CSN Home » Cancer specific » Ovarian Cancer

Doxil seems to be working for me



Total items found: 15



	

					
				
kayandok's picture
				
kayandok

				          
            Posts: 1139

          
          
            Joined: Jun 2008

          
        					
				
		
									

        			    November 12, 2009 - 7:24pm			  			

			
			
Hi everyone, haven't updated in a while so thought I would check in.


I just received my third doxil infusion last week, and also had a CA125 taken. Yesterday I went in to get some more cream for my mild rash, and the results of my CA125. It was down again. So, it is too soon to celebrate, but doctor says it seems to be working for me.

I have mild skin itch on my lower legs that goes away with mild steroid cream, and hands and feet get red if I do too much. My problem is that I feel so good, that I tend to overdue. 


So thankful today for life and energy to live!!


Hugs all around,

Kathleen:)


‹ Abnormal Pap.. Has anyone had one? My mama is in heaven ›

						
login or register to post comments

				
	







	

		
			
ladyjogger31's picture
						
ladyjogger31

				      
	        Posts: 291

	      
	      
	        Joined: Mar 2008

	      
	    				
		
			
November 12, 2009 - 7:57pm

			
Chemo
			
So glad the Doxil is working for you and your Ca 125 is comming down.  I'm praying you have great results  with Doxil, it seems to work for alot of women.. Try ice packs during infusion on your hands and feet. It helped me.

Hugs and Prayers,

Terry 



			
login or register to post comments

				
	






	

		
			
kayandok's picture
						
kayandok

				      
	        Posts: 1139

	      
	      
	        Joined: Jun 2008

	      
	    				
		
			
November 13, 2009 - 12:15am

			
Yes,
			
I have ice packs wrapped around ankles, wrists, on neck and also hand onto some gel packs. I also use them for the first few days when I get red hands or feet. This last cycle was actually the first tim a got a bit of a rash. I'm hoping and praying it won't get any worse and I can tolerate it for a few more cycles.

How are you doing, Terry?

Kathleen



			
login or register to post comments

				
	






	

		
									
Deb2009

				      
	        Posts: 14

	      
	      
	        Joined: Jul 2009

	      
	    				
		
			
November 12, 2009 - 8:40pm

			
So Happy for You!!!!
			
Kathleen,


That's great news.  I am on Doxil and Avastin and got my first CT Scan results and the tumors have decreased overall by 19%....this must be the magic chemo.  My hands are red also.  Sort of feels like I rubbed my palms with sandpaper.  I'm going to put an icepack in a sock and place in my palms that next treatment.  Do you have a runny nose?  Thought it was allegies, but my dr. said that it's a side effect.


Hang in there....it's working.


Holding you up in my prayers.


Debbie



			
login or register to post comments

				
	





	

		
									
bonnie thomas

				      
	        Posts: 36

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
November 12, 2009 - 11:43pm

			
glad for you .
			
kathleen,

 i got my first doxil and avaston today did great.no side affects.

         i was on the researen for 9 months topkin. then the scan showed a little bigger where it has always been so we went to thei i had cabo and taxol 12 of them did good. tired and so you know how it is. they did tell me not to get up set if ca125 went up spme that is one thing it may do but will go down, so i am ready for all it brings i will be strong i an so happy for you .

    i meed to get the cream for the itch ha.i feel good and life is good god is at out side . 'my parys are with you.

 god bless bonnie thomas. where you from i am in miss



			
login or register to post comments

				
	





	

		
			
BonnieR's picture
						
BonnieR

				      
	        Posts: 1001

	      
	      
	        Joined: Jan 2004

	      
	    				
		
			
November 13, 2009 - 8:51am

			
Praise the Lord
			
Dearest Kathleen, I have tears in my eyes, tears of joy and answered prayers. What awesome news and already working by only the 3rd dosage. Usually doxil takes a bit longer before you see results. ♥prayers♥hugs♥joy♥ 


Bonnie



			
login or register to post comments

				
	






	

		
									
bonnie thomas

				      
	        Posts: 36

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
December 18, 2009 - 12:48am

			
hi there
			
hi bonnie bonnie here hope all is well with you merry christmas to you and your family. i am doing great on the doxil and avastion ca125 was 213 went down down to 42 great!!!!!!!!!!!!got a rash and itch but can deal with that i think . god bless you and have a happy new year.

                                              bonnie 



			
login or register to post comments

				
	






	

		
			
saundra's picture
						
saundra

				      
	        Posts: 1400

	      
	      
	        Joined: Mar 2007

	      
	    				
		
			
November 13, 2009 - 11:45am

			
Doxil
			
Kathleen, I am so amazed at your response to the doxil.  That really adds to my hope on more stuff in the medicine chest for the future.  And to feel good is an added blessing!!!  I am feeling good to on just the carbo.  I think the doxil + carbo was what gave the trouble.  Maybe I will just stick to one at a time for awhile.  We'll just keep on keeping on as long as the CA125 is responding, won't we?

