Recently was told that the initial diagnosis of stage II was waaaay off.
ENT based it on PET scan results, problem was the techs at the scan unit had a no show patient before me, and used the 45 + minute old glucose/tracer cocktail, and it did not highlight properly.
Most people would have been happy to have their doc say, het the scan is clean its only the one tumor, but I knew better.
With my husbands help, (couldn't speak well) we got things rolling at Emory Winship Cancer ctr in Atlanta.
It took some time and doing, and now aside from being scheduled to begin chemo and radiation I was informed by the chemo guy day before yesterday that the cancer has crossed into fatty tissue,then the radiation oncologist told me today it is into muscle tissue and lymph nodes, as well as some concern regarding carotid involvement. Stage IV B.
Anyone else been here done that and still doing? 19th scheduled to have PEG tube put in.