Visit with Medical Onc today - Need extra prayers!

Akiss4me
Akiss4me Member Posts: 2,188
edited March 2014 in Breast Cancer #1
Well, here it is 2:20am (alarm due to go off in 3 1/2 hours) and I am wide awake. Anxious about seeing my Onc today. Getting there will not be an easy trip for me as I am still in quite a bit of pain (1 1/2 hr ride). I am hoping she will step in and do some further checking into this situation with my abdomin and healing. I am beginning to feel like my abdominal wall did not hold at all. Sometimes you just know your own body to know something is wrong. It has been 5 weeks and I am still having trouble walking, etc. I would feel much better if they ran an ultra sound, CAT or something to check today. My GYN already said that this is out of her scope if the wall pulled apart. However, I am scheduled Friday for a recheck with GYN and not sure if Onc will step on any toes. I will ask anyway if there is anything she can do. Then, also, the wait will begin on the bloodwork, etc. but I am quite use to that at this point. So wish me luck that I make it there and back in one peice as I am wishing I didn't have to go anywhere. Geesh, and this was suppose to be the easy part of my treatment! Go figure....Pammy
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Comments

  • sgamtd
    sgamtd Member Posts: 124
    Pammy
    Here's extra prayers coming your way, I am up late too,(as always) although appts. tomorrow are looming for me to. I know what you mean, YOU know how your body should feel, and it's not feeling right, seems to me 5 weeks is too long of a time to still have trouble just walking.. The GYN said it's out of her scope, but did she say then where to go next ? Seems like she is dropping the ball instead of passing it on to someone who's capable of fixing this problem. Can you make a bed in the car for the trip and be more comfy ? I have started doing that and am usually able to sleep my 1 1/2 hr to rads, or whatever other appt. I have, long distance doctoring really sucks, I got behind with my radiation treatments due to other health issues cropping up, heart problems, sciatic nerve problems not really related to bc and yet somehow seemed to be brought by it. Ativan has helped me.
    We must keep fighting this bc beast, I have been prescribed ativan and that seems to be slowing me down some so I can cope for the time being. For my pains in back and leg sciatic I have yet to find one that does not make me feel worse that I already do, so I do alot of walking off the pain. On the way home from appt. I usually require a shake, malt, iceream of something. Also nausea medication seems to help if taken l hr before my trip starts.
    Loads of luck and prayers coming your way all nite long
    sgamtd
  • Akiss4me
    Akiss4me Member Posts: 2,188
    sgamtd said:

    Pammy
    Here's extra prayers coming your way, I am up late too,(as always) although appts. tomorrow are looming for me to. I know what you mean, YOU know how your body should feel, and it's not feeling right, seems to me 5 weeks is too long of a time to still have trouble just walking.. The GYN said it's out of her scope, but did she say then where to go next ? Seems like she is dropping the ball instead of passing it on to someone who's capable of fixing this problem. Can you make a bed in the car for the trip and be more comfy ? I have started doing that and am usually able to sleep my 1 1/2 hr to rads, or whatever other appt. I have, long distance doctoring really sucks, I got behind with my radiation treatments due to other health issues cropping up, heart problems, sciatic nerve problems not really related to bc and yet somehow seemed to be brought by it. Ativan has helped me.
    We must keep fighting this bc beast, I have been prescribed ativan and that seems to be slowing me down some so I can cope for the time being. For my pains in back and leg sciatic I have yet to find one that does not make me feel worse that I already do, so I do alot of walking off the pain. On the way home from appt. I usually require a shake, malt, iceream of something. Also nausea medication seems to help if taken l hr before my trip starts.
    Loads of luck and prayers coming your way all nite long
    sgamtd

