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liver questions



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iluvmms's picture
iluvmms
Posts: 124
Joined: Aug 2009
November 19, 2009 - 2:11pm

I went to Moffitt on Tuesday and had a PET , CEA and CT. Good news CEA down from 78 to 2.5, yeah!! The ct and PET showed the tumor in liver that was tehre is dead or not lighting up now, but it also showed another small area that did light up in the PET. I am confused why chemo did not get that one. Theyare trying to decide if I can have a resection, but they think not. They would have totake about 80% and that is too much. So they are also looking at RFA, Radiation and/or theradiation with the little glass speres. Does anyone know about this??

CHristy

zenmonk
Posts: 200
Joined: Nov 2009
November 19, 2009 - 2:41pm

They told me at first my liver was inoperable as well. I think liver resection viability is one of those things were multiple opinions help. I have talked to some people who where told they were inoperable by one Dr. then successfully operated on by another. I had to go to two Dr's before I found one that would do it.

iluvmms's picture
iluvmms
Posts: 124
Joined: Aug 2009
November 19, 2009 - 2:48pm

how much liver did they have to remove?

sfmarie's picture
sfmarie
Posts: 610
Joined: Aug 2009
November 19, 2009 - 6:05pm

Yes, try and speak to a liver surgeon. They have said they can take up to 70% if the liver. But maybe you just need more chemo and you will get there. Don't lose hope, it can be done! Sounds like you are getting good results and they don't know until they do the pre-op.
Good luck! Marie

shrevebud's picture
shrevebud
Posts: 107
Joined: Aug 2009
November 20, 2009 - 1:27am

Hi Christy:

I'm told I'm not a candidate for ablation (RFA), but I am eligible for the radioactive spheers - I went for a consultation about having that done. It's pretty involved. I chose to have chemoembolization on my liver instead of the spheres, but I am still eligible for them if I want to go that route. I felt they had a lot of possible side effects or things that could go wrong later. I'd rather have the hepatic pump done instead. Have you looked into that? Whatever you and your doctor decide I have faith that it will be the best treatment for you. Take care. Roy

zigswife
Posts: 63
Joined: Jul 2009
November 20, 2009 - 8:11am

Christy-
Did they talk about the option of staging a liver resection where they take out what's on one side, let it regenerate, and then go in and take out the other side? We are waiting to hear if my husband can have a liver resection and one of the options they have mentioned is doing it in two parts since he's not a candidate to have it all done at once. A second opinion sounds like a great idea!

zenmonk
Posts: 200
Joined: Nov 2009
November 20, 2009 - 8:30am

for me they removed one entire lobe and did wedge resections on 4 tumors on the opposite side and then did RFA on one more tumor on the opposite side. Of course none of that could have happened without an excellent response to chemo which shrunk/killed the tumors enough to were I became operable. Liver resection is a huge topic. Some DR's have skills that other DR's dont have. I would definatly get multiple opinions and possibly a plan to get your from the inoperable stage to the operable stage.

iluvmms's picture
iluvmms
Posts: 124
Joined: Aug 2009
November 23, 2009 - 1:22pm

I am now waiting til the 3rd of December and they are taking my "case" to the tumor board at Moffitt Cancer Center. Both tumors are in the right lobe, but are close to arteries, they said I have a 50/50 chance of surgery. If not the spheres are an option, or radiation every day or a RFA on one of them. The other is not active and it is 4.5 cm and doc said too large for RFA??? Any imput is greatly appreciated.