Oct 28, 2009 - 10:29 am
My husband Jim had his esophagectomy on August 10th....He was stage 1, so we are extremely grateful to be among the few diagnosed so early. Since that time, he has battled a persistent thrush infection, and is finally over that. Last week was a milestone, as we ate dinner together for the first time in two months. He was able to eat pot roast and keep it all down. His J tube is still in, although he is hoping to remove it in a day or two. He has not been using it for the last five days or so, and has kept it in as an emergency back-up, if it is needed.
Jim is a big man, about 6'5", and has lost 45 pounds. We are tracking his caloric intake carefully (to keep it up). We own a wholesale nursery, and he has been going out for a few hours to help with the fall inventory, and check on our crews.
The problem now is that he is very weak and tired. I feel that this stems from dehydration. He has great difficulty drinking fluids. A small glass of juice or water gives him trouble, and he says that it physically bothers him to swallow. For some reason milk is a little easier for him. When he had thrush, he relied on herbal tea, but has not tried that yet. Yesterday for the first time in weeks he did not have soup as any of his meals, so my thinking is that he is not getting enough fluids. The glass of juice he poured last night that contained about 4 oz. still has about 3 oz. in it..... He can eat my homemade pumpkin bread, chicken, eggs, you name it, but liquids are near impossible for him.
Does anyone have any insight or tips? He's sleeping now at 9:00 in the morning, after sleeping all night, and has barely moved from his recliner, other than to eat a slice of the afore-mentioned pumpkin bread. I'm about ready to call the nurse! He says he will just go back to tube feeding, but it seems that since he's eating so well, he should stick with his original plan and get ready to jettison it.