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beth trial



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newbiefromcananda's picture
newbiefromcananda
Posts: 235
Joined: Oct 2009
November 5, 2009 - 6:31pm

has anyone heard of or took part in a trial study of using a drug called Bevacizumab with herceptin in HER2 + breast cancer?
Thanks everyone Lisa

Ritzy's picture
Ritzy
Posts: 3425
Joined: Aug 2009
November 5, 2009 - 10:38pm

No Lisa, I haven't. Can you tell us more about it? I am sure that the HER2+ ladies here would be interested in knowing more. Thanks!

Sue :)

rjjj's picture
rjjj
Posts: 1835
Joined: Jan 2009
November 5, 2009 - 10:47pm

I am very interested in knowing more,I only have a couple Herceptin treatments left and have finished all other ..chemo, and radiation. Please keep me posted and I will dosome researchalso. and good luck to you dear,

Jackie

tommaseena's picture
tommaseena
Posts: 1769
Joined: Feb 2009
November 6, 2009 - 3:52am

Lisa,
I have never heard of this. I will not finish my Herceptin treatment until August 2010. It would be interesting to find out about it.

Margo

e_hope's picture
e_hope
Posts: 372
Joined: Sep 2009
November 6, 2009 - 8:03pm

I was also offered a clinical trail with this drug.. I am her2 neg.. ( i am a triple neg ca).. i choose not to take part in the trail because I didn't want to be part of a trail that was blind.. some patients would get a palcebo and some the avastin..

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 6, 2009 - 8:10pm

My friend told me her friend got the avatin, she was stage3/4 so she definately got the drug. She was on it for a year and then her blood pressure was too high so they stopped it. she has had all clear scans for two years.

newbiefromcananda's picture
newbiefromcananda
Posts: 235
Joined: Oct 2009
November 7, 2009 - 1:12pm

well It is a clinical trial to learn if adding bevacizumab to treatment with chemo and herceptin to lower your chances of reoccurence if you go to the cancer website it has been successfully used in corectal cancer? so I am really not sure what to do , herceptin was a clinical trial as well and now it is being used so?I am still thinking about it Lisa

Marlene_K's picture
Marlene_K
Posts: 509
Joined: Jul 2009
November 8, 2009 - 9:53pm

You never know if going with a clinical trial is the best thing to do or not and I suppose that's why they call it a 'trial'. It's understandable for people to feel like 'guinea pigs' because in essence, it's close to that. It depends a lot upon the side effects of what it is they are using and they can usually tell you that. I almost did a clinical trial of 'Avastan', but the side affect was that it caused heart problems. They said they would back out after the 7th patient came forth with heart problems. That person came through 2 days after they told me about the trial, so it closed. It's difficult and it's scary to think that you are trying something that the medical field is not certain about, but you have to weigh it out. There can be a lot of good that can come out of new medicine and things that are popping up for sure. I am presently on TAC which was also at one time a 'clinical trial'. Unfortunately, from day one we are faced with decision after decision and only 'we' as an individual can make those final decisions. One thing that has helped me make decisions more easily is that I'm not making them for my child and hope to GOD I'm never faced with that!

I'm certain you will make the right choice, Lisa! You seem to be a very strong woman and very inquisitive. You will find your answers... never stop asking questions!

Hugs ~ Mar

DianeBC
Posts: 3038
Joined: Jun 2009
November 10, 2009 - 2:53am

I haven't heard of it, but, I admire those that do them. I would be too scared, but, someone has to in order to find new advancements and treatments I guess. Good luck to you if you do it.

Hugs, Diane ♥

xskeetshooter
Posts: 172
Joined: Aug 2009
November 9, 2009 - 4:05am

worth looking into, at this stage. thats why so much money is donated, to find more what will get rid of this dragon.

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 9, 2009 - 11:36am

the same freind who had the friend, was part of a clinical trial 18 years ago, for adriamycin and cytoxan, did not get taxol. she is cancer free 18 years later. and doing great. she inspires me every day. its a tough decision. I wonder if you can talk to other women who have been through it or currently involved, or will that mess up the study?

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 9, 2009 - 11:36am

the same freind who had the friend, was part of a clinical trial 18 years ago, for adriamycin and cytoxan, did not get taxol. she is cancer free 18 years later. and doing great. she inspires me every day. its a tough decision. I wonder if you can talk to other women who have been through it or currently involved, or will that mess up the study?

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 9, 2009 - 11:36am

the same freind who had the friend, was part of a clinical trial 18 years ago, for adriamycin and cytoxan, did not get taxol. she is cancer free 18 years later. and doing great. she inspires me every day. its a tough decision. I wonder if you can talk to other women who have been through it or currently involved, or will that mess up the study?

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 9, 2009 - 11:37am

the same freind who had the friend, was part of a clinical trial 18 years ago, for adriamycin and cytoxan, did not get taxol. she is cancer free 18 years later. and doing great. she inspires me every day. its a tough decision. I wonder if you can talk to other women who have been through it or currently involved, or will that mess up the study?

carkris's picture
carkris
Posts: 4057
Joined: Aug 2009
November 9, 2009 - 11:38am

how do I get rid of the repeats my impatient hands keep doing this ugh!!!1sorry

survivorbc09's picture
survivorbc09
Posts: 3462
Joined: Jun 2009
November 9, 2009 - 11:46am

You keep hitting post. Sometimes the site is slow in posting what you wrote and you keep hitting post thinking that it didn't take it. Just hit it once and wait.

It happens..lol

DebbyM's picture
DebbyM
Posts: 2390
Joined: Oct 2009
November 9, 2009 - 1:47pm

I have never heard of this trial. Good luck to you!

Debby