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chemo induced peripheral neuropathy



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fmadore
Posts: 1
Joined: Nov 2009
November 14, 2009 - 2:12pm

I was treated for Breast cancer 2 years ago with dose-dense ACT. I developed neuropathy in my fingertips and feet during treatment. Unfortunately, I still have neuropathy in my feed and it seems to have become worse in the pst couple of months. I am finding it is affectecting daily life activities. Who else has experienced worsening CIPN and what treatments are there for it?

tasha_111's picture
tasha_111
Posts: 1941
Joined: Oct 2008
November 14, 2009 - 3:06pm

Yep I had the same treatments as you and have awful deadnedd, pins and needles and pain in my toes and fingertips. I finished chemo 18months back and it isn't getting better. I tried Lyrica, Gabapentin and heaps of stuff, the only relief I got was from a herbal mix of rose oil, geranium oil, Eucalyptus oil and bergamot oil...
Hope this helps...I'm still clomping about like a drunk, but it's a bit less painful

Hugs Jxxxxxxxxxxxx

New Flower
Posts: 2687
Joined: Aug 2009
November 15, 2009 - 1:35pm

I had different treatment, however most Chemo drugs give neuropathy during Chemo.
I did have it during my treatment and still have after 11 months. I was suggested by two different doctors that some antidepressants can help to improve it. I have not tried it myself.
Hugs

jennytwist
Posts: 533
Joined: Sep 2009
November 14, 2009 - 4:33pm

also and have been done with chemo since Aug 2009 and it does seem to be getting more noticeable. I think they told me this could be one of the side effects that sometimes does not go away. Sorry, I have no advice for you - I'm wondering if its more likely to stick around if you have had the dose-dense treatment? I can e-mail my Dr - if I can get any info/advice on it, I'll surely pass it on to you.
take care
-Jenny

creampuff91344's picture
creampuff91344
Posts: 963
Joined: Nov 2008
November 15, 2009 - 5:28pm

I also had the dose-dense ACT treatment, and the neuropathy initially was in both hands and feet. After about six months, both hands and my left foot are virtiaully free of the neuropathy. The right foot/toes, however, continues to be afflicted, and my onc says it is possible that it will never get better. I also experience quite a bit of cramping in the toes of that same foot. My potassium level varies, but I have not tried to take a supplement...just eat a banana once a day. If this is the only problem I have as a result of chemo, guess we are lucky. If you do find something that helps, please pass it along, and I will do the same. (My hubby is good at foot massages, and this relieves the feeling a bit for at least a few hours.) Hugs.

Judy