Cancer Survivors Network

I had been short of breath for a week but I finally couldn't take it anymore. Good thing. They called it a PE shower.

Maureen

Maureen,
Very scary. Glad you were alert to this and that it was caught. My prayers for continued recovery. This was a very frightening side effect.
Stef

OMG, that must have been so scary for you. I am so sorry that you had to go thru that. So happy that you and your coworkers caught it. I will pray that you have a full recovery!

Love, Jeanne ♥

I don't think I need to worry about mountain climbing but I do *live* at 7300 feet. And I'll try not to be klutz but that's going to be difficult.

Maureen

Maureen, so very sorry. That is another good reason for me not to take tamox. Just glad that you got to the hospital and will be ok now. Feel better soon!

Lex♥

I am very sorry. Please be very careful.
Hugs

Blood clots can be one of the side effects of tamoxifen. But usually its a DVT (deep vein thrombosis) not a pe (pulmonary embolism). The hospitalist's reaction was " you had DCIS, had a lumpectomy, radiation and tamoxifen? Isn't that overkill?" He called my oncologist in Las Vegas (I now live in NM) and they agreed that the tamoxifen needed to go. No argument from me. BTW, this is a good argument for having all those phone numbers in your phone--I was able to give it to him.

Maureen

Sorry you had a problem but WOW your doctor CALLED your old doctor? I'm so impressed.

The doctor in the hospital is a hospitalist i.e. I'd never seen him before in my life. But I povided the number and he called my oncologist and that's what they decided. I didn't argue--aren't you proud of me? ;-)

Just glad that you are ok now and that you know what it is and what caused it.

HUGS

Happy that you are ok now Maureen. That darn tamox grrrrrrrrrrrrrr

Sue :)

Be sure and keep us updated on how you are doing...ok? Love, Jeanne ♥

on my butt, going in to have my blood drawn once a day and fighting with the nasal cannula. The cats think it's great, all 3 of them are piled on me.

Maureen

Like everyone else. I am glad you were able to get treatment quickly. Hope your recovery is quick. Best wishes and prayers are coming your way.

becky

Glad you are ok Maureen! So happy that you got treatment so fast! Sending you hugs!

Just bumping this up for marywest.

Joyce

Saw this thread and just am hoping that you are doing better Maureen. Tamoxifen and its side effects are scary. Good luck!

Debby

It's been 16 days and I'm still on O2 but doing OK. I'm 600 miles from home seeing my kids for the holidays and driving home today. I'm going back to work Monday night with O2 in a backpack. I'm a nurse, I'm out of leave time and I'm losing my mind--I *need* to be back to work and my GP agrees. Work needs me bad enough that they agreed too. I only need the O2 with exertion, I'm fine at rest. Keep your fingers crossed for me!]

Maureen

My fingers are crossed for you Maureen and I will be hoping all goes well for you back at work. You seem to be taking this all so well...I really admire you. Are you driving 600 miles alone??
Take care and good luck on Monday.

Although it might have easier! My husband, my 17 year old and I went to see the other 3 kids and spouses/grandkid/cats/dogs. We just home.

Maureen

Fingers crossed! xoxoxox Lynn

Maureen, I am so sorry you have been having these major problems, but glad to hear that the diagnosis was made quickly, and you are doing well. I know that there are many problems connected to the Tamoxifen, and that is what makes it so hard to follow instructions from your oncologist.....you just never know if you are going to be one of those who are lucky enough to have the extreme se's. Please stay safe, and know we are all interested in your well being in the future. You mentioned you lived in New Mexico....where? I was in Ruidoso for about 8-1/2 years, and loved it there. What a beautiful state. Good luck to you, and hugs sent your way. Take it easy Monday.

Judy

There is snow in Ruidoso--9 inches the news just said. It really hit the south part of the state.
Maureen

My fingers are crossed and it's Monday now so I hope you're doing okay at work. Take care and let us know.

Maureen, I'm so sorry to read this news. What a crappy thing to have happened, but I'm glad you still got to see your kids for Thanksgiving. I wish you the best at work today. Please try not to overdo it. Let us know when you can. We are thinking of you.

Mimi

you are brave to make that long trip, try not to overdo it at work, I hope this resolves soon!!!!!!

Maureen, I am so glad that you are ok!

Lex♥

Last night went OK--I work from 1930 to 0800. My back got hot & sweating from the backpack but it worked OK and none of my patients had any comments. My coworkers won't let me overdo--I work with the same people all the time and they are the ones that sent me to the ER. One perk is that I can get my blood drawn while I'm at work in the morning instead of having to make a special trip!

Maureen

Geesh Maureen, that had to be so scary. I am pleased to read that you are ok now. Take care!

Hi Maureen! Happy to see that you are doing better. You are lucky to have some great coworkers that look after you. Keep us updated on how you are doing.

♠♣ Susie ♠♣

for all the good wishes. Work is OK, my coworkers are great and my boss is an idiot. I've been back to work 2 weeks and she changes the schedule so that next week I'm working 4 12 hour shifts in a row, one day off and then 2 more. I called her friday night which she ignored, and talked with her this morning and she was like: you work for the federal government, we can do whatever we like. Uh, no. Mandatory overtime is NOT something you can do. Does she *want* me to call in sick?

Maureen

Good to see you posting Maureen. Love your coworkes. Boo to your mean boss. lol

Hope you get it to work out. Hope you are feeling ok now.

Hugs, Diane ♥

It's fixed. If she hadn't seen the light, my doctor would have written a letter. What a waste of energy.

Maureen