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i need help please please pleaseeeeeeeeeeee

pop28
Posts: 21
Joined: Oct 2009

my llttle girls 6 years old with brainstem glioma we start radiation the doctoers said we cant doing any treatment after that , i want know what that meannnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnn is that mean death help me pleaseeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

PBJ Austin
Posts: 347
Joined: Mar 2009

I can see you are in terrible pain and I wish I could offer some answers to your questions. You are very welcome on this board and I hope someone here can answer your questions. Have you looked into support groups in your area?

I'm sorry I can't be of more assistance but I want you to know that you and your family will be in my prayers.

RLR
Posts: 36
Joined: Sep 2009

Please don't give up hope on your 6 year old! First of all look to the Lord for help God will not let us down in time of need.
Iam 55 and I too have Glioblastome Multiforme 4. I was diagnose on 12/15/08. I was told the tumor was inoperable. I was sent to the U of Michigan for a second opinion. They too said it was inoperable because of the location and risk of removing. On 1/11/09 I became very ill and had to go to the hospital, by a blessing from God I meet a new surgeon in Toledo, Dr Healy, he said I will do the surgery today if I can get you in. He got the surgery scheduled for 1/13/09.The surgery removed all that he could see I had 6 weeks of radation and have been on Temadar chemo ever since.Also at the time of surgery I had 6 glio wafers palced on the tumor. I have had some good days and some bad days but for the most part have been doing fine.I have been able to do most everything I did before surgery.
I have been so blessed by prayers from all of my family and friends and pastors from my church in Napoleon Ohio. I know this has been a big part of my getting through all of this, so please don't give up hope. May God bless you and your daughter through all of this! I know it can be very scary but don't give up hope.

pop28
Posts: 21
Joined: Oct 2009

YOU ARE VERY GOOD ONE AND GOD WILL MAKE YOU SO SOGOOD

Adar
Posts: 2
Joined: Nov 2009

Ok--Please let me know what type of the tumor is?

Adar
Posts: 2
Joined: Nov 2009

Ok--Please let me know what type of the tumor is?

pop28
Posts: 21
Joined: Oct 2009

ITS alow grade astrocystic of the brain stem

chicken2799's picture
chicken2799
Posts: 105
Joined: Nov 2009

I was diagnosed with Anaplastic Astrocytoma Stage 3! They found the tumor on October 20th, 2009, and done my surgery October 29th, 2009!

I wish I knew more about all of these things to help encourage you, but I am new to this. I start my treatments of Radiation and Chemo on I believe November 30th. I know I can tell you that this led me to rededicate my life to The Lord, and through Christ all things are possible. We have to keep our faith, I know that! I will be praying for the Lord to give you the strength to help your baby fight this, and I will keep you in my prayers always!

Michelle

pop28
Posts: 21
Joined: Oct 2009

im pray to you and keep going

MAJW
Posts: 2515
Joined: May 2009

Perhaps he is talking about radiation.....once radiation is complete, it cannot be given again in the same place.....that doesn't mean there aren't other treatment options...don't give up! Please ask the physicians what their plans are for treatment once she finishes radiation. Also there is a drug called Avistan, ask about that, too.

Also there is a Dr. Friedman at Duke University in North Carolina who SPECILIAZES in glio's. He is the foremost physician in this speciality.......
Peace be with you

DebbieI
Posts: 5
Joined: Jun 2009

The raod is long but there is hope. Another Doc to check out is Dr. Blakely at John Hopkins.

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