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decadron questions/issues..
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Nov 16, 2009 - 12:03 am
I'm 21, I've been on decadron since my surgery on Oct 6th. They successfully removed my 5cm GBM IV and now I'm on 120 mg of Temodar/radiation. I was on 8 mg of Decadron a day, it was lowered to 4 mg 2 weeks ago, lowered again to 2mg a day this past week, and I get to lower it again to 1 mg a day on the 19th and I can stop taking it 5 days after that. It has made my face and neck swell so bad, the doc called it "moon face". I was curious to know if this happens to everyone, what can help the facial and body swelling go down , and how long will it be before I look like me again? I already am having a hard enough time dealing with losing my hair, I just want my face back to normal. If someone could please offer any tips, please let me know. Thanks and God bless. -Richelle |
Joined: Jun 2009
in my experience with my husband when he was on decadron he experience the same reaction that you have. it has been some time since he was on it (10 yrs.) he nor i can remember how long it took for his face to return to normal. it does seem to me that it didn't take long. he did have an addiction to decadron though so sounds good that they are backing you off of it slowly. if you feel edgey, sleepless or depressed let your drs. know they can help you with all of that. be sure and ask for what you need because they can not read your mind and everyone is different.
Joined: Aug 2009
Hi Richelle
My husband finished his decadron early Oct. It only took a week or two for the swelling to start going down. He said that his body started to feel better after just a few day of being off the decadron. A physician told me to have him sleep with his body (head and neck) elevated, he said he felt and saw a different. Hope this helps alittle, feel free to contact us if you have any questions or just need an ear.
Take Care and God Bless
Jen and Sal Aranda