Cancer Survivors Network

Hubby has deteriorated drastically over the last week and on Tuesday I had to call the ambulance because he could not move. He is now in hospital. The doctors have suggested he be moved to a hospice unit. Hubby asked me early on to try to keep him home and not in a hospice unit. However all the facilities I have spoken have indicated they will only help with meds and not with any part of his care. Paramjeet is tall and weighs 90kg+ It takes 3 nurses to sponge him down in hospital. How am I supposed to do that at home on my own. I am spending 14 hour days at hospital because they seem short staffed. He cannot talk beyond yes and no and sometimes he says yes when he means no. I feel awful that I may not be able to bring him home. Then there is the need to ensure the kids are involved which is hard because the hospital is an hour away.
He does not have much time left and yesterday I told him that the kids and I would be ok and that it was ok for him to let go. He just looks so miserable it was time to set him free.
I have been trying to make arrangements and although there are so many Sikhs living in our area none of the funeral directors in the area seem to have a clue what to do. I just feel like everything harder than it should be.
I feel like I am expected to hold it all together while the rest of the family (his sisters) flounder around attending to their own needs.
Ok am off to the hospital now.
Sangeeta