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Casey Update



Total items found: 17

creampuff91344's picture
creampuff91344
Posts: 963
Joined: Nov 2008
November 12, 2009 - 7:03pm

Several of you have PM'ed me to find out how Casey is doing, and I wanted to pass along the following:

Casey was dismissed from Texas Children's Hospital yesterday,and has spent more than half his life in one hospital or another. They have run many tests, and still have an MRI to do before they will determine a prognosis. However, so far nothing has been found wrong, except that he keeps having breathing episodes....he will just stop breathing for no reason. They sent him home once again with a heart monitor, and will continue this for the next few months. After the MRI, they will have him on physical theraphy, thinking that perhaps his muscle structure just isn't strong enough to keep his heart beating. (Never heard anything like that before, and I think they are grasping for straws at this point.) Nevertheless, after the MRI, they will keep monitoring and hope that he grows out of this. In the meantime, Mom and Grandmother are not getting much sleep. I keep waiting for the phone to ring in the middle of the night, and poor Brittany is there with him constantly, worrying that she will be prompted into action when the monitor alarm goes off. Please continue to keep him in your prayers. We all are hoping to have a resolution to this soon, but in the meantime, any strength we can gain from all who know of him is appreciated. Hugs.

Judy

fauxma's picture
fauxma
Posts: 3292
Joined: Dec 2008
November 12, 2009 - 8:59pm

Judy,
I had been hoping that all was well with the little guy. It is good they are working so hard to find the cause but I cannot even imagine what it is like as mom or grandma. I worried when my Denise was a baby and would just watch her sleeping sometime and she was healthy. I don't know how I would have ever slept if she had these problems.
I will say prayers for this little fellow that he grows stronger every day and outgrows this. And for you and his momma as well.
Stef

rjjj's picture
rjjj
Posts: 1835
Joined: Jan 2009
November 12, 2009 - 9:07pm

Casey and his whole family are in my prayers.
jckie

Kylez's picture
Kylez
Posts: 2979
Joined: May 2009
November 13, 2009 - 9:04am

I keep praying for Casey and your family!

KYLEZ ♥

chenheart's picture
chenheart
Posts: 5171
Joined: Apr 2003
November 12, 2009 - 9:19pm

I too have been thinking about litle Casey~ and hoping for not just a clear diagnosis, but a resolution. You and your whole family is so precious to all of us, please keep us posted!

Hugs,
C♥

Reikigemgirl's picture
Reikigemgirl
Posts: 278
Joined: Jul 2009
November 12, 2009 - 9:46pm

is in my thoughts and prayers.

Love and light,
Vicki

RE's picture
RE
Posts: 4219
Joined: Feb 2004
November 12, 2009 - 10:34pm

Judy thank you for the update, I continue to pray for the little fellow. If you get a photo I would love to see his sweet little face. As you know God holds children above the rest so I am sure his eyes are on little Casey.

Many Hugs to you and yours,

RE

fauxma's picture
fauxma
Posts: 3292
Joined: Dec 2008
November 12, 2009 - 10:42pm

Judy,
Just went to your expressions and that is a beautiful picture of Casey and his Sister. They are adorable.
Stef

Jeanne D's picture
Jeanne D
Posts: 1880
Joined: Mar 2009
November 12, 2009 - 10:45pm

Thank you Judy for posting this latest update. I have been anxiously waiting for some news. I will also continue to pray for that sweet baby, you and your family. I know this is so hard on all of you. Please keep me updated on him Judy as I am so concerned.

Love, Jeanne ♥

tommaseena's picture
tommaseena
Posts: 1769
Joined: Feb 2009
November 13, 2009 - 5:48am

Casey and family have and will continue to be in my thoughts and prayers.

Margo

MyTurnNow's picture
MyTurnNow
Posts: 2642
Joined: Aug 2009
November 13, 2009 - 8:41am

I was wondering how the little guy was doing too. I'll continue to send positive thoughts and wishes for a resolution real soon. Take care.

tgf's picture
tgf
Posts: 972
Joined: Mar 2009
November 13, 2009 - 3:39pm

Thanks for the update ... although I'm sure you wish you had a real diagnosis/prognosis. I "sort of" feel your concern because my newest grandson was born about 6 weeks early but weighed over 6 pounds. Looked and acted very healthy right away ... but it didn't take long for them to realize that he had "infant sleep apnea." Every time he'd fall asleep he'd stop breathing. Talk about scary! They had him in NICU hooked up to all kinds of monitors with bells and whistles. I guess what he had is not terribly unusual for premature babies because they said that once his breathing developed to the point where he didn't stop breathing when he went to sleep ... he'd be totally fine and not need any type of monitor. I couldn't believe it ... but ... they knew what they were talking about. He was in the hospital for about a week and once his respiratory functions matured he was just fine. He's now almost 3 and all is well.

Anyway ... I know how frightening it to have those little ones in the hospital ... and you just feel so helpless.

Keep up updated ... and I'll be thinking of you and Casey.

Hugs.
teena

Ritzy's picture
Ritzy
Posts: 3425
Joined: Aug 2009
November 13, 2009 - 4:12pm

Thank you for the update! Poor little Casey. And, Poor all of the rest of you. I know you must all be mentally and physically exhausted. Just know we are praying for him!

Sue :)

survivorbc09's picture
survivorbc09
Posts: 3462
Joined: Jun 2009
November 13, 2009 - 5:08pm

I will be sending prayers to your grandson and your family Judy.

HUGS!

Akiss4me's picture
Akiss4me
Posts: 2200
Joined: May 2009
November 13, 2009 - 6:21pm

I too have been waiting to hear. Was hoping "no news" was good news and sorry to hear that this was not the case. I will continue to keep you and your family in my prayers. Pammy

DebbyM's picture
DebbyM
Posts: 2390
Joined: Oct 2009
November 13, 2009 - 6:50pm

Thanks so much Judy for the update. I was getting worried. Please keep us posted on how Casey is doing. My prayers to you and your family.

Debby

susie09's picture
susie09
Posts: 2547
Joined: Jul 2009
November 14, 2009 - 10:25am

Little Casey is in my prayers!

♠♣ Susie ♠♣

Alexis F's picture
Alexis F
Posts: 2758
Joined: May 2009
November 16, 2009 - 12:09am

I am so sorry about Casey Judy. But, thanks for the update. I will pray that he will outgrow this very quickly. Keep us posted.

Lex♥