Nov 10, 2009 - 4:20 pm
New to this site. Many brave and wonderful people here. It is nice to finally have someone who can relate and where you don't feel so isolated.
Here's my story: Hope someone can help. (By the way I am 49 years old now and I have a wonderful husband and three sons)
2004 - pain - colonoscopy (clear) vaginal sonogram (good)
Need a total hysterectomy however they wanted to put me on Lupron to reduce
September 2005 - total hysterectomy. Everything good. Doc goes on vacation.
October 2005 - staging surgery - node and washings all clear!
Developed infection at incision site (3 inch/3 inch deep open wound)
Nov 2005 - port surgery
Aug 2006 - three HDR bracyes No pelvic rads due to tremendous scarring. Risk of rads outweighed benefit.
since then follow up CT Scan's yearly, Radiologist Oncologist. No meds. Everything
New doc sees July CT scan. Now wants biopsy, PET Scan, chemo (taxol), surgery, chemo. I do not like how I was treated by this new doctor.
Anyway take PET Scan - it is clear. So I go for second opinion with another doctor. Looking through my charts it appears it changed from G2 Stage II to G2 Stage IIIa. could have been a typo somewhere since one of my scans said I was 80 years old!
New doctor said still should have biopsy since I am having some pain. Mainly due to scarring. October 1 - biopsy positive for endometrial cancer (which they were surprised)
Sent for PET scan in October 2009 - clear Also, the tumor has DECREASED IN SIZE (without treatment) from July 2009. It is now under 3 cm Then I was sent for MRI - clear. MRI suggested getting another PET scan?????
QUESTION: what kind of treatment. I think the radiation would cause more problems. Is there a radiation that can pinpoint the exact spot? This tumor is below the vaginal cuff and is sitting on the rectum so that is why surgery is out of the question now.
Also, has anyone ever gone to the Cancer Treatment Centers of America? Or do you know of another place I can go for an opinion. Oh I am soooo confused.