Nov 03, 2009 - 9:22 am
I have GBM4. I was diagnosed on 12/15/08 and had surgery on 1/13/09 to debulk the tumor.This was after being told for a month that it was inoperable. I had 6 glio wafers put on the tumor base at the time of surgery. I had 6 weeks of radation and have been on Temodar chemo ever since I have had a few problems but not many. The biggest problem was with my eyes, they have pretty much corrected this with prisms on my glasses. The biggest question I have is having been doing pretty good for the last 10 months does anybody have an idea what I can expect in the next months or years a ahead. I have read all of the stats and they are not good beyond 14 to 16 months of diagnosis. Is anybody out there where I am or beyond and how are you doing at this point. My doctor never seems to want to comment on this. I am not asking how much longer am I going to live. I just want to know what to expect in the months ahead.