    What a surprise!! I love that pic!!
    Thanks for all the well wishes and I was happy just to see you post! My goodness, you also have quite a few other issues to deal with too. I know sciatica can be very painful (my hubby suffers sometimes)and I feel for you on that one!
    My GYN did say she would have to refer me to a another surgeon, but wasn't even able to touch me when I was in there because I was too painful and still swollen. So she is trying to determin if in fact she can feel something so we can proceed. She did mention I need to heal first as my body will not take another surgery too soon. I say my body won't take feeling this way too much longer!!
    My hubby has decided he doesn't like her now, but I pointed out that she did a great job 4 years ago when she did my hysterectomy. The reason I chose to go back to her for this part. I do think she may have gotten in over her head when she ran into too many problems, but what are you going to do? Can't leave me half cut up!!
    I am talking to Onc about antidepressant and sleeping pills. I think after 6 months, I am worn out and giving in. Time for a boast.
    I hope all goes well for you tomorrow. I do have to put a pillow between me and the seatbelt, so maybe lying down isn't such a bad idea!! And ice-cream is a definite!!
    I'll be thinking about you tomorrow....hugs and smiles Pammy
  • ppurdin
    ppurdin Member Posts: 1,181
    Hi Pammy.
    I am sorry to hear your feeling so bad.Like you I have a Dr. appointment.And a hour drive to get their.I am meeting the radiation Dr. today.And getting cat scan to be marked for treatment starting tomorrow.And I am still breaking out in hives from the chemo allergic reaction.And it would have to be on my breast where I had surgery,I am hoping she will give me something to get rid of the rash once and for all.It itches like crazy.It is much better but 2wks. of itching is no fun.I woke up every hr. on the hr. so i just got up around 5.00.I will be ready for sleep tonight i hope.You mention sleeping pills,when going through Chemo I had to take them. It is so worth it to get a good night sleep.I didn,t take oe last night ,I knew I had to get up early.Well I pray you get good news today.Take care.Prayers are with you.(Pat).
  • natly15
    natly15 Member Posts: 1,941
    ppurdin said:

    Hi Pammy.
    I am sorry to hear your feeling so bad.Like you I have a Dr. appointment.And a hour drive to get their.I am meeting the radiation Dr. today.And getting cat scan to be marked for treatment starting tomorrow.And I am still breaking out in hives from the chemo allergic reaction.And it would have to be on my breast where I had surgery,I am hoping she will give me something to get rid of the rash once and for all.It itches like crazy.It is much better but 2wks. of itching is no fun.I woke up every hr. on the hr. so i just got up around 5.00.I will be ready for sleep tonight i hope.You mention sleeping pills,when going through Chemo I had to take them. It is so worth it to get a good night sleep.I didn,t take oe last night ,I knew I had to get up early.Well I pray you get good news today.Take care.Prayers are with you.(Pat).

    Oh Pammy I'm praying right
    Oh Pammy I'm praying right now that you get some resolve. I'm so sorry that you are having so much pain and discomfort. Please remember that when we feel we cannot endure another thing, He somehow always provides that door. I'm going to be a prayer warrior for you today!

    I didnt realize that there are a few of us who travel 1 1/2 hours for our onc and treatment. I pray that 1 1/2 hour ride is an easy ride for you today. God bless You!
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    natly15 said:

    Oh Pammy I'm praying right
    Oh Pammy I'm praying right now that you get some resolve. I'm so sorry that you are having so much pain and discomfort. Please remember that when we feel we cannot endure another thing, He somehow always provides that door. I'm going to be a prayer warrior for you today!

    I didnt realize that there are a few of us who travel 1 1/2 hours for our onc and treatment. I pray that 1 1/2 hour ride is an easy ride for you today. God bless You!

    Pammy .. Praying for you .. Still having difficulties
    walking .. I hope and pray it is due to treatments plus surgery .. Your poor little body is healing, at a slower pace than normal. Pain and discomfort walking is not normal is my book, but what do I know.

    I hope and pray that your 1 1/2 drive goes quickly for you with little discomfort.

    I too am seeing my Onc today .. for my 4th TCH treatment and here I am in Califorinia .. woke up at 3:30 a.m. cold, wet and sweaty .. due to hormones. Took another shower, and can not fall back to sleep. I am also anxious, as I know what my next 8 to 10 days will be like. Ugly week, as I call it.

    Good luck with everything and I truly hope you can get the information you need.


    Blessings and strength,

    VickiSam
  • Akiss4me
    Akiss4me Member Posts: 2,188
    ppurdin said:

    Hi Pammy.
    I am sorry to hear your feeling so bad.Like you I have a Dr. appointment.And a hour drive to get their.I am meeting the radiation Dr. today.And getting cat scan to be marked for treatment starting tomorrow.And I am still breaking out in hives from the chemo allergic reaction.And it would have to be on my breast where I had surgery,I am hoping she will give me something to get rid of the rash once and for all.It itches like crazy.It is much better but 2wks. of itching is no fun.I woke up every hr. on the hr. so i just got up around 5.00.I will be ready for sleep tonight i hope.You mention sleeping pills,when going through Chemo I had to take them. It is so worth it to get a good night sleep.I didn,t take oe last night ,I knew I had to get up early.Well I pray you get good news today.Take care.Prayers are with you.(Pat).

