Nov 08, 2009 - 3:57 pm
My mother is 73 years old and was diagnosed with GBM 4 in June 09. The tumor is not operable. Her doctors told us she would have 6 to 18 months. We started the radiation and chemo on July 6th. She had 7 weeks of radiation and started the temador at the same time. She has been also been taking steroids since her diagnosis, which are awful. We had to stop the temador rather quickly because her platelettes were so low and she had to have 6 transfusions to get them back to where they should be. After the radiation ended she really went down hill very quickly. She can not get out of bed and we have had to have hospice come in everyday. My sisters and I care for her round the clock. Her appetite is getting a little less now and she sleeps a lot. She doesn't communicate very much and doesn't seem to be in any pain or discomfort. She is very confused and doesn't seem to know or care what is happening around her. There are small changes in her all the time now. She has always been so active and smart and it's so hard to see her like this. There is no dignity with this disease. I would really like to know if anyone can tell me what to expect next.