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I'm going to Tennessee to see Dr. Cantrell 1st wk of Dec

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Everyone,

Well, I went ahead and called Neoplas Innovations, which is Dr. Stephen Cantrell's clinic in Nashville, TN. I asked more questions and ended up actually setting up an initial consultation with him. I set it up for Dec. 4-5 since I am getting my next scan that prior week and so I'll have all the latest updates on myself with me at that time.

Many of Dr. Cantrell's patients are people who have been told there's nothing else that can be done, but some of his patients are also just on their last approved chemo with it not making tumors go away. That's the situation I'm in- my "innumerable subcentimeter lung nodules" just won't go away no matter what & the best my current regimen is doing for them is keeping them stable. Stable is good of course, but I want to see if I have a chance of making them completely go away! I'm not a candidate for radiation, cyberknife, or surgery for what I have in my lungs since there's too many of the nodules in all parts of my lungs.

Now for the financial aspect of going to Neoplas Innovations... the initial consultation is the only thing they ask you to pay for up front. It's a two day deal, two hours each day & I was told the cost will be about $960. I'm not sure how that works if insurance will reimburse you. You will have to plan on making that payment at the time of your consultation. Visits after that they can put you on a delayed payment plan. You go back in for a follow up appt. about 11 weeks after starting their treatment. The actual medications you get can likely be covered by most insurance companies- who knows, maybe insurance will reimburse for it. Maybe that depends upon how "on board" your regular oncologist is with this and if he/she will advocate it for your to your insurance. the say each person is responsible for working things out with insurance companies- they do not work with insurance companies because they do not have the time or resources to do so. You do not have to stay in Nashville for treatments- the lovastatin is in pill form and the interferon is in needle form that they show you how to self inject yourself. Lovastatin is actually a statin- a drug to help with cholesterol, but it has been found to have anticancer qualities as well. It combined with the interferon seems to have a remarkable reaction against cancer cells. Of course, there are no guarantees it will work for everyone, but they do seem to have good outcomes with most of their patients. You can do follow up bloodwork and scans at home and then just have results sent to them.
I asked about how willing Dr. Cantrell is to work with your regular oncologist. I was told that he definitely will communicate with your primary oncologist. The only time that doesn't happen is if your oncologist is unwilling to communicate with him, which he said does happen with some doctors.

My husband and I are thinking "why wait" first to see if I totally fail on Folfiri- if this is something that could possibly make my tumors go away, as Folfiri hasn't done, then I should go check it out now. It's possible I'll be told I'm not a candidate, but from what I read, I think that I probably will be.

If you haven't checked out his website yet for yourself, do so- it's always good to be knowledgeable about other options out there.
Here it is again: www.neoplas.org
The Youtube video of Dr. Cantrell's interview on "Fox and Friends" 2 wks ago
It's titled "Dr. Stephen Cantrell"

Have a good day everyone-
Lisa

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

check this out as well, please Lisa, keep me updated on this, if it helps you, maybe it will help me, I'm in the same situation as you.

Does it tell you what kind of side effects these drugs have? I have to jump in the shower soon, and don't have time to read yet, but I will pay the almost thousand bucks for this, I thought it be alot more!

Thanks for this research, it' a good things to know, that there may be hope out there!

Hugsss!
~Donna

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Wow Lisa! Good for you! I'm in the same situation with the numerous lung nodules. I've done several rounds of Folfiri and I'm actually sitting in the waiting room now waiting for my PET/CT. I made an appt at Johns Hopkins to see if they have something different for me because this endless chemo is really starting to get to me. Anyway, keep us posted on your progress. Thanks!

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

I will definitely keep you posted on how it goes. It's still a ways off, but I will definitely post an update right before I go and of course after returning home from the consultation. I happen to have a nephew and his wife who live right near there & I will be staying with them.

Lisa

just4Brooks's picture
just4Brooks
Posts: 987
Joined: Jun 2009

One thing about this cancer trip is that many of us do this without a plan. We just do what the doctors say to do. It's good to see that you have a plan and you're going to make it happen. I cant wait for you to tell us how it went. Remember I'm only in Murrieta (20 mins) from you. Maybe we can do luch sometime and talk?

Brooks

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Brooks,

That would be good sometime. I'll pm you with my phone #. Maybe we could also include Serrana and/or Krista, who both live in San Diego county too. I'm pretty busy right now, so it might just have to be the phone call at first.

Lisa

angelsbaby's picture
angelsbaby
Posts: 1162
Joined: May 2008

It does sound like an option worth looking into.I hope it will work out for you

michelle

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Why wait? I think it's very smart to check this out and get started! I can't wait to hear how it goes. I pray for you several times a day (along with many others).

Diane

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Hi Lisa,
I think it sounds like a good idea. At least a consult to see what he thinks. My thoughts are with you. Can't wait to hear what he says. Paula

Fight for my love
Posts: 1341
Joined: Jun 2009

Dear Lisa,I just want to let you know you are in my prayers and I hope everything goes fine with you.Take care.Best luck to you with your appointment.

lizbiz's picture
lizbiz
Posts: 121
Joined: Aug 2008

I just wanted to thank you for the information. I'm currently facing a situation where I'm out of options. No chemo has worked and the clinical trial I was on failed. I'm going to give this place a call and make an appointment.

Hope all goes well!

Thanks again,
Elizabeth

snommintj's picture
snommintj
Posts: 602
Joined: Mar 2009

I brought this up two months ago, where's my cred? What? Dr.Cantrell and I have e-mailed a few times. I'm still wildly skeptical. When you see him, check and see if he's all scarred up from surgeries all over his neck and head. If he is, then I might believe him. I was planning on going up in a few weeks to consult. I don't have an appointment. I've tried to contact some patients but I haven't heard back from any. It's $1000 dollars up front. That's pretty steep, so I know; if it's a scam I'll probably bust him in his chops. I really do want to hear from some one who's being treated. Maybe you can be the guinea pig and let me know. This is my week off of Xeloda and I have a Drs appt next week. I don't need for the Dr to tell me it's working, I know it is. I haven't had any pain in my lungs at all which it's been a while since I can say that. I'll wait a few more treatments before I go. I wish you the best of luck.

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

John! That's where I first heard about this! I knew someone brought it up a while ago, but I couldn't remember who it was (darn chemobrain!) So, now I know! :)
I'm usually the skeptical type, but am wanting to find another option, so I'm going to explore this avenue. I know having to pay the $960 (that was what I was told) up front is steep. I guess if it doesn't work out and I don't go this avenue after all, that's what I'll be out (a bit more actually, since I'm flying in and out, getting a rental car, etc.)
Interestingly, I read an article in our newspaper today about how statins (which one of the drugs Cantrell uses- lovastatin) are helping people who get the flu to survive and fare better. The article went on to say statins are now being researched for their antiviral qualities and how they seem to help people with infectious diseases recover better. The article didn't mention cancer, but I did read about lovastatin online (not on Cantrell's website, but elsewhere) how lovastatin is naturally occuring in oyster mushrooms and has been found to have anticancer qualities.

I'm glad the Xeloda is working for you, John. I will certainly let everyone know how my visit goes. It's not until Dec. 3-4, though, so it will be a little while before I know anything more, myself.
Have a good day-
Lisa

mom_2_3's picture
mom_2_3
Posts: 939
Joined: Nov 2008

Lisa,

On Thanksgiving we always have a full house as we have my family and my husband's family for dinner. Thanksgiving is my favorite holiday as I have always felt I was very thankful for what I had in my life. One of our traditions is to have our family prayer and everyone say what they are thankful for. This year on Thanksgiving I will make sure that we all say an extra special prayer for success from this new program for you. You know I always keep you in my prayers everyday but on the coming holiday I will put everyone else in our families on it as well.

Sending you love and hugs,
Amy

tootsie1's picture
tootsie1
Posts: 5016
Joined: Feb 2008

Lisa,

Good luck with this. Let us know what you find out!

*hugs*
Gail

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

Are coming your way Lisa! I do hope this is legitimate. It almost seems too good to be true, but hey, you just never know.
Hugs, Marie

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

Are coming your way Lisa! I do hope this is legitimate. It almost seems too good to be true, but hey, you just never know.
Hugs, Marie

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

Are coming your way Lisa! I do hope this is legitimate. It almost seems too good to be true, but hey, you just never know.
Hugs, Marie

Nana b's picture
Nana b
Posts: 3041
Joined: May 2009

I wish you well!

Raquel

robinvan's picture
robinvan
Posts: 1014
Joined: May 2007

I hope this works for you. We could all use the boost and the hope that comes from a promising new treatment.

Be well... Rob; in Vancouver

ittapp's picture
ittapp
Posts: 385
Joined: Jun 2009

Lisa, I am still on my first line of treatment and am getting response from Folfox. If at any time it stops working I will be looking into this treatment. Thanks for paving the road for us, I look forward to hearing the details. I will pray for you everynight that you get the treatment that will be successful. God Bless you, Patti

amyboston's picture
amyboston
Posts: 92
Joined: Oct 2009

Lisa,
My thoughts and prayers are with you. I looked at the NeoPlas.org website the other day and
was really impressed by what I saw.

Blessings to you and your family.
Amy

Annabelle41415's picture
Annabelle41415
Posts: 4403
Joined: Feb 2009

Glad that you have a plan of action going and it sounds like he has a big following of people. I wish you the best at this visit and please keep us updated. I agree with you, why wait when you could do it now.

Kim

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Elizabeth,

Let me know if you end up getting an appt. set up too. I think I could have gotten in sooner than the Dec 3-4 that I scheduled, but I wanted to give enough time for me to have results from a couple more tests and scan (CEA and PET).
Best wishes!

Lisa

DAN R
Posts: 4
Joined: Nov 2009

hi i can't seem to find your last comment about talking to one of dr cantrells patients. is there a reason for this? i spoke to someone at dr. crantells office today and they gave me a name of a colon patient. i made an appointment for wed. nov 11. thanks dan

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Dan,

Wow- Nov 11th! I wish I were going sooner than my Dec. 4th date, actually, but my plans for then are set & I'm waiting for a PET scan that I'll have on Nov. 30.
Please definitely share your experience after your appointment. I'm going to PM you with some other info.

Best wishes-
Lisa

DAN R
Posts: 4
Joined: Nov 2009

hi lisa, what happened to your last comments about talking to the patient? i can't find it on line.

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Dan,

I just double checked and the thread I wrote about it is still there- it's a few posts below this one, called "talked to a patient taking Dr. Cantrell's treatment". Check again & I'll also send you a PM.

Lisa

DAN R
Posts: 4
Joined: Nov 2009

hi lisa, i'm sorry to bug you but i still can't find the post. i want to show my son and daughter. could you please send me a link or send me your e-mail in the pm. my kids are really excited about this procedure. im not totally convinced. dan

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Dan,

I just sent you a PM with all the info & got back a reply PM from you, but it was blank. Did you see my PM? Let me know here, if not.
I'll send you another one w/ my email address, if that's easier for you.

Lisa

KFen725's picture
KFen725
Posts: 108
Joined: Jul 2009

Lisa,

I know we will all be following your experience with this closely. I hope that you get good results. Will be continuing to keep you in my prayers!

Kelly

Good
Posts: 1
Joined: Feb 2013

Hi Lisa42,

Just joined as a new member, read your comments and you were very excited

about your trip a few years ago.  How did things go?  I hope all went well for you.

Looking forward to hearing from you.

Good

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

sorry for double post.

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

often the members are well-loved individuals who may have passed.  Start a new thread should you wish to make comments or ask questions of the board.  It is painful to have posts of the pasts suddenly appear like this. Thank you. -- Cynthia

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