room the tears came. Luckily it was a while before the doctor came in, so I could compose myself. I am so lucky to have a wonderful husband who is such a great support.

Today was a big step for me........ to go outside the house without a hat or wig. My husband has been telling me I have enough hair to go without the hat or wig. So I went to church without anything on my head!!!!!! In peace and caring.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

Ro, I remember when I went au natural (bald) the first time. It was disconcerting to say the least, but then very freeing. I then went out everywhere bald unless I needed a wig or hat for protection or warmth. So good for you.

I'm happy that you are at peace - and super happy to hear the scan did not show anything. Even though my ca125 is low now, I am not at all confident that I'm out of the woods. I worry that even thinking like this will "jinx" me.

Let's "do lunch" after your trip when you are able. We could meet in Sarasota with our hubbies - email me at daisyelder@comcast.net

Mary Ann

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Big day, Ro! The wind and rain and sun on your bare head/hair is one of life's delicious pleasures and I'm so glad you are enjoying that again. I had a VERY sparce crewcut of extremely thin hair with my scalp clearly visible when the summer heat hit in July, and it was just so hot, too hot to have anything on my head. At first I just went around my yard that way, and then to the grandkids' soccer games, and after that I figured, 'what the heck!', and I stopped wearing any head coverings. It's good to be comfortable in your own skin, as is, take-me-as-I-am happy.

Mary Ann, it's funny about stress and attitude, and I surprise myself at my acceptance and passiveness as I wait for my Wednesday appointment. My grandkids slept over last night and I woke up at 5 am with a feeling of great contentment, curled up against my husband, with my two grandkids sleeping in the other 2 upstairs rooms, knowing that we would be making crescent rolls today to freeze for Thanksgiving. And the kids got up at 9, so excited to do this annual task with me that they have assisted with each Thanskgiving since they were 2 years old. Thanksgiving is full of many such enduring multi-generational family traditions for us, as we recreate the exact Thanksgiving dinner I made with my own grandmother as a child, following the same recipes and schedule in order to get everything done. They were so proud of their skill at cutting and rolling the crecents, and we snuggled up in my bed and watched 'The Titanic' on the VCR while we waited for the rolls to rise. They remember all the stories I've told them about their Daddy and Uncle Eric baking crescent rolls, (and then their Daddy showed up just as the first pan of rolls came out of the oven, and had them giggling as he burnt his fingers on the hot pans to start right in sneaking rolls to eat, just like in the stories of when he was a little boy!) On Wednesday, after my doctor's appointment, they'll be over again to bake pies with me and make the cornbread for the filling, and probably sleep over again so that they can be there to help me stuff and put the giant bird in the oven early early, and help me make the cranberry relish, broccoli souffle, coleslaw,....

So I don't want anyone here to worry that I am waiting anxiously, suffering. I am enjoying this reprieve, this little window of 'ignorant bliss'. Perhaps I will get devastating news Wednesday, but more likely, I will get a plan for more tests or maybe something to settle down this intestinal inflammation so that they can do tests in a couple of weeks without anything to distort the results. But I get the feeling, that whatever's coming, I've already wrestled with the various possibilities early on in this journey, and I'll accept it better than the rest of my family will. I am soooo incredibly blessed in my life, and I know it.

Fran60's picture
Fran60
Posts: 24
Joined: May 2009

I love your attitude in handling this. Right now I know that anything is possible for me positive or negative. I am just taking one day at a time, the other shoe did drop for me, but I am doing everything I can to get them back on and live for the day. Enjoy each moment. I loved hearing that you had your grandkids with you.

On another note I did recently spend some time with a certified, well known nutritionist. I am following his diet rules as much as possible and taking some very powerful supplements from a company called GNLD. He recommends not drinking any type of fruit juices even those 100% as it blasts your system with a lot of sugar at once. Eat raw fruit and vegetables and chew them well. Eat a lot more vegies than you do fruit. Eat multi grain breads and good quality chicken, stay away from red meat, but if you do eat it do so before 1pm in the day and chew everything real well as we over work our pancreas when we do not chew our food well. There was a lot of other things too, but I think you have probably already explored these diet issues. I'm just hoping that I can suffocate these bad cancer cells.
Take care and praying for good results......Frances

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

The recommendations were very helpful. Thank you for the tip about the pancreas I will pass it on to my husband. He has a very bad bout with his pancreas. Have you been having better days now? My prayers and thoughts are with you. You are a great inspiration.....Hugs and hope. A cure is coming. We all deserve it.

Songflower's picture
Songflower
Posts: 632
Joined: Apr 2009

Dear All,

Ro, I am proud you went with your little hair. I went back to work with my little hair, I called it the "Obama" look but I don't think I had that much. Now my hair is really curly and white! People tell me to try this or that for the kinky curls. The truth is I have divorced myself emotionally from my hair. Even though my CA 125 has been normal I know that is no guarrantee with this cancer. I have decided to do the living with cancer mode as best I can as it seems this is the best way to go with this cancer. I learned to adapt to the wig and my hats and scarves when I was bald. I am not getting too attached to this hair. The hardest for me was the eyebrows and eyelashes.

I am sorry you had to sit in the room and cry alone. I send little angels of love and care to you.

I am thankful we are all here this Thanksgiving. Let us enjoy our families and friends for this time we have.

I am still interested in what you wrote about the insurance companies not paying for drugs for ovarian cancer. Do you mean the new molecular drugs? I wish we could get more information and join forces and fight this battle.

Thank you for sharing your most difficult times with us. You are a courageous woman. A good woman. We are all courageous and good. We are tougher than tough.
Diane

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I agree, there are some beautiful attitudes here.

I envy Linda and others with grandchildren - what wonderful memories for all as you cherish and pass on your family traditions.

- And the acceptance and serenity that Ro, Linda, Fran, and Diane mention. I am still working on that. We all have just TODAY. I am now grieving the loss of two young people - Jane, 55, who taught me Buddhist meditation who died after a long battle with breast cancer. And our young 38 year old priest to heart disease.

Enjoy today's Blessings, Mary Ann

pjba11's picture
pjba11
Posts: 192
Joined: Nov 2008

Mary Ann, So sorry for your loss. May you find peace. Hugs to you.

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

It is always hard when someone young dies. May you remember the good things about these people. I always loved this saying. When someone you love becomes a memory, those memories become treasures. Keep those treasures. In peace and caring.

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