    Thanks Pat!
    I was awake all night, but hubby woke up and we talked and just realized I was not going to sleep. Hope all goes well with you today...heading out the door! Pammy
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Thanks Natly & Vicki too!
    Hubby waiting on me....gotta hit the road, but wanted to say how much I appreciate your encouragement! I'll post when I get back if I don't pass out first (LOL). Pammy
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    Pammy, I'm sorry you're still not doing well.
    I hope your visit today gets some relief or at a minimum answers for you. This road definately sucks that we're on but seems to be even more trying for you. I'll wait to hear how your visit went and wishing you a safe and tolerable trip. Sending a gentle hug your way!!
  • creampuff91344
    creampuff91344 Member Posts: 988
    MyTurnNow said:

    Pammy, I'm sorry you're still not doing well.
    I hope your visit today gets some relief or at a minimum answers for you. This road definately sucks that we're on but seems to be even more trying for you. I'll wait to hear how your visit went and wishing you a safe and tolerable trip. Sending a gentle hug your way!!

    Pammy, here's hoping the
    Pammy, here's hoping the trip goes well, and that your pain will be relieved soon. I can't imagine what you are describing, and know there must be something that can be done to help you heal. I would insist on a referral if your GYN isn't able to help you. Good luck, and let us hear how things are going after you return home. Hugs.

    Judy
  • rjjj
    rjjj Member Posts: 1,822 Member
    Akiss4me said:

    Thanks Natly & Vicki too!
    Hubby waiting on me....gotta hit the road, but wanted to say how much I appreciate your encouragement! I'll post when I get back if I don't pass out first (LOL). Pammy

    Hi Pammy
    I am praying for you today. I hope all gets resolved with the best possible news. I am glad you have your hubby to take care of our dear sister.
    Love and hugs, jackie
  • jennytwist
    jennytwist Member Posts: 896
    Akiss4me said:

    Thanks Natly & Vicki too!
    Hubby waiting on me....gotta hit the road, but wanted to say how much I appreciate your encouragement! I'll post when I get back if I don't pass out first (LOL). Pammy

    Keeping you in my thoughts & prayers extra
    today! Hopefully you'll get some good news! Take care & after today is over, hopefully you'll be able to sleep like a baby!
    much love,
    Jenny
  • Calleen
    Calleen Member Posts: 411

    Pammy, here's hoping the
    Pammy, here's hoping the trip goes well, and that your pain will be relieved soon. I can't imagine what you are describing, and know there must be something that can be done to help you heal. I would insist on a referral if your GYN isn't able to help you. Good luck, and let us hear how things are going after you return home. Hugs.

    Judy

    Well
    By now you should know what may be going on with you.. It's noon my time. I'm praying for you!! You've been through enough!! Maybe you too can have some ice cream on your way home!! as you know Ice cream makes everything better...

    Calleen
  • chenheart
    chenheart Member Posts: 5,159
    Akiss4me said:

    What a surprise!! I love that pic!!
    Thanks for all the well wishes and I was happy just to see you post! My goodness, you also have quite a few other issues to deal with too. I know sciatica can be very painful (my hubby suffers sometimes)and I feel for you on that one!
    My GYN did say she would have to refer me to a another surgeon, but wasn't even able to touch me when I was in there because I was too painful and still swollen. So she is trying to determin if in fact she can feel something so we can proceed. She did mention I need to heal first as my body will not take another surgery too soon. I say my body won't take feeling this way too much longer!!
    My hubby has decided he doesn't like her now, but I pointed out that she did a great job 4 years ago when she did my hysterectomy. The reason I chose to go back to her for this part. I do think she may have gotten in over her head when she ran into too many problems, but what are you going to do? Can't leave me half cut up!!
    I am talking to Onc about antidepressant and sleeping pills. I think after 6 months, I am worn out and giving in. Time for a boast.
    I hope all goes well for you tomorrow. I do have to put a pillow between me and the seatbelt, so maybe lying down isn't such a bad idea!! And ice-cream is a definite!!
    I'll be thinking about you tomorrow....hugs and smiles Pammy

    Awwwwwww Sweetie~ you are
    Awwwwwww Sweetie~ you are such a precious member of our family, always encouraging others with your loving, empathetic,funny and smart insight. Now it's our turn to return the favor. We all send you every good wish, and strength to help you get to the "whatevers" are causing your healing to be slower than expected. If Good Wish and Strength were only an ice cream flavor you would have this licked! ( pun very much intended!)

    Keep us posted, and feel the love from all of your sisters here on the boards.

    Hugs,
    C♥
  • Dawne.Hope
    Dawne.Hope Member Posts: 823
    I'm praying too!
    Dear Pammy,

    I've been thinking about you the last couple of days and wondering how you were. I'm so sorry things are so rough. Know that I too, am praying. May someone HEAR you and help you. Hang in there, dear sister!

    big hugs,
    dh
  • cindycflynn
    cindycflynn Member Posts: 1,132 Member
    Pammy
    By now you are on your way, so when you get back hopefully you'll feel up to reading all the posts telling you how many of us are sending prayers and positive energy your way so that you will find the answers you need to ease your pain.

    We all know that you are strong, but we would still like it better if your weren't in a position to have to prove it.

    Take care,
    Cindy
  • always
    always Member Posts: 256

    Pammy
    By now you are on your way, so when you get back hopefully you'll feel up to reading all the posts telling you how many of us are sending prayers and positive energy your way so that you will find the answers you need to ease your pain.

    We all know that you are strong, but we would still like it better if your weren't in a position to have to prove it.

    Take care,
    Cindy

    More Prayers
    No one can have too many prayers. I hope all is going well for you at this point in your day. My prayers are for answers, peace and healing. May you find all and more in a short amount of time. My very best to you.

    becky
  • tjhay
    tjhay Member Posts: 655
    Darlin you are in my prayers
    Darlin you are in my prayers as you have been from day one, rest assured my thoughts are with you and that I am sending you lots of possitive thoughts.
    tj
  • tasha_111
    tasha_111 Member Posts: 2,072
    tjhay said:

    Darlin you are in my prayers
    Darlin you are in my prayers as you have been from day one, rest assured my thoughts are with you and that I am sending you lots of possitive thoughts.
    tj

    Pammy..
    Sorry I'm late. Thinking of you. Huge hugs Jxxxxxxxxxx
  • fauxma
    fauxma Member Posts: 3,577 Member
    tjhay said:

    Darlin you are in my prayers
    Darlin you are in my prayers as you have been from day one, rest assured my thoughts are with you and that I am sending you lots of possitive thoughts.
    tj

    Oh Pammy,
    I am so sorry that

    Oh Pammy,
    I am so sorry that all is not going well for you. You are already on the road so I won't give any advice right now. I just hope that whoever you see today checks this out at least. Friday is a long way off when you are in pain. When I had my hysterectomy my incision split open and I got an infection. They had to pack it and for weeks I had to have a home care nurse come and remove and replace the packing and check it. It delayed my rads by a few weeks but they weren't going to start if it wasn't totally healed. I hope that you haven't split anything inside. It could be adhesions. They can develop quickly and are extremely painful.
    My Prayers are that they resolve this and I prescribe ice cream, lots of ice cream. Big cyber hug to you.
    Stef
  • Sunrae
    Sunrae Member Posts: 808
    fauxma said:

    Oh Pammy,
    I am so sorry that

    Oh Pammy,
    I am so sorry that all is not going well for you. You are already on the road so I won't give any advice right now. I just hope that whoever you see today checks this out at least. Friday is a long way off when you are in pain. When I had my hysterectomy my incision split open and I got an infection. They had to pack it and for weeks I had to have a home care nurse come and remove and replace the packing and check it. It delayed my rads by a few weeks but they weren't going to start if it wasn't totally healed. I hope that you haven't split anything inside. It could be adhesions. They can develop quickly and are extremely painful.
    My Prayers are that they resolve this and I prescribe ice cream, lots of ice cream. Big cyber hug to you.
    Stef

    One more prayer
    Pammy, waiting to hear how it went for you today. Sorry for all your problems and hope that better days are near. All our prayers go up for you and surely you will get relief soon. You deserve more than ice cream, make that a hot fudge sundae or banana split.