In Christ,  Saundra



			
login or register to post comments

				
	





	

		
			
Lisa13Q's picture
						
Lisa13Q

				      
	        Posts: 649

	      
	      
	        Joined: Jul 2009

	      
	    				
		
			
November 16, 2009 - 7:11pm

			
YEAH!!!!!!!!!!!
			
So glad to hear!!! I can't wait to meet you in Japan this summer!!!!!!!



			
login or register to post comments

				
	





	

		
									
bonnie thomas

				      
	        Posts: 36

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
November 18, 2009 - 5:11pm

			
doxil
			
hi girl just wanted to ask did your ca125 go up while gettinh thje doxil my friends is up to 900. they told her it will not go down till she stops the doxil i have only had 1 8 days ago am feel great. will see my dr tomorrow i am also talking avaston once every other week, doxil once a month . hope you are doing good please let me know ok  praying for you god bless.

                     bonnie thomas



			
login or register to post comments

				
	






	

		
			
kayandok's picture
						
kayandok

				      
	        Posts: 1139

	      
	      
	        Joined: Jun 2008

	      
	    				
		
			
November 18, 2009 - 11:21pm

			
CA125
			
Thanks for all the encouragement girls!


Bonnie, my CA125 has gone down by almost 100 points. It never went up, although going up and finally coming down seems to be a doxil trait.  I will get my 4th doxil on December 3rd.


Hope the avastin/doxil combo is good for you. I wish I could get the avastin here in Japan. I hasn't been approved for OVCA yet. Still keeping my fingers crossed.


hugs,

Kathleen:)



			
login or register to post comments

				
	








	

		
									
bonnie thomas

				      
	        Posts: 36

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
November 19, 2009 - 12:00am

			
hi girl
			
Hi thank you for writing me so good to hear from you , thanks for the input, i pray you will get the avaston my sis n law and i are doing great on it so far. the inc aproved me for it . the dr said it is not approved here yet but some ins are allowning it. thank god i hope the ca125 goes down but like you say the doxil is know for that to be one of the side affets. japan ha i bet you love it there , dec 3 you go girl are you just getting 4 doxil . then what or do you know yet.god bless you stay strong and keep busy and just be your self take it all one day at a time , i have already got my christmas tree up ha , just in case i got sick went ahead and did it. going to dr tomorrow to talk  have not seen my head dr been seening the research dr for 9 months. mow going back to her they are all in the same place, great drs. i will let ya know how it went. have a great night

              bonnie



			
login or register to post comments

				
	






	

		
									
bonnie thomas

				      
	        Posts: 36

	      
	      
	        Joined: Nov 2009

	      
	    				
		
			
December 18, 2009 - 12:44am

			
doxil
			
hi there kayandok,

       how are you not been on in a while  i am doing great!!!!!!!!!!!!!on thw avastion and doxil got two and ca125 went down to 42 from 213 great.just had number 3 and doing great. do get the rash and itch and fingers ars so tender sometimes but ok . all blood work so far good. nothing droping much. just wanted to ck in hope all is well with you have a great christmas ok praying for you be strong.

                bonnie thomas



			
login or register to post comments

				
	






	

		
			
kayandok's picture
						
kayandok

				      
	        Posts: 1139

	      
	      
	        Joined: Jun 2008

	      
	    				
		
			
December 18, 2009 - 3:55am

			
doxil
			
Hi Bonnie, thanks for your update and checking in.  Glad that the doxil is working for you. Awesome drop in CA125!


I just got my CA125 from December 4th which would have been after a full 3 cycles. It dropped the first two cycles and then stayed the same for cycle three. I was disappointed but am always hearing how doxil is slow to work. Just wondering if anyone has experienced this kind of pattern.


kathleen:)



			
login or register to post comments

				
	








	

		
			
nancy591's picture
						
nancy591

				      
	        Posts: 1073

	      
	      
	        Joined: Sep 2009

	      
	    				
		
			
December 20, 2009 - 7:35am

			
how long
			
How long are they projecting you will be on Doxil?  If you mentioned it in a previous post I apologize for missing it.



			
login or register to post comments

				
	








	

		
			
kayandok's picture
						
kayandok

				      
	        Posts: 1139

	      
	      
	        Joined: Jun 2008

	      
	    				
		
			
December 20, 2009 - 7:52am

			
As long
			
as a year, providing it is working and I don't have any severe side effects.

k:)



			
login or register to